Hi everyone ❤️

[birkie]

Just want to post this in relation to NDT.

I've been taking NDT prescribed privately by roseway labs since July 19th 2024 my reason for trying it was because I had trouble stomaching the T4, T3 synthetic hormone my levels were always awful and I'm sure I had an absorption problem.

All gut and stomach issues have resolved now I'm on NDT my T3 level is now in range apart from T4 and TSH

DATE TAKEN..20th Sep 2024👇

Which is T4...8.6...range..11.00..22.00]

T3..4.3....range..3.10..6.80]

TSH...18.3...range...0.30..4.50]

Note...new TSH taken on Nov 4th 2024 at[ 2.65..now in range, no T4 or T3 taken on this blood draw🤦‍♀️

I've found since taking the NDT I've put quite a lot of weight on🫣 noted by my clothing which is now either very tight or just doesn't fit, it's mainly round my stomach area, and my boob's have grown out of my bra's ☹️.

Now I'm thinking...could this weight gain be because I'm no longer having gut issues especially the constant diarrhea I was having whilst on the synthetic T4, T3??

I've tried increasing the NDT but I get overactive symptoms, I've had to decrease from one and a quarter grains back down to one grain , which seems OK, but as I have mentioned I also have primary hyperparathyroidism so the symptoms are hard to separate and my PTH went overactive again in Sep.

My next prescription is in 2 months with a new thyroid blood test in Jan, I'm wondering if there is no improvement in my T4 what would roseway recommend?

Apart from me having no gastric issues with the ndt I feel great gut wise 👍

But I don't yet feel a marked improvement in my body, also I'm struggling to get up in the morning, it feels like my cortisol is low, I don't have the strength to go on the toilet and feel so fatigued, it tends to wear off later in the day and I feel as if I have a bit more energy later on in the day👍

Anyway I have the LTC [long term condition] exam and blood tests in January and I'm assured it will contain full thyroid and parathyroid bloods and full blood count, I've also asked for other including magnesium, phosphate, cholesterol etc...fingers crossed they actually deliver 🤞

I will post them when I receive them👍

[SlowDragon Administrator]

Fantastic tgat gut issues are resolved

Do you normally split your NDT as 2 or 3 doses across the day

On NDT when adequately treated most people will have TSH below 1, often below range

Your November results suggest you need increase in dose

Obviously just testing TSH completely useless

What are vitamin D, folate, ferritin and B12

Get full thyroid and vitamin testing done

[birkie in reply to SlowDragon]

Hi slowdragon❤️

Yes I split into 3, but I was trying to get from one grain to one and a quater [ AGAIN] then one and a half but found I was having a fast heartbeat coupled with some sweating and flushing in my face so I dropped back to the 1 grain.

But these symptoms coincided with my parathyroid gland going overactive AGAIN!!! so as I've said...it's hard to know what's what!!

Actually my GP won't test my thyroid levels as I'm on private ndt prescription, the thyroid bloods were a fluke the nurse did them, and the TSH was also a fluke that's why she didn't do T4 ,T3..because she obviously didn't read or know what bloods I was having done😁.

And the only reason I'm getting them done in January is because I'm having the [ LTC] which includes thyroid and parathyroid bloods because they are my conditions, as I said I've also got other bloods I'm requesting also the ones you have mentioned.

But I'm finding it hard to increase without getting over medication symptoms 🤷‍♀️

But again that could be the phpt,...GP also put me on loading dose of vitamin D because my parathyroid was over range, this can then cause the calcium to increase causing even more horrid symptoms 😡.

I purchased my own vitD in drops, 2 drops per day because the surgery only pescribe those brilliant blue, red, or yellow ones which caused me no end of pain 🤮🤮

[FallingInReverse]

Progress, Birkie! Glad one of your problems has resolved!!! And hopefully your next TSH/ft4/ft3 will shed some light.

[ClarissaSimons]

Have you tried taking an extra 1/2 grain last thing at night?

[birkie in reply to ClarissaSimons]

I tried a nite dose but found I couldn't sleep, I felt a bit hyper, I even tried splitting it from 3 to 2 times a day and felt hyper.

The most noticeable thing is the very red flushed face and sweating also my heard beats faster, but I have primary hyperparathyroidism and my GP as urged me to take a loading dose of vit d which can raise calcium..these symptoms can over lap so it hard to separate the symptoms of feeling hyper to raised calcium because raised calcium can give you sweating, fast heart rate and a flushed face🤦‍♀️

But I'm finding it hard to increase because of these symptoms 🤦‍♀️

[ClarissaSimons in reply to birkie]

You sound a complicated case. I hope you can find a way to increase your levels.

[SlowDragon Administrator in reply to birkie]

You could try adding 1/4 grain about 4am in morning when get up for loo…..or set alarm and go back to sleep

[SlowDragon Administrator in reply to birkie]

my GP as urged me to take a loading dose of vit d which can raise calcium.

I don’t think that’s correct thing to do with possible hyperparathyroid

Was your calcium level high when vitamin D was low?

parathyroid.com/low-vitamin...

low vitamin D can also be caused by a parathyroid tumor. The connection between parathyroid disease and low Vitamin D can be confusing, even for many doctors. Parathyroid tumors cause low Vitamin D, not the other way around, and low Vitamin D cannot cause a high calcium. You cannot treat a parathyroid tumor with high doses of Vitamin D.

[birkie in reply to SlowDragon]

My vit d was 32 my pth was 7.4 my calcium was 2.41 adjusted to 2.39.GPS and endos see the raised pth and give loading doses of vit d thinking it will raise the calcium therefore lowering the pth.

What they don't realise is when a person's calcium is mid to top end giving large loading doses can cause calcium to rise.

Large loading doses should only be given if the calcium is bottom end of the scale this is secondary hyperparathyroidism where calcium is low and pth is raised.

Normocalcemic hyperparathyroidism is where the calcium remains middle to top end but the pth is raised , on our parathyroid site it's recommended if your calcium is middle to top you should not take large loading doses of vitamin d.

I've tried several times to increase my vitamin d with not much success, I did manage to get it to 58 but it soon decrease again.

I've had this out with my GP several times I asked her why she wanted me to try a high loading dose of vitamin d again.

Her answer " taking high doses of vit d will raise your calcium therefore decreasing your parathyroid 🤷‍♀️ now personally I think that's crap, I have been diagnosed as falling in between primary and normocalcemic .

But my GP is just gaslighting me my calcium bounces in and out as does my pth I think the low vitamin d is just a get out clause for the GP, she told me she as to abide by the guidelines on primary hyperparathyroidism.