Please help me present my case to the next doct... - Thyroid UK

Thyroid UK

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Please help me present my case to the next doctor for "why" I need this bloodwork.

Easylover profile image
7 Replies

Hello to everyone on our forum. Thank you for all your time n care n input of personal knowledge so the rest of us can grow n come up to speed.My last visit w the doc didn't go well. I wanted her to test for b12, d3, n ferritn. Plus, the antibodies. She refused to do it. Her argument was it didn't matter because it is "treated " the same.

I said, I have a right to know if I have hasimotos or reg. Thyroid disease.

She wasn't open to anything but her way. At the end of the consultation, I politely asked her if she would " think about it"? She said, "I don't want to talk about it". Whatever. All good. I am not going back though She did order ex rays I needed. All good! I mean I'm frustrated n tired n second guessing myself that I even do anything right because I didn't get my blood test because the thyroid panel was on and it STRESSES ME OUT! They do w their interpretation of the results. Gosh, starting over, longer drives, more doors to knock on hoping one opens!

Question: How would you present your case to the next doctor or just forget about it, Why it matters that B12, D3, ferritin and anti bodies be tested ? How does it matter in the treated of my hypothyroidism? Thank you!♡easy

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Easylover
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7 Replies

First, have you called your insurance and asked if it’s covered?

Even if Medicare/medicaid, you should be able to get the requirement and frequency for what’s covered.

I’ve done that before - in which case you don’t have to convince them you need it, you simply have to tell them that it’s covered and it’s just a blood test not a prescription, and so no risk for them to do it. In a way you can ask them for the reason they WONT do it instead if the other way around.

Also - I recently found a workaround at an Urgent Care. My 18 year old daughter just aged out of her pediatrician, and technically has no doctor. So I called up a local Urgent Care and asked if they are allowed to prescribe a blood test even if I don’t have an actual Primary Care doctor on file.

I noted that my daughter had been getting regular blood tests , but isn’t able to go back to that doctor, and so while we look for an actual PC doctor could they do blood tests for her every 6-8 weeks.

They were happy to.

So thats worth a try.

Remember at this point, you want the blood tests. You don’t really need the treatment part. You can cross that bridge when you come to it. So stay focused on the blood test and maybe give that a try.

Easylover profile image
Easylover in reply toFallingInReverse

Thank you FallingInReverse! She did give a reason why she wouldn't test vits n antibodies. She said she'd lose her license¿¿¿ I thought she was lying which just made everything worse. I dont think they will just test my list of vits n antibodies wothout THS, T4 and at least this doctor I left tested T3. I really don't want those things tested because they act like I'm over medicated because my TSH is suppressed due to me taking NDT.

I think you have some good ideas that I will use. But I'm still interested in why me knowing what my Vit B12, D3, ferritin and antibodies levels are matter so I can debate my argument. Which is WHY do I need know if i have Hosimotos of Regular thyroid disease in my own quest for optimum Health?

tattybogle profile image
tattybogle

because (as stated in various guidelines for prescribing T3 to patients with ongoing symptoms on levo)

other causes of of persistent symptoms while taking levo need to be ruled out , and deficiency in B12 / Vit D / Ferritin are clearly stated to be alternative causes of symptoms eg this one for example states " exclude comorbidities : nutritional deficiencies eg Iron . B12 , Vit D " "Suggested investigations include: FBC, U&E, LFT, Calcium, HbA1c, Ferritin, B12, vitamin D, "

onlinelibrary.wiley.com/doi...

see Fig 1

Easylover profile image
Easylover in reply totattybogle

Thank you very much so!!!!

greygoose profile image
greygoose

You need to know if you have Hashi's due to the way that Hashi's 'works'.

As I'm sure you know, it is an autoimmune disease where the immune system tries systematically to destroy the thyroid by attacking it.

When the immune system launches an attack on the thyroid, the dying cells release their stock of hormone - T4 and/or T3 - into the blood. So levels of FT4 and FT3 rise sharply, mimicking hyperthyroidism.

If you happen to have a blood test at that point, your doctor will freak at whe s/he sees those levels, and accuse you of 'abusing' your thyroid hormone, and lord know what else, and want to slash your dose. Because s/he hasn't a clue how Hashi's 'works' and has no idea what's going on, and talks about 'difficult cases' and 'mysteries'. So, it's good that you at least understand what's happening - one of you should!

These high levels are only temporary, and with time the excess hormone will be used up/excreted and you will become hypo again. So, the best 'treatment' for a Hashi's 'hyper' swing is not carbimazole, as some doctors thing, it's stopping your thyroid hormone replacement until you feel hypo again, and then resuming your normal dose.

Easylover profile image
Easylover in reply togreygoose

Thanks again GreyGoose. I think you are one of the most informative. Bless you 🌸 Easy

greygoose profile image
greygoose in reply toEasylover

Thank you. :)

Oh, and I forgot, if you have Hashi's you are more likely to be a poor converter and gluten-intolerant.

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