My Heat is fluttering like a butterfly - Thyroid UK

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My Heat is fluttering like a butterfly

Mummys45 profile image
14 Replies

Hi everyone long time since I was on line, since Friday my heart started to flutter like a butterfly 🦋 I noticed it when I was relaxing on sofa , it started to bother me when I realised it was making me take deep breaths in ,and it isn't just the odd flutter I have about 1 in every 40 seconds. And now it's Monday and the fluttering is happening during the hole day and still taking my breath away .IM ON 200MG LEYOTHROXINE And 20mg of Atorvastain also 40mg Citalopram and 200mg of Trazodone hydrochloride which I take trazodone and the Atorvastatin before bed . I've been on these medication since 2012 , My heart ❤️ is really worrying me so if anyone can please give advice I would really appreciate it Love Sophia ❤️

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14 Replies
FancyPants54 profile image
FancyPants54

The best thing to do is get an ECG whilst it's happening. A pity you didn't ring your surgery today. You could try ringing 111, or if it's still happening in the morning get onto your surgery right away. It's some sort of arrhythmia and the only way to get it diagnosed is by ECG when it's actally happening. Getting a diagnosis is very helpful for arrythmia so that you can learn what's going on and what to do about it.

I live with permanent atrial fibrillation. I hardly notice it most of the time. But I know the worst thing is worry. So please try not to worry too much tonight. See if you can speak to anyone about it at your surgery or 111. I'd avoid lengthy waits at A&E personally but you might be advised to go by 111 so that you can get your ECG done.

Keep calm. These things are fixable. Just relax and don't try to do anything whilst you are feeling sort of breath.

ICE187 profile image
ICE187 in reply to FancyPants54

Research Cordyceps Mushroom Powder for afib and palpitations. It stopped mine and my wife's. If you decide to get it, you will want 1500mg per dose strength. I use a supplement brand called BULK SUPPLEMENTS Cordyceps Extract from Amazon.

in reply to ICE187

Hello, do you know if someone with hyperthyroidism can take Cordyceps. I understand that certain mushrooms can make thyroid matters worse depending on if you are hypo or hyper. I've heard Reishe is good for overall health from one person, but then the gal at the natural food store said not to take any mushrooms if dealing with hyperthyroidism. Thanks in advance.

ICE187 profile image
ICE187 in reply to

I don't think Cordyceps affects the thyroid at all. Cordyceps has adenosine in it which is for the heart. It also helps the adrenals. Adenosine basically resets the heart. I had been dealing with palpitations for 20 years and afib within the last 2 years. I had cardioversion done on my heart that didn't provide any help. My doctor wanted me to get a pacemaker. I refused. I'm a welder by trade and I deal with electric current. I started Cordyceps and felt the effects immediately. It actually scared me. It made my heart do something strange as if I felt it suddenly stop for a few seconds, then I felt GREAT. My heart rate was normally 130-160 while sitting. Cordyceps dropped it into the 80's to 90's. My palpitations stopped at the same time. I took it for about a month and stopped. I no longer have heart issues. The EKG had me as sinus tachycardia. It is now normal. My wife went into afib. I had her try Cordyceps. Same thing happened to her. Her heart rate is now in the 70s to 80s while sitting. I will look into it for hyperthyroidism.

in reply to ICE187

Thank you. I will check into this more!

ICE187 profile image
ICE187 in reply to

rlclabs.com/how-the-mushroo....

ncbi.nlm.nih.gov/pmc/articl...

ICE187 profile image
ICE187 in reply to

Wow, it appears that Cordyceps does indeed help the thyroid.

Jaydee1507 profile image
Jaydee1507Administrator

Do you have any recent blood results to share with us? Palpitations can be due to either under or over replacement, also certain low vitamin levels.

Are you taking any supplements? Have you recently had bloods run for ferritin, folate, B12 & D3, if so what were the results? We need OPTIMAL and not just 'in range' results for us to feel well.

