Latest results: Three months ago, I had some... - Thyroid UK

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Annoynomice profile image
9 Replies

Three months ago, I had some really good guidance on my results on the forum. As a result, I have been tweaking my medications/vitamins. However, based on the latest results, I think I need to think about a referral to get some T3, I was hoping that I could get results by just changing my levo dose. How do I explain the need for T3 to the GP or even the referral

I'm worried that I'm overdosing on T4, just to get more T3 - what is the impact of this? I'm unable to work out the ratios on the latest results

Results above.

By the way, all tests taken before 9am and without the does of levo being taken. I have hashis

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Annoynomice profile image
Annoynomice
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9 Replies
Annoynomice profile image
Annoynomice

These are my antibody results

graph with Thyroid anyibody results
inthedoldrums profile image
inthedoldrums

I am not able to give detailed advice but there are many here who can.

However, I can say that I was over medicated on T4 only treatment some years ago at the beginning of my journey and was not a good converter. I became quite ill eventually because of it as my system could just not cope with the overload any longer.

You are doing the right thing in exploring the T3 issue at a much earlier stage.

Best wishes to you.

Annoynomice profile image
Annoynomice in reply tointhedoldrums

Thank you very much. How did you explain it to the doctors to get them to understand.

inthedoldrums profile image
inthedoldrums in reply toAnnoynomice

Unfortunately, all attempts fell on deaf ears and I was left feeling like a fool although I knew I was unwell. You may be luckier but as SlowDragon advises, it would be best go down the private route initially. It will save a lot of time and wasted effort only to discover that you will have to go privately anyway. I lost years of my life when it was not so easy to find private endos who were sympathetic.

Good luck and best wishes to you.

Annoynomice profile image
Annoynomice in reply tointhedoldrums

Thank you very much.

SlowDragon profile image
SlowDragonAmbassador

Which brand of levothyroxine are you taking

Do you take morning or bedtime

Are you now on gluten free diet

Definitely try this and dairy free diet BEFORE looking at T3

How much vitamin D are you taking

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who may prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations so that might eventually transfer to getting T3 on NHS

thyroiduk.org/contact-us/ge...

Annoynomice profile image
Annoynomice

I take my levo in the morning. The amount of vitamin D I take is 3000. The levo brands change, so sometimes it's Tevo, sometimes not.

I'm not gluten and dairy free, currently reducing caffeine and alcohol (alcohol causes havoc with my sleeping patterns - even a glass), I feel like there is no joy left. I did have a gluten antibodies test (which I know, doesn't spot all people who are intolerant), which was negative.

Probably worth cutting out one rather than both a once.

Sleepman profile image
Sleepman

How are you feeling?Any symptoms?Your T3 is nearly 40% ... so not terrible. It has improved by the looks of it.

Thyroid testing is sensitive to high doses of biotin/b7.

Did you spot this advice and stop b complex a few days before before testing. (I didn't at first)

If not too bad symptom wise, I would keep this same dose and repeat T3 tests in a few months.

You are doing a good job on vits and minerals.

I use a bit of selenium too to try to help conversion. You can take too much though.

Annoynomice profile image
Annoynomice

Thank you. Yes, stopped Biotin. I think that the reason I'm worried is that the T4 is now out of range.

It's the other stuff, I worry about. My health assessment through work asked what was the miraculous thing I'd done to lower my cholesterol since the year before, the answer was nothing. Then through the NHS, I've suddenly had a high cholesterol reading again and a elevated ALT reading..

I've also got a very small gall bladder polloyp (found because I had an ultrasound for something else). Non cancerous ones are either caused by damage or cholesterol. They can't biopsy a gall bladder so if the polloyp gets larger then they take it out - only then can they find out whether it's cancer.

I have found vitamins have made a huge difference, I don't know which one, (could be upping my vitamin D, adding in magnesium consistently and evening primrose), has meant I no longer shuffle around with tight Achilles for the first 1/2 hour of the day. I was also quite tired on less levo.

I think I'll wait and see.

It's the long term effects I worry about.

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