Hi everyone. Just to update you on what happened today.
I took my baby son James to hospital to have a blood test to check his T4 and T3 levels. I have to say that it was the worst experience yet unfortunately. The nurses struggled to get a vein, they tried his hands and feet but could not manage to get enough blood to test. In the end james was so distressed that they had to stop. I was crying and felt so awful that I had to make him go through that. I would really like to hear from anyone who has experienced anything like this with a child as I find it so heartbreaking and I will have to take James for blood tests for ever and it gets worse each time. Could really do with some support.
We have to again next Monday now to try again.
On a plus side the Consultant said that he is developing normally and his brain is developing fine (with James' condition if he does not take levothyroxine his brain will not develop) They told me that eventually he will be on 150mcgm of levothyroxine. Does anyone know if you can get bigger tablets than just 25mcgm as I am imagining him having to take 6 tablets. Hope I have done my maths right!!!