Ailments aren't always down to your Thyroid. - Thyroid UK

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Ailments aren't always down to your Thyroid.

11 Replies

Over the years, 29 to be exact, once we got my maintenance dose right, I've never had to bother about it, until recently. Yes, 6 monthly blood test, with the occasional self-maintenance on my part. All ailments I put down to my thyroid, it does cause a lot of problems.

However, I started to get major palpitations in October and thought, thyroid function needs to be done again. Only to find out I have SVT (supraventricular tacycardia) and high blood pressure.

I was rushed into ITU with type 2 respiratory failure. The moral, if it doesn't feel right, go to the doctor! I've learnt a hard lesson and never want to go down that road again.

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11 Replies
Moggie profile image
Moggie

I totally agree with this, we can get so hung up on our thyroid problems that we dont look further than out noses for any other causes. Just going by the law of averages, the amount of memebers on this site alone will have any number of other illness totally unrelated to the thyroid to contend with throughout their lives.

Moggie x

Moggie profile image
Moggie

p.s. Sorry I didn't say that I hope you are now well and fully recovered.

Moggie x

shaws profile image
shawsAdministrator

Well, I am glad they found out what the real trouble is and you are on the mend.

The trouble is that many people on thyroid meds do get palpitations/tachycardia, so you wouldn't imagine that it could be more seriousl

in reply toshaws

Shaw this is why I wrote the blog, we've all been there, Oh! palpitations again.

For anyone having these symptoms please to not presume it's your thyroid. Go to your GP and get it checked out. I'd now rather be told, it's nothing!

xx

Moggie,

I've still got a long way to go at the moment, but by the middle of the year, things should have settled down again. God willing!

xx

akcoop profile image
akcoop

29 years of synthetic thyroid medication might just cause this kind of problem?

Just a thought!

in reply toakcoop

Hi Akcoop,

You can be born with SVT and don't know you have it for years. It was a combination of illness' which lead to the ITU the major being heart and lung. The doctors did various tests and didn't put it down to levothyroxine and knowing the ITU consultant, had he found it, he would have told me.

I can't praise the ITU staff enough, not that I knew much for 10 days, a very dedicated team of Doctors and nurses and ancillary staff.

auldreekie profile image
auldreekie

i agree and after 10 years of thyroid disease I believe pernicious anaemia is at the bottom of my heart, gut and neurological issues.

please look at the PA site is you have any suspicions of similar problems -

pernicious-anaemia-society....

Glynisrose profile image
Glynisrose

I think you might be one of those rare people that don't have any problems!! I can link all my ailments back to my thyroid even if the endo refuses to acknowledge it!!

akcoop profile image
akcoop

Hi Witty,

Indeed you could well be right, although I don't think potential for toxicity of levothyroxine after long term use (or even short term) and it's possible effects is going to be on the radar for most specialists, they will be more concerned to alleviate immediate difficulties, which indeed they are very often very brilliant at, especially at ITUs.

I have no cause to complain about the NHS or intensive treatment units, but I have a bugbear about levothyroxine and several other pharma drugs simply because they don't work for me and have made me feel much worse with other symptoms - including palpitations! Just makes me wonder what these allopathic crutches might do to our bodies, particularly over a long period of time.

I have a friend who was born with congenital hypothyroidism and been on levothyroxine all her life - she seems fit as a fiddle at 35 but beginning to be concerned with various minor health difficulties which she thinks may be related. But that's the thing - no-one's telling what the long term effects are... if anybody knows what they might be? I imagine cardiac difficulties, especially tachycardia, would be a prime possibility as a side effect of long term use of thyroid medication, but that's just my concern perhaps.

Other medications are out there which appear to be potentially much less damaging but our beloved NHS fails to recognise this or is seemingly intent on denying people a right of choice for potentially safer or more effective medications... but that's my battle I suppose ... it just made me reflect on your case and comments.

Very best wishes to you and a full and speedy recovery. Andy

nightingale-56 profile image
nightingale-56 in reply toakcoop

Just wonder whether this is why they don't seem to want to start us on levothyroxine too soon, bcause they really know what problems they can cause in the long-term?

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