End of my tether 😔

[Totoro25]

So if you read my recent post it was referring to my New Horizon blood results.You guys were fantastic and gave me lots of advice which is appreciated.

However for the second time in 2 months I've just been turned down for the second time with my request based on how I'm feeling for an increase in Levothyroxine (currently on 100mg)

Previously my TSH was 1.4 (see posted blood results) and everyone here said the sweets spot was on or just under 1.

She has taken bloods again today and said she'd let me know but I'd they were inside their normal parameters then I definitely would not be getting an increase.

She then went on to say that if that was the case they'd look at depression etc as a reason for why I feel so bad.

I'm at the end of my tether with this.

I also asked for a referral to a consultant endo and that's a maybe "we will see"

I'm not sure what else I can do. I tried talking about the chap who created the formula they use in GP practices (someone here gave me the link) and that maybe it wasn't being used properly.. Needless to say that didn't go down well.

She then went on to tell me to stay away from forums, Google and the Internet as GPs know best.

Kind regards

[Dahliasanddaisies]

Hello, I think like many of us you've reached the limits of working with your GP on thyroid care. Most if them think if your TSH is in range then you're all good!You can try changing to another GP at your surgery or you can try going privately to see a specialist GP or Endocrinologist. You'll find a recommended list on the Thyroid UK website

[Sparklingsunshine]

Your GP has fallen back on the old depression trope. Its just my opinion but dont everbe fobbed off with a depression diagnosis, and that's exactly what it is, until you've been comprehensively tested for everything physical. Its lazy, piss poor medicine.

Its their woeful lack of knowledge and lack of willingness to educate themselves and keep upto date with the latest guidelines that is the issue, plus a lackmof humikity and a lot of arrogance. Not a recipe for success or happy patients.

Thyroid UK is where the NHS tells thyroid patients to go,maybe point that out. I'd also be tempted to say that forums like this wouldnt be necessary if doctors did a better job of treating thyroid disorders.

She sounds dreadfully patronising. I know I often sound anti GP and tbf there are some good ones out there, but time and again we hear of really bad ones, who are more interested in telling you you have anxiety, depression, which incidentally they treat via symptoms, not diagnostic tests.

So they can accept symptoms when it suits them. Or they try and tell you you have Fibro, menopause or CFS ( not men obviously 😁). It just makes me very angry. Sounds to me like she feels threatened by a well informed patient, which is never a good sign.

[humanbean in reply to Sparklingsunshine]

Thyroid UK is where the NHS tells thyroid patients to go

I know that was true at one time - but it isn't any longer :

If you look at the "Further Information" section on this page :

nhs.uk/conditions/underacti...

it just mentions links from the British Thyroid Foundation (BTF) :

btf-thyroid.org/hypothyroid...

btf-thyroid.org/patient-forums

If you go and look at the link referring to "Patient forums" they just link to a few patient groups on Facebook - and none of them are about hypothyroidism.

[Sparklingsunshine in reply to humanbean]

Oh right I must have been remembering some old pists then. Doh.

[SlowDragon Administrator]

She has taken bloods again today and said she'd let me know but I'd they were inside their normal parameters then I definitely would not be getting an increase.

Was test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

GP unlikely to test more than TSH

If that’s so

as your last test via Blue Horizon was now 3 months ago …..time to retest

See how vitamin D has improved

And where Ft4 and Ft3 levels are

Once you have new results……assuming Ft4 and Ft3 not optimal

book a consultation with thyroid specialist

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

[Totoro25 in reply to SlowDragon]

Hi SlowDragon,

Yes I followed the protocol fasted, only water and done at 8.45am.. took meds when I returned home.

My GP is based in Scotland and officially won't do a Vitamin D test.

I have been supplementing with Better Health with K2 since my last test with BH though.

Thank you.

[SlowDragon Administrator in reply to Totoro25]

See what gets tested

Very unlikely that they will test more that TSH …..Ft4 if you are lucky