Rare Diseases UK has shared this information that will be relevant to those of you who have been determined to be "Clinically Extremely Vulnerable" and received letters asking you to shield. covid-19.geneticalliance.or...
We know that people have questions about vaccination and how it might relate to their mast cell diseases. We are working with our medical advisors to come up with a summary of what is known so far, and I expect we will have some questions to discuss with your own doctors. We know there is a great diversity within our patient population, so there will not be one answer for our members about which vaccine might suit etc. We do know already that many of our members tolerate vaccination and are fully vaccinated including getting annual flu vaccines. We also know there are a small number of patients who have previously had reactions to vaccines whose doctors have suggested that in some cases they not get a particular vaccines. This is a diverse group!
We also hope to set up a mechanism so you can let us know how your vaccine experience went, so that we can feed that info back to clinicians to help them help you! Stay tuned.