hi
Can anyone relate please ?
I'm noticing having heart fluttering when I get into bed
It's concerning as the heart
I take my Levo just before
min wondering if Levo can take you to a path of heart problem if anyone can advise I'd be really grateful
I'm not sure where I'm at as since having ostregel my tsh soon went under 1 after being 3.5 for yrs even on 200 Levo. It didn't change
I havnt tried T3
any thoughts please from the amazing experts we couldn't do without 🌸
Please add most recent test results
Test early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
suggest you get FULL thyroid and vitamin testing done
Do you always get same brand levothyroxine
What vitamin supplements are you taking
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
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Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
Only do private testing early Monday or Tuesday morning.
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Yes I will. Iv not tested for a while
Can this be a cause of heart fluttery have others said it's a symptom pls? Iv looked on search without success
Yes skipping or irregular heart beat or ectopic all common
Do you know if it's common to still being hypo or to a Levo reaction. Mainly how serious might it be please
Hi, this can also be a symptom of low vit B12, and/or low magnesium. Hopefully you can test the B12 with your others as per SlowDragon. Your GP may test magnesium but they often don't. Most are low anyway, so you could try a *small* amount of something like Better You oil spray on the skin at night and see if it helps. Cheers
Thanks. Do you know anything about if stinging from mag oil indicates you aren't needing it ( I get this)
No, I don't think that is the case. I'd read quite the opposite (the molecule is big and stings as it goes quickly into magnesium-hungry skin. Once less deficient, it won't be so noticeable). Massage in well and then you can wipe the skin after a few minutes if still bothering you and this should stop it being a problem. Apply to damp skin. If you still struggle, try diluting it further with water in another spray bottle, then go back to full strength after a couple of weeks. I use the Better You Sensitive skin oil and don't have a problem, although I react to most things .....
very. Helpful Thankyou. Which type of mag is it? The one starting G🤔😊
Il try. Skin very dry & may nit help I didn't know skin should be damp either
Do you think it's as good the skin way rather than tablet form? I try & avoid gut route usually as a rule
It may sound petty do you apply to legs mainly?
Hi, I use it on the inside of my forearms and rub well together, plus anywhere that hurts especially - I spray on my wrists and then use them to apply to the aching bit. Not on broken skin though. Mine is mag chloride. I've never tried a tablet - when I started using mag I wasn't absorbing anything well and gut was very unhappy so I was avoiding tablets. I find skin absorption works well and use it for several things.
I'm glad you are using Vit D3.
The problem with taking oral B vitamins is that they can raise your serum level without necessarily fixing the damage caused by the deficiency. You need to know what your unsupplemented levels are - if very low, they will give you B12 injections, for example, which work reliably for everyone, which tablets may, but may not. Bs are complicated and deficiency often missed/misdiagnosed. The sprays and sublinguals are the same, they may work or may work for a while and then stop. If you were very low you should have had injections. B12D just means B12 deficiency, and PA (pernicious anaemia) is the autoimmune form of B12 deficiency.
Wondering why injections always work. Isn't it the same as taking vitamins albeit a large dose instead of regular supplementation. Injections are into to blood too raising serum
I'm sorry that is a really complicated question and I don't have all the answers you want as well as not having the time at the moment to try. There are a lot of stages that B12 has to go through to get from food or supplements to blood and then to cells and then do its many jobs in the cells. Any of them can go wrong, and you need enzymes and acid and transporters and no genetic variants throwing things off. Some people need what they call super-saturation, and that can get the B12 into the CNS when oral can't. If you don't have Intrinsic Factor then you are unlikely to be able to absorb effectively or to recycle your B12 (which is how healthy people do it, so they only need a tiny bit daily as they only lose a tiny bit - but we can lose a lot, every day). You can absorb through something called passive absorption and if you take really high doses some manage to make that work - but you never know how much better you might be with injections. I took increasingly high doses (vast doses) over many years, but it stopped being enough and now that I am on injections it is chalk and cheese. There is a lot that is not yet known and a team called CluB12 in Cambridge working on that.
The range of symptoms from deficiency is vast, because it is needed in every cell and for DNA replication. Have a look here perniciousanemia.org/b12/de... - note the heart issues. My palpitations, vibration and fluttering has gone, as long as I get regular injections.
Very interesting I had no idea. Thanks again for your time. A minefield indeed
My pleasure! It is interesting, but everyone needs to know more about B12 and folate. Best wishes
They do. Could there be a link to visit
The PA one above but mainly the Pernicious Anaemia Society pernicious-anaemia-society.... and CluB12 are at club-12.org/
hi Thankyou
Doc won't test much sadly and maybe b12 and d but only once annually
Iv used mag oil. Here's the thing it was kind of stinging a lot and I'd read somewhere that if this happens you aren't deficient
So many mixed messages you are unsure what to believe x
Get FULL thyroid and vitamin testing
Come back with new post once you get results
Can you get hold of actual old results for B12, folate (B9) and D, and the full blood count if possible? Just noticed on your profile that you have vitiligo and while this isn't only a B12 thing it is strongly associated with B12D and PA. You also have other autoimmune. Any in the family, or any history with B12? Strongly suspect that you will be deficient unless already taking an oral supplement (hopefully not, and please don't until you've got tested). Cheers
Il look. I was so low initially 2o16 I couldn't walk upstairs
But why not take tablet firm? I do use a spray but considering soft gels I'm afraid I don't know about family
I don't know what autoimmunes I have. Iv asked gp but it's overlooked. Iv had no more vitiligo since 2010. However I get very itchy legs back. Exspect this may be something else related like hormone drops etc
What is b12D pls?
another possibility is that you don't notice this during the day, but when you get into bed in the quiet, especially if you are laying on your side so your heart is closer to your ribs, then you can notice it more.
understand. Iv gone that route. I'm on sofa a while it's fine but a good thought thnx
Switching from Levo to NDT 
My Heat is fluttering like a butterfly 
Levothyroxine - dry mouth, burning hot and heart palpitations?
