I have been away for a while.: Hello everyone... - Thyroid UK

Thyroid UK

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I have been away for a while.

37 Replies

Hello everyone

I hope that despite all adversaries everyone is managing somehow.

I have bad news, I was diagnosed with having growth on my ovary.. I would not go into details at the moment. I am awaiting for my CA-125 results and biopsy and hoping that this is not a malignant growth.

I want to wish everyone good health and strength while fighting thyroid disease.

I am still taking 1 grain of erfa, feel bad, however I have decided to wait and see how it will all go.

I did try to get a guidance from private doctor I used to see but I did not receive any.. very frustrating and quite cruel state of affairs.

Unfortunately I am not able to see Dr P just yet.

For now I am supplementing what I should and I hope to have more of a good luck in the future.

I am praying for more compassion and understanding in this world. If there would be more compassion and understanding we all will be much better...

Warm wishes to everyone

E xx

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37 Replies
shaws profile image
shawsAdministrator

Edysia,

I am sorry you have another problem to cope with. Maybe it is due to your thyroid as female problems are common in hypothyroidism.

We do try to support on another on the forum as it is all we can do, unfortunately.

Hopefully, you will have a good medical professional to deal with your latest problem.

in reply toshaws

Thank you Shaws. I am not sure if this is thyroid related, it might be and I wish so much it would go away with the right thyroid treatment.

I am very scared, but also aware that sometimes things need to be left to fate.

It is hard to find a good doctor, but I hope that it does not meant that they are not there, it is just the matter of having good luck to find them.

Happen what is meant to happen.

Thank you once again for your kind thoughts.

E xx

mummytina profile image
mummytina in reply to

I'm sending you all the best and I hope everything turns out alright for you, you deserve that much.

Big hugs from me

Tina x

in reply tomummytina

Thank you so much Tina xxx

helvella profile image
helvellaAdministrator

Well I most certainly will be thinking of you - and hoping for the best.

Rod

in reply tohelvella

Thank you Rod. I do appreciate that so much.

E xx

You were missed Edysia !

sending you warmest hugs and positive thoughts xx

in reply to

Thank you smooze.

Warmest hugs back to you.

Exx

Corinne profile image
Corinne

Hi Edsyia,

Sorry to hear about your bad news, I hope you will get the support you need from your Doctor and that you'll feel better soon on erfa.

All the best, and lots of hugs

x

Corinne

in reply toCorinne

Thank you Corinne xxxx

Edysia I too am very sorry you have this further thing to deal with. I echo Shaws comment, perhaps it is connected to being so hypothyroid and treatment will for that will help. I pray you get a good result from the biopsy and I am so sorry you received a nasty email too, the very last thing you need.xxxx

in reply to

Thank you so much laladrew for your prayers and good wishes. I am not in a good place emotionally so it is hard for me to find any hope. I am still waiting for my biopsy appointment, takes a while on NHS.

Sending you best wishes

E xx

Edysia, so sorry you,ve had bad news, pray all will be fine ,l wish you all the best and hope you will have good health very soon, xx

in reply to

Thank you gemini, Good luck and prayers seems to be the only thing that could possibly help. Medicine failed me so far. I envy Americans, the level of knowledge among the doctors is really impressive. ... well, unfortunately I am not living there:(

Thank yo so much for your lovely words and good wishes.

Take care

Exx

Hi Edysia, I'm sorry you have even more to deal with now. Hopefully you'll get a really good doctor and have a good outcome. In the meantime keep us posted with any developments. We're all here for you.

Lots of love,

Helen. XXX

in reply to

Thank you dear Helen. I doubt that I will find a doctor that can help me ( my case is becoming really complex), I am feeling low and I do not have good experiences with medical world.

Nevertheless thank you so much for your good wishes.

Sending you my love and lots of hugs

E xx

in reply to

It's so hard getting a good doctor, but really praying and crossing everything for you. You have so much to worry about. Please get your cortisol tested. That's what I'm doing, it might give some insight on why you are reacting badly to treatment. Sending you lots of love. XXX

RoloHibbs profile image
RoloHibbs

Hi Edysia,

I'm so sorry to hear that you've had bad news.

