Hi any help with new blood test. No idea why for the second year in a row, TSH level is rising. When I was doing pretty well on keeping them low. It’s now been 11 years since I’ve had my thyroid taken out due to cancer.
These are all terribly low and your GP should be flagging this up and treating
TSH level 4.97 miu/L [0.35 - 4.94] aiming for 1 or below
This is too high, showing you are under replaced and need a full thyroid panel to see where your fT3 & 4 are, I notice you were also under replaced last year, did you have your dose increased and rechecked? Looking back 3 years and your B12, folate and ferritin were all just as bad 😕
They told me to take vitamin D and B and gave me acid tablets over 3 months as well. But never recheck to see if they did the job after 3 months. But these blood test are with taken over the counter medication on vitamin. Never can manage to get them higher. But they never checked to see if the levels was raised either.
Have you had the Intrinsic Factor blood test? It could well be that you don't absorb B12 and need injections... I don't understand how they have not treated you 😕
A good B complex like Thorne Basic B or Igennus Super B will balance up your other B's
Pop your details into this and it will tell you how much Vit D (always one with K2) you need to get your levels up, magnesium also helps with uptake... grassrootshealth.net/projec...
I've just looked back through some of your other results and they are all shocking, could you change surgery as this lot are very bad for your health!!
I’ve been with them for years. I’d won’t change it. I’d live in town. And more and more houses are being built. In very much need of a doctor surgery and schools as well.
I’d don’t take T4. I’m on Levothyroxine sodium 125mg a day. Id had my last appointment with endo last year, as 10 years was up. and all she his understudy kept on going on about was how thyroid cancer was the best cancer to get was because it the best one that was treatable. And didn’t really care about how high TSH level was increased even when I’d told her they was to high. And told her I was sleeping a lot. She really didn’t care about anything.
With serum B12 result below 500, (Or active B12 below 70) recommended to be taking a separate B12 supplement
A week later add a separate vitamin B Complex
Then once your serum B12 is over 500 (or Active B12 level has reached 70), you may be able to reduce then stop the B12 and just carry on with the B Complex.
If Vegetarian or vegan likely to need ongoing separate B12 few times a week
Igennus B complex popular option. Nice small tablets. Most people only find they need one per day. But a few people find it’s not high enough dose and may need separate methyl folate couple times a week
Thorne Basic B recommended vitamin B complex that contains folate, but they are large capsules. (You can tip powder out if can’t swallow capsule) Thorne can be difficult to find at reasonable price, should be around £20-£25. iherb.com often have in stock. Or try ebay
IMPORTANT......If you are taking vitamin B complex, or any supplements containing biotin, remember to stop these 5-7 days before ALL BLOOD TESTS , as biotin can falsely affect test results
In week before blood test, when you stop vitamin B complex, you might want to consider taking a separate folate supplement (eg Jarrow methyl folate 400mcg) and continue B12
I think your advice re b12 is correct if the b12 serum level is somewhat sub optimal. In this case the serum level is indicating clinical deficiency which needs to be treated as a matter of urgency to prevent the development of symptoms which in some cases can be irreversible and life changing.
The general view on the PA site is that the only reliable and quick way to correct such a deficiency is with b12 injections. The BMJ and NICE guidelines give much the same recommendations. There are also many papers saying the same.
There is a view that oral supplements can relieve b12 deficiency. However, this is debated in medical circles and is not widely supported by patient groups. What is not debated