Test results

[Dawney63]

I had a private blood test on 20/02/2025, these are the results, I'm taking 125 micrograms of Almus levothyroxine each day, this was increased in November 2024 from 100 micrograms a day.I'm Stillborn feeling well.

[Dawney63]

I'm taking these supplements, I'm now increased to take 2 of the folate as Its lower on the test results this time

[Dawney63 in reply to Dawney63]

Supplements I take

Supplements

[SlowDragon Administrator]

was test done Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Assuming tested as recommended

Free T4 (fT4) 17.8 pmol/L (12 - 22) 58.0%

Free T3 (fT3) 4.4 pmol/L (3.1 - 6.8) 35.1%

Thyroid

Request next increase in dose to 125mcg and 150mcg alternate days

Your B complete spray contains biotin did you stop this 3-5 days before test

In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70:

Folate is low

No vitamin D result?

Ferritin needs improving

Look at increasing iron rich foods in your diet

[Dawney63 in reply to SlowDragon]

Yes the test was done at 9am, no b complex for a week before, I did continue the folate and vit d+k2The test was done by monitor my health.

I had fought with my GP since April to get the increase in November, I will ask for the increase again so I can take 125 one day and 150 the next day.

Blood pressure has been really high but I am under a lot of stress.

Thank you

[SlowDragon Administrator]

Trawling back through previous posts …..your hypothyroidism is confirmed as autoimmune with high TPO antibodies

Are you on gluten free diet and/or dairy free diet

if not get get coeliac blood test via GP BEFORE trialing gluten free

as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

[Dawney63 in reply to SlowDragon]

No I'm not on gluten free or dairy free, I will ask for the test when I go to my GP appointment today.

[SlowDragon Administrator in reply to Dawney63]

Print out guidelines to show the GP

1.1 Recognition of coeliac disease

1.1.1

Offer serological testing for coeliac disease to:

people with any of the following:

persistent unexplained abdominal or gastrointestinal symptoms

faltering growth

prolonged fatigue

unexpected weight loss

severe or persistent mouth ulcers

unexplained iron, vitamin B12 or folate deficiency

type 1 diabetes, at diagnosis

autoimmune thyroid disease, at diagnosis

irritable bowel syndrome (in adults)

first‑degree relatives of people with coeliac disease.

[SlowDragon Administrator]

Your antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

Hashimoto's affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances. Most common by far is gluten. Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too.

Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

If you do find dairy free helps then eventually look at changing to lactose free levothyroxine

Vencamil is usually best option as is lactose and Mannitol free

Post discussing gluten

healthunlocked.com/thyroidu...

Recent research in China into food intolerances with Hashimoto’s

healthunlocked.com/thyroidu...

More interesting Chinese research on Hashimoto’s and leaky gut

nature.com/articles/s41598-...

[Dawney63 in reply to SlowDragon]

Thank youI have gallbladder issues, I'm in pain when I eat, I have tinnitus to be truthful I literally like I'm falling apart, my anxiety is extremely high, I want to feel normal again but don't know how to do that.

[SlowDragon Administrator in reply to Dawney63]

Gall stones common hypothyroid issue

palomahealth.com/learn/hash...

wiley.scienceconnect.io/api...

If gluten is an issue for you going gluten free can improve gut function and absorption of Levo

Personally I saw significant reduction in anxiety once on strictly gluten free diet (more on my profile )

[Dawney63 in reply to SlowDragon]

Just been to see gp, she's saying no increase, showed her my blood results she wants me to do a hns blood test after 11 March and that will include the coeliac test, said to much thyroxine can cause heart issues

[SlowDragon Administrator in reply to Dawney63]

So you may need to see endocrinologist to get dose increase

Free T4 (fT4) 17.8 pmol/L (12 - 22) 

Ft4 only 58.0% through range (that’s your levothyroxine dose.)

Free T3 (fT3) 4.4 pmol/L (3.1 - 6.8) 

Ft3 only 35.1% through range

How much do you weigh in kilo?

Meanwhile

Work on improving low vitamin levels to improve conversion

[Dawney63 in reply to SlowDragon]

I weigh 80 kilo

[SlowDragon Administrator in reply to Dawney63]

So guidelines say you are on approximately correct dose

80mcg x 1.6mcg = 128mcg

Getting vitamin levels OPTIMAL essential

Trial Gluten Free ……and dairy free too in few months

[Dawney63 in reply to SlowDragon]

Thank you