Sending positive thoughts and hugs,

Karen xx

in reply toRoloHibbs

Thank you Karen xx that's really lovely of you. I am embracing this positive thoughts and hugs right now.

Sending you lots of good wishes

Exx

You have already been through so much and I'm sorry that you have yet another challenge.We are all rooting for you and you are in our thoughts. keep strong! love jan xx

Oh Edysia, life is so unfair sometimes isn't it. Be strong, hang in there and please keep us updated. We're always here to listen and support.

in reply to

Dear cinnamon_girl. Life is unfair for some of us.. there is not much we can do about it, we can only do our best and fight.... even fighting is sometimes impossible. ..

Thank you so much for you kind words of support. Sending you love.

Exxxx

rosetrees profile image
rosetrees

Thanks so much for posting Edysia. I was wondering how you were. It might be "bad news", but you KNEW something was wrong and at least now someone has taken you seriously and you will find out what the problem really is.

I can't see how your thyroid/adrenal meds can be properly controlled when you were obviously scared stiff, knowing that you had a gynae problem but unable to get anyone to take you seriously.

Whatever the outcome, at least you can now get proper treatment and move forward.

(((((((((((((((((((Edysia)))))))))))))))))))))

Do keep posting so we know you are doing ok.

in reply torosetrees

Thank you rosetrees xxx

The picture is much clearer now, however I did not see any specialist yet. Lets hope he will treat this seriously.

I am truly scared stiff as you say..

love and hugs to you

((((((((((((((((((((((((((((((((( Rosetrees)))))))))))))))))))))))))))))))))))))))))))))))))

Thinking of you at this worrying time. I agree there should be more compassion in this world.I have had a belly full of small minded.As my Mum used to say " if you can't say anything good about anyone, then don't bother at all". Good luck with your results, hope you are getting all the support you need at this time x

in reply to

Thank you Wednesday xxx yes it is better to say nothing than harm.... well that is not always the case.

I do not have my results back yet. If I need surgery, I am too weak to go through it right now anyway - I am so much hypo at the moment.

I wish to get a bit of support, I will be much happier if I did.

lots of love to you.

Exxx

nightingale-56 profile image
nightingale-56

Wish you well Edysia. (((Hugs))) Janet.

in reply tonightingale-56

Thank you Janet xxx (((((hugs))) for you too and lots of good wishes

E xx

Framboise profile image
Framboise

Edysia I'm sorry to hear about your latest diagnosis but, looking at it the other way round, it might be the cause of your ill-health and once it's dealt with you might start to recover, or at least its related symptoms will have gone. I do hope so and please let us know how things go!

in reply toFramboise

Thank you Framboise. I am still waiting for my NHS appointment with specialist. It take ages :(

There is a bit of catch 22 here. I am too unstable ( very hypo) to have surgery at the moment, at the same time having something bad going on down there making me more unwell- on both levels- physiological and psychological as I am very worried..

Love

E xx

Hi Edysia.

I'm so sorry that youve had more bad news health wise. I'm just hoping and praying that this is something that can be dealt with. You deserve to be well and I will be crossing my fingers and toes for you. Much love and rest assured that you are in our thoughts.

Xxx

in reply to

Hi Joesmum xx

I am even more depressed than I was thanks of this news :(. Thank you so much for your prayers and kind thoughts and words. I am sad because even if I sort myself out gyneacollogically I will still suffer from hypothyroidism which have truly devastating effect on my life.

Sending you lots of love and hugs

E xx

ravenhex profile image
ravenhex

Hugs hun. Fingers crossed you will get some good news as you are well due some.

in reply toravenhex

Thank you ravenhex xxx thanks for crossing your fingers:), I am in a great need of good news...

Sending you hugs

E xxx

Jonesey profile image
Jonesey

Hi Edysia

Every day I visit this site and every day I think of you. Stay strong. x

in reply toJonesey

Thank you Jonesey xx

It is so lovely of you to think of me :), I will be thinking of you too.

Sending you lots of love and hugs

E xxx

skyfall profile image
skyfall

Why not fax or call dr p I'm sure he'd find a way to help. Read his book if you can it covers the links across the while endocrine system including ovaries...and good luck and love...

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