Original graves, hyperactive then RAI, been on levothyoxine Accord a long time. Well managed mainly with supplements etc.... Last bloods showed TSH was low close to ref range. Likely over medicating but I felt fine so remained on 150 Accord a day in Dec. Now noticing hands swelling, and maybe increased appetite, sleeping all OK and not any unusual fatigue or weight loss or heart fluttering.
Could this be subtle sign I'm teetering over the sweet spot?
I would 100% complete a full thyroid test, with FT4 and FT3 alongside TSH. It’s also important to test key thyroid vitamins (folate, ferritin, B12 and vit D). I’ve experienced hand tingling when B vitamins not optimal. Please don’t supplement without testing levels first.
If GP cannot access above tests, I would look to do so privately (as many members, myself included, do)
thyroiduk.org/help-and-supp...
It’s worth shopping around for discounts on tests.
Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins
Post all about what time of day to test
healthunlocked.com/thyroidu...
Testing options and includes money off codes for private testing
Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins
medichecks.com/products/adv...
Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins
bluehorizonbloodtests.co.uk...
Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee
Only do private testing early Monday or Tuesday morning.
Tips on how to do DIY finger prick test
support.medichecks.com/hc/e...
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65
(Doesn’t include thyroid antibodies)
monitormyhealth.org.uk/full...
10% off code here
thyroiduk.org/testing/priva...
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
endo.confex.com/endo/2016en...
endocrinenews.endocrine.org...
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue separate B12 if last test result serum B12 was below 500 or active B12 (private test) under 70:
Hello BittersweetS :
Once on any form of thyroid hormone replacement - a TSH seen in isolation - is not a reliable measure of anything -
and especially when with Graves and post RAI thyroid ablation -
as your HPT axis - the internal mechanism of the Hypothalamus - Pituitary - Thyroid feedback loop is now broken - as there has been a medical intervention and your thyroid now totally disabled and burnt out in situ - and this feedback loop on which the TSH relies on as working well - is now defunct.
It is essential that you are dossed on your Free T3 and Free T4 results / ranges and we generally feel best when the T4 is up at around 80% with the T3 tracking just behind at around 70% through its range.
No thyroid hormone replacement works well until the core strength vitamins and minerals of ferritin, folate, B12 and vitamin D are up and maintained at optimal.
Tingling / fizzy sensation in hands, legs and feet
Hands and arms swelling
Have I gone over on Levo? 
Levothyroxine brand
