I was diagnosed in Feb 09 and started on 100 mcgs of thyroxine.. which has increased and decreased according to my blood test. My last blood test was in August and I received a letter telling me to decrease from 150 to 100. Since then I have felt so so exhausted, achy, weepy, blood blisters in my mouth etc etc.
Today i went to see my doctor again to ask if I could see a specialist. It was a new doctor who actually listened to me. I gave him a list of 17 symptoms which I am feeling on a constant daily basis. I told him that when I was first diagnosed I was informed that I was hypo and take these tablets ( I'm sure most of you have been in the same position) nothing was explained. Today I was told I probably had Auto-immune hypothyroidism... but he would check with more blood tests and he would also check my blood sugar levels. I asked him for my last results and he printed out ALL my results from every blood test since I was diagnosed.
My last result (which is when meds were reduced to 100 mcgs) in August were :
I now have another blood test tomorrow morning.........
I know I didn't get referred like I wanted to be but at least he listened.