I do love anecdata; low thyroid = high blood pr... - Thyroid UK

Thyroid UK

142,285 members167,650 posts

I do love anecdata; low thyroid = high blood pressure...

KatyMac68 profile image
15 Replies

Gp asked me to reduce my thyroxine, I initially refused but then trialled itMy high (ish) blood pressure rocketed to 228/ 121 & I ended up at A&E (they questioned and suggested my thyroid meds might be low, no tests)

So I returned to the previous dose and my bp came down to about 135/95

I recently trialled a higher dose and blow me my regular bp is now on the low side of 125/65

I know this is prob coincidence/irrelevant but isn't anecdata fun!!

Written by
KatyMac68 profile image
KatyMac68
To view profiles and participate in discussions please or .
Read more about...
15 Replies
greygoose profile image
greygoose

I don't think it's a coincidence at all. High blood pressure is very often a hypo symptom. It was for me. :)

KatyMac68 profile image
KatyMac68 in reply togreygoose

I'll add it into my data, as there is 2 of us now!😀😜

greygoose profile image
greygoose in reply toKatyMac68

Oh, a lot more than that, I'm sure! :)

SlowDragon profile image
SlowDragonAdministrator

Looking at your previous post

healthunlocked.com/thyroidu...

you are currently only just on increased dose to equivalent of 62.5mcg daily (50mcg and 75mcg alternate days)

You’re likely to need several further dose increases over coming months

KatyMac68 profile image
KatyMac68 in reply toSlowDragon

Yes, although I'm cutting it in half

A 50 day on the same day as day 3 of my hrt patch was not ideal!

I hate day 3 of hrt patch

KatyMac68 profile image
KatyMac68 in reply toSlowDragon

& it's taken 15 months to get this high

SlowDragon profile image
SlowDragonAdministrator in reply toKatyMac68

What vitamin supplements are you taking

What were most recent vitamin D, folate, ferritin and B12 results

Have you had coeliac blood test

If not, get tested before considering trial on gluten free diet

KatyMac68 profile image
KatyMac68 in reply toSlowDragon

Had 3 coeliac tests I think, 2 colonoscopies and I've been Gluten free at least twice if not three times.

My vit D & B12 are good as I supplement aggressively and my folate and ferritin were good when last tested

As well as B12, D, I take K2, methyl folate, Ubiquinol, iron, zinc, magnesium, potassium & a probiotic

SlowDragon profile image
SlowDragonAdministrator in reply toKatyMac68

is your hyper-mobility diagnosed as Elhers Danlos

Most EDS members on here seem to find gluten free beneficial

autoimmune disease and Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

on Levo A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

Recent research in China into food intolerances with Hashimoto’s

healthunlocked.com/thyroidu...

More interesting Chinese research on Hashimoto’s and leaky gut

nature.com/articles/s41598-...

KatyMac68 profile image
KatyMac68 in reply toSlowDragon

No just hypermobility as an aside when diagnosing the fibromyalgia

I'm egg free and dairy free already

I cant eat green veg or raw fruit/veg

I cant eat anything bitty like kiwi/tomatoes/oats

I cant eat nuts or pluses

I have, apparently, scar tissue and adhesions on my external bowel wall limiting absorption and digestive movement ( thanks GP for constantly telling me off for my diet with IBS when nothing would have made it better)

I mainly eat root veg and meat and white bread

I'm not supposed to have any artificial (like substitute egg) & sweetners cause me huge problems

I am better when I eat homemade bread made with wheat from a stone ground mill with no additived/improvers

Going Gluten free hasn't helped any of the other times I have tried

I've done fodmap 3 times too but never git past a teaspoon of pretty much anything (even the base diet was problematic)

SlowDragon profile image
SlowDragonAdministrator in reply toKatyMac68

So as you are dairy free you will need lactose free levothyroxine

Lactose free brands - currently Vencamil or Teva

Vencamil is lactose free and mannitol free. originally only available as 100mcg only, but 25mcg, 50mcg and 75mcg tablets became available Sept 2024

Prior to March 2023 Vencamil was called Aristo

Vencamil often very well tolerated/best option for many people

How to get Vencamil stocked at your local pharmacy

healthunlocked.com/thyroidu...

or order from Specialist pharmacy like Springfield

thyroiduk.org/get-support/t...

Posts discussing Vencamil

healthunlocked.com/thyroidu...

healthunlocked.com/thyroidu....

Teva makes 12.5mcg 25mcg, 50mcg, 75mcg and 100mcg

Many patients do NOT get on well with Teva brand of Levothyroxine.

Teva is lactose free, but contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome 

Helpful post about Teva

healthunlocked.com/thyroidu...

Posts that mention Teva

healthunlocked.com/search/p...

Teva poll

healthunlocked.com/thyroidu...

KatyMac68 profile image
KatyMac68 in reply toSlowDragon

I'm pretty OK on wockhardt, I can do dairy occasionally an odd yogurt or cream cake once every few weeks any I'm OK. But Cereal for breakfast, butter on my sandwich and a hot chocolate for tea and I'll be stuffed for days

Eggs are odd if in baking I can either be fine or really bad!! Who knows but I can often tolerate meringue but not a dippy egg

TiggerMe profile image
TiggerMeAmbassador

I'm the other way around dose too low or too high and my BP drops, doesn't adrenal condition play a part in how BP reacts?

KatyMac68 profile image
KatyMac68 in reply toTiggerMe

Oo does it? Better read up about that! Thanks

TiggerMe profile image
TiggerMeAmbassador in reply toKatyMac68

My adrenal levels are still on the low side so if they are suddenly asked to pick up the slack of low thyroid hormones they rather struggle and tire easily (though things are certainly improving) whereas someone with better function would get a shot of adrenalin hence the rise in BP... my resting heart rate also falls if dose too high or low

Oversimplified but seems to be the case with me, when Endo dropped my dose it took 6 months for my adrenals to get back to their previously exhausted state with support and a year on they are still gradually improving and showing more resilience

Not what you're looking for?

You may also like...

Low Blood Pressure

Morning, I was wondering if any one experienced there blood pressure going low on levothyroxine ?...
Bunty0604 profile image

low blood pressure

I’m still working out levothyroxine dose and looks low I need to add t3 but depends on next blood...
Mag999 profile image

High blood pressure and pulse following TT

Hi there! Please help! I had a TT done 10days ago, and since waking up from anesthesia my bp has...
Nixynoo profile image

Low blood pressure

I had radioactive iodine 10 years ago and have been on synthroid ever since. I had Hashimotoes and...
Valdug profile image

Low Blood Pressure?

Hello! Is there anyone that suffered low blood pressure as a hypothyroid symptom? Did it worsen...

Moderation team

See all
RedApple profile image
RedAppleAdministrator
PurpleNails profile image
PurpleNailsAdministrator
Jaydee1507 profile image
Jaydee1507Administrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.