I have been prescribed Roma T3 for a month at 10 mcg but I have found as thry wear off I get irregularly heart beat, so have managed to add 5 mcg more, but haven’t got enough of Roma now to do that, (did them 2 days) I purchased privately Tiromel 25 mg and have cut the tablet into 4 and taken less than a 1/4 o it to get to 5 mcg, making it 15 mcg,only taken the Tiromel today. (increasing every 2 weeks) but am now panicking myself as I purchased off a lady whose name I was given. Is it okay to take 2 different makes ? Usually it takes about 2 hours for the irregular heart rate to go ok since being on T3 (I can’t take levo as it puts me in afib, and constant palps.) and can’t get endo to increase the dose, I have another private phone appointment next week with him. But have felt so well on the T3 now been on them 6 weeks
Just looking for reassurance I suppose that it’s okay to take 2 different makes..
I know when I could take levo I often had accord and Tevo makes
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Lilylui
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Good morning, a suggestion: have you had your iron levels (all 4 tests) checked lately? If you read the STTM site , they suggest looking at Iron or Cortisol levels. My issue was Iron.
From my experience you will have to learn to ask for and also learn to read your different lab results. It is your body and you have to be able to make the best decision for yourself. Knowledge is power.
Hi. I second cfft20021, low iron ( thats serum iron as well as ferritin) and cortisol can cause reactions to T3. Lows in any of these commonly cause bad reactions when taking T3, palpitations, shaking, jittery, anxiety and more. This can happen on either a tiny dose of T3 or when gradually raising a dose. STTM talk about this and Paul Robinsons book Recovery with T3 does too but goes into far more detail, explains why both are important for T3.
For anyone having trouble with T3 I highly recommend this book.
I had both low cortisol and low serum iron, cortisol is now greatly improved but still working on low iron.
Dont think i have trouble withT3 it seems as it wears off I get irregular heart beat. Then after takin* it within 2 hours they settle.I know it needs increasing as my TSH is 100+
When you are taking T3 only your TSH will fall to 0 ( just like mine), and yes mixing brands is fine - what you're concerned about is the total amount of T3 per day
Think more mixing brands, as this is all new to me.I am on 15 mcg at mo, how long does it take to drop the tsh? Mine hasn’t moved in 5 weeks, are you on T3 only as well?
Yes, I am on T3 only and have been for about 5 years now. First tell me why you need to know how fast your TSH drops to zero? In my previous reply I explained that it happens because you are giving T3 directly and not requiring your body to convert T4 into T3.
Well the private endro I saw hoping to be transferred to nhs soon (still same endro )said if tsh doesn’t drop he won’t prescribe more T3 ! I felt the blood test was far too soon,
Unless you are producing too much TSH (e.g. what is called a TSHoma - an adenoma which pumps out TSH without being controlled properly), a continuing high TSH would appear to be a reason to increase T3 (if anything)!
That’s why I am trying to increase myself at 5 mcg every 2 weeks. It’s awful really how they don’t help, gp herself said she doesn’t know much about thyroid
You can drop to less than zero (theoretically you can drop to a minus number), but T3 should be prescribed based on symptoms and then where the Free T3 is showing on labs. This is a lot of info. Take a deep breath, have a cup of tea, first read and learn and then decide on your priorities for treatment. Patience and Grace and Knowledge.
I dont know about mixing brands of T3, but can say its very sensitive to cortisol and iron issues. Being told by a doctor your levels are normal or ok is absolutely useless, its another case of being in range isn’t good enough.
When it comes to T3 there are very good reasons why cortisol and iron must be optimal to work well.
Not testing everything thats advised on here can be a huge mistake, can cost you a lot of time, years in my case all because I was told “ in range nothing to worry about”, very big mistake.
Unfortunately this is common, many people on this forum can tell you similar.
Good thyroid health is dependent on optimal ( not just in range), nutrients as well as the right medication.
At the very least it would rule out any issues but if you dont test you could be making a big mistake.
I have both the STTM book which I bought from the website cfft20021 mentioned and I bought Paul Robinsons Recovery with T3 from Amazon. Im in the UK too. Both excellent reads, and would recommend getting both however if I were to chose one over the other it would be Paul Robinsons Recovery with T3.
Pauls book explains in far more detail with the supporting evidence to back up what he says. Theres a chapter on every nutrient that is crucial for the thyroid health, the pitfalls and how to correct. You’ll be surprised just how much a low nutrient can derail thyroid treatment.
Low iron ( serum iron) is only one example, if its not high enough it literally stops thyroid hormone working or will cause awful hyper type symptoms when raising T 3, the same goes for cortisol and low vitamin B3.
Theres also a number of nutrients that when low can cause hypo type symptoms, low iron is a classic example of this.
Paul Robinson has a website recovery with T3, he has a fb page. STTM have the book website and two if not more fb pages.
are the NHS prescribing any thing at all for you at the moment ?
how long is it since you stopped taking any levo at all ?
if all you are taking is 5mcg T3 for 2 weeks and 10mcg T3 for 2weeks ...then it's obviously not going to be enough on it 's own yet unless dose is increased... and so your TSH will stay high.
If TSH is well over 100, then that sounds like you haven't taken enough thyroid hormone in any form for quite a while.
What have the NHS said about your TSH being over 100 ? are they just prescribing levo and telling you to 'like it or lump it' ?
Do they know you're not taking anything at all apart from the 10mcg T3 ?
Surely they can't be happy with leaving TSH at >100 while you wait months to get an NHS referral .....
I don't understand why your GP is not dealing with this and trying to at least speak to an NHS endo with more urgency, rather than letting you try to sort it out on your own with a private endo who for some reason is only willing to give you a months worth of T3 and a little levo which you don't feel able to take.
Does the private endo know you aren't taking the 12.5mcg levo they prescribed with the T3
Gp as spoken remotely with endro and letter was going out on Monday for a referral to nhs but am told there is a 20 week waiting list.Been off and on but mostly off levo since sept last year, when it put me in hospital with afib, every time I take levo I have serious palps and chest pain, I have told them I am not willing if to take it any more, (was on it 20 yrs previous with no issues)so hardly any and nothing for a few months,
I have another paid for phone call next week with endro, hopefully he will up the T3 but he was not keen to put me on it, hence why I sourced my own as well.
He has given me 4 more weeks which run out in 2 weeks.
I have increased it now myself to 15 mcg, using the Roma off endro and the Tiromel I purchased myself.
For some reason my heart rate which was always in the 70’s is now 80’s 90 ‘s
I would have no worries about mixing T3 makes. The only problem I would worry about is if I got side effects and I couldn't disentangle the effects of the two makes and couldn't work out what was making me more ill than normal.
Thank you, Roma seems to suit me, I only started Tiromel yesterday but got my self all worried about mixing tablets, apart from irregular heart rate for about 4 hours it settled down, but think this happens anyway as the Roma wears off, as it did before when I managed to add some spare Roma tablets I had from splitting them to start.
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