Make a GP appointment to see if they will run an ECG for you just to be sure nothing else is going on.

SlowDragon profile image
SlowDragonAdministrator

Please add most recent thyroid and vitamin results and ranges

Do you always get same brand levothyroxine at each Prescription

Approx how much do you weigh in kilo

Always take levothyroxine on empty stomach and then nothing apart from water for at least an hour after

No other medications or supplements within 2 hours

What vitamin supplements are you currently taking

When were vitamin D, folate, ferritin and B12 last tested

As you have Hashimoto’s are you on gluten free and/or dairy free diet

Essential to test TSH, Ft4 and Ft3

Test early morning, ideally around 9am and last dose levothyroxine 24 hours before test

SlowDragon profile image
SlowDragonAdministrator

previous post 2 years ago …..we asked same questions

healthunlocked.com/thyroidu...

If you read posts on here ….you will see repeatedly that it’s ESSENTIAL to test vitamin levels at least annually

Frequently necessary to supplement continuously to maintain OPTIMAL vitamin levels

Always test FIRST before starting any vitamin supplements

With Hashimoto’s, poor gut function is extremely common, and low vitamins as direct result

Gluten intolerance/dairy intolerance and malabsorption issues very common

Singwell profile image
Singwell

Please call your Dr today and ask for an ECG. if you are still breathless they may insist on A and E. I have Atrial Fibrillation and what you're describing might be that or another type of heart Arrythmia. Best to get it looked into, especially as it's been going on for days. If you've now slept it off still tell your GP about it.

Atrial Fibrillation or flutter should not be ignored as there are potential implications for stroke if you also have high BP. There's an excellent Health Unlocked AF forum btw should you need it. Fingers crossed for you.

thyreoidea profile image
thyreoidea

Hi Mummy45, I had a similar thing happen a few years ago out of the blue on waking on a Saturday morning, my heart was skipping a beat nearly every 10-30 seconds and sometimes at very short intervals. It lasted for a few days, went to the doctors on the Monday but cannot remember at that point if it had disappeared, it did just as quick at it started. As I didn't have any other symptoms the doctor said it sounded like ectopics and nothing to worry about. It came back a few days later and I had it on an off for a few weeks,

Went to the surgery whilst it was happening a few days later when it returned and the ECG showed nothing untoward except for ectopics, to put your mind at rest get an ECG at your surgery if you can ASAP. If you mention palpitations on a e consult it will end the session so best to ring your surgery if you want to have it done there.

I think mine was stress and it didn't help having them, people think palpitations are a fast pounding heartbeat but any heartbeat that you actually notice is a palpitation.

Mine have periodically returned through the years but not caused any problems apart from the worry of having them, I have stressy personality which could be the cause as it certainly doesn't help. The doctor may want to check your thyroid levels to see if that is what is causing them as too low or too high THS can cause these.

terebol profile image
terebol

Hi don't know how/if your other meds might impact cardiac rhythm, but a long, long time ago before diagnosed w/Ord's I had the fluttering for quite some time. When I was diagnosed & put on NDT the fluttering stopped. Hope this puts your mind at a bit of ease along w/all of the other responses.

Nikkisnow profile image
Nikkisnow

Hi,

I had a similar problem about a year ago I take 75mcg levothyroxine. My heart was continually fluttering every day and jumping. The doctors listened to pulse and could tell it was jumping. Had .e.c.g. this showed it was jumping but not why. I was referred to heart specialist and had heart scan and several e.c.g.'s. This showed nothing physically wrong with my heart. It was decided it was probably caused by stress. They explained sometimes your heart can kind of get stuck in the wrong rhythm. Was given beta blockers was supposed to take them for six months but I hated taking them. They took away the fluttering but made me feel I had no energy everything seemed to be an effort. The specialist told me to stop them after about two months because of this. The fluttering stopped and everything was fine. I occasionally get the odd flutter but this apparently is nothing to worry about as everyone gets it from time to time. Hope you get it sorted soon.

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