A brief history. Pre diagnosis, I had 10 years of going hypo/hyper, ending in a BIG hyper where the doctor said I was bi-polar and offered meds. I refused. I went on a cycling holiday instead. I stabilised, fell pregnant, and post baby , after being fobbed off with PND for months, was finally diagnosed with a TSH of 450 and T4 of nil.That was in 2007. Since then, my dose has climbed and climbed, and I have never ever felt well. I'm consistantly backed up IYSWIM, I have a non existant libido, i'm just not as sparky, and have no energy, but I get by.Recently I started to feel even worse, with fast hairloss, weight gain, dry skin so bad it's bleeding, 25 day long periods, memory loss, you know the score. The GP was baffled, since my results were TSH 0.03 T4 14, and I had been told by the endo previosuly (in 2007) that I should be ok surpressed and concentrate on getting my T4 up. Anyway, he referred me back. The endo promptly looked at my sheet of results, told me I had lost not gained weight (that would be because last time I had just given birth, DUH!) and that I was hyperactive. When I told him I wasn't, I knew what hyper felt like, and shouldn't my T4 be hyper too, he said I wouldn't necessarily notice being hyper, but I was, and my bones would suffer, so he reduced the dose by 25mg. I asked to try a T3/T4 combination drug, he said T3 wasn't necessary. When I referred to some studies, he told me he wished people wouldn't use the internet. I pointed out I am an ex medical librarian and perfectly capable of finding and evaluating the same abstracts he should be reading. Silence. Why can't I try Armour? Because it is unreliable in batches. Hang on, haven't you just agreed that I can have a named brand of levo, because "some batches are unreliable"? Then I am sent for a short synacthen test at 12.30 in the afternoon, when it will be useless as a diagnostic tool. Honestly, this guy kills me, like , really.
All my vitamins are fine.
So, I am at an inpasse. Back in 18 weeks. Yes, 18 weeks! In the meantime, I want to talk to people who have tried dessicated thyroid, and find out how, where, why, how much, etc. I would see a "good" doc but I am brassic, and just can't afford it. Please help with your advice!