I thought I would tell my story to try and help those who are feeling distressed with their diagnosis.
I was born in 1974 and was lucky that my doctor was on holiday and a doctor was covering from Guys and St Thomas hospital. He was a specialist in Thyroid disorders and I was diagnosed almost straight away, it was thought that the shock of being born made my thyroid stop working. I was put on thyroxine pretty much from birth. Having to travel as an out patient to Guys on a 6 monthly appointment up until I was 16 when I had to be discharged. At that time I was told I would be on 150mg per day. ( taken altogether in the morning) well since then I have been to many doctors most of which did not ever understand the condition. When my blood tests came back low the doctor wouldn't look into it they would just increase my dose. I do have very dry skin,am tired a lot,have carpal tunnel,IBS,depression and various other issues associated with an under active thyroid. When I left London I was on 500mg which is classed as a lethal dose and I was constantly questioned by pharmacists about it.
Thankfully a miracle happened to me, I moved to Norfolk and registered with a new practice, this practice and my new Doctor was so shocked with my levels of thyroxine they straight away ordered blood tests and worked with the local clinical chemist to sort out my levels. Don't get me wrong this wasn't an easy fix and took a little time. But eventually it was established that my body doesn't convert T4 into T3. I was then put on T3 ( liothyronine) and the dose was adjusted as needed until it has stablised. That was 6 years ago that I was put on my current dose. I have lost a bit of weight, my skin is still dry but I am passed worrying about that. My brain sometimes has a few silly moments but I actually have an excellent memory and have a large number of qualifications. I do have a degree in biomedical science so do have some background and can talk about my condition. But with the Internet now you can find out a lot of information.
I wanted to show people that it can get better, it took 30 years for me but the condition wasn't and isn't very well understood and it just takes perserverence and a good team of doctors to get you to the right place.