New Thyroid Medications on the market? - Thyroid UK

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New Thyroid Medications on the market?

Charmaine44 profile image
7 Replies

Hello,

I was diagnosed with an under active thyroid 30 years ago and had been put on Levothyroxine. Over the years the dose has been increased and reduced , but in the last few years it has failed to be effective. I have increasingly gained weight that i cannot shift

I have spoken to my doctor and have been referred to a specialist. Whom again, wanted to increase it . 8 years ago i developed a deposit from the overproduce of hormones which i had to have an operation to remove, so ever since , i have been hesitant to continue to stick to the require dose. I was again referred to the hospital who advise they wanted to do further tests, using a dye.Having also had bad experiences with hospitals , i am hesistant. I want to know if their is other thyroid medications which have come onto the market. I am not happy taking thyroxine for the rest of my life bearing in mind the health implications of this

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Charmaine44
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7 Replies
greygoose profile image
greygoose

'8 years ago i developed a deposit from the overproduce of hormones which i had to have an operation to remove'

Sorry, but what exactly does this mean? Which hormones are you talking about? What sort of a 'deposit'? Where?

'but in the last few years it has failed to be effective.'

Sorry, but hormones don't just suddenly fail to be effective. Either you were under-medicated, or you developed a conversion problem, due to low nutrients, or something. Do you have any lab test results you can share with us?

There are no 'health implications' attached to taking levo, as far as I know. Many, many people take it all their lives with no problems at all. But, there are other forms of thyroid hormone replacement - T3 and NDT, which have always been around, not especially new to the market - and there are several different brands of levo, if the one you're taking doesn't suit you - which one are you taking? :)

Charmaine44 profile image
Charmaine44 in reply togreygoose

Hello,

Because i was taken the a high dose , my thyroid levels was over , which meant it was deposited elsewhere in my body which was in my vagina lip which was surgically removed. I am not happy with taking thyroxine all my life with it not working

"There are no 'health implications' attached to taking levo, as far as I know. Many, many people take it all their lives with no problems at all. But, there are other forms of thyroid hormone replacement - T3 and NDT, which have always been around, not especially new to the market - and there are several different brands of levo, if the one you're taking doesn't suit you - which one are you taking? :) "

Thank you , this helps tremendously. However , i dont think the doctor will agree to prescribe T3 or NDT. She just wants to constantly increase the Levothyroxine despite the fact it does not work for me :(

greygoose profile image
greygoose in reply toCharmaine44

No, I'm sorry, thyroid hormone doesn't get deposited anywhere. Excess T4 is either excreted or converted to rT3. Whoever told you that has no idea what he's talking about.

Is levo really not working? Or are you just not converting it? It would help if you posted your lab results, with ranges.

But, if you don't want to take levo, and your doctor won't prescribe NDT or T3, the only other solution is buy your own and self-treat. There is nothing else.

bantam12 profile image
bantam12 in reply toCharmaine44

What was "deposited elsewhere" ? sounds a bit strange.

eeng profile image
eeng

People who have thyroid issues tend to become depleted of vitamins and other nutrients over the years. I wonder whether this is why your Levothyroxine seems to have become ineffective. Search for SeasideSusie 's posts on this forum, and get your doctor to test your levels of Ferritin, iron, Vit D, B12 and Folate. These need to be at healthy levels, not just within the 'normal' range. We can be low on these nutrients even if we eat a healthy diet because thyroid issues affect the gut so that we don't absorb nutrients properly, and if we take something like Omeprazole for acid reflux that makes things much worse.

Taking Thyroid medication at the same time as other medication of some supplements (eg iron) can also stop the body from absorbing the thyroid medication.

I hope this helps.

jgelliss profile image
jgelliss in reply toeeng

eeng ,

You are so right . When I was on thyroid meds from get go my meds did not work well for me at all . I learned much later that nutrients are needed to partner with our thyroid meds to work efficiently for us . What a big difference it makes .

LAHs profile image
LAHs

Hi Charmaine44, If your doc told you that thyroid hormone was precipitating elsewhere then you need to change docs, s/he just has no idea about the thyroid/endocrinological system. See if you can find a doc who will prescribe NDT, search the world if necessary, start with the manufacturer, Forest/Actavis/Allerga in New England, US. e-mail them and ask just how can you get NDT. They will give you leads. Also, get a full thyroid panel blood test and post the results, then we will all be able to give you suggestions. The precipitations are not due to Levothyroxine, it's just not that type of medication.

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