Gp asked me to reduce my thyroxine, I initially refused but then trialled itMy high (ish) blood pressure rocketed to 228/ 121 & I ended up at A&E (they questioned and suggested my thyroid meds might be low, no tests)
So I returned to the previous dose and my bp came down to about 135/95
I recently trialled a higher dose and blow me my regular bp is now on the low side of 125/65
I know this is prob coincidence/irrelevant but isn't anecdata fun!!
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KatyMac68
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Most EDS members on here seem to find gluten free beneficial
autoimmune disease and Poor gut function can lead leaky gut (literally holes in gut wall) this can cause food intolerances.
Most common by far is gluten.
Dairy is second most common.
on Levo A trial of strictly gluten free diet is always worth doing
Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential
A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies
Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse
The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported
In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned
Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.
Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial
With loads of vegan dairy alternatives these days it’s not as difficult as in the past
No just hypermobility as an aside when diagnosing the fibromyalgia
I'm egg free and dairy free already
I cant eat green veg or raw fruit/veg
I cant eat anything bitty like kiwi/tomatoes/oats
I cant eat nuts or pluses
I have, apparently, scar tissue and adhesions on my external bowel wall limiting absorption and digestive movement ( thanks GP for constantly telling me off for my diet with IBS when nothing would have made it better)
I mainly eat root veg and meat and white bread
I'm not supposed to have any artificial (like substitute egg) & sweetners cause me huge problems
I am better when I eat homemade bread made with wheat from a stone ground mill with no additived/improvers
Going Gluten free hasn't helped any of the other times I have tried
I've done fodmap 3 times too but never git past a teaspoon of pretty much anything (even the base diet was problematic)
Many patients do NOT get on well with Teva brand of Levothyroxine.
Teva is lactose free, but contains mannitol as a filler instead of lactose, which seems to be possible cause of problems. Mannitol seems to upset many people, it changes gut biome
I'm pretty OK on wockhardt, I can do dairy occasionally an odd yogurt or cream cake once every few weeks any I'm OK. But Cereal for breakfast, butter on my sandwich and a hot chocolate for tea and I'll be stuffed for days
Eggs are odd if in baking I can either be fine or really bad!! Who knows but I can often tolerate meringue but not a dippy egg
My adrenal levels are still on the low side so if they are suddenly asked to pick up the slack of low thyroid hormones they rather struggle and tire easily (though things are certainly improving) whereas someone with better function would get a shot of adrenalin hence the rise in BP... my resting heart rate also falls if dose too high or low
Oversimplified but seems to be the case with me, when Endo dropped my dose it took 6 months for my adrenals to get back to their previously exhausted state with support and a year on they are still gradually improving and showing more resilience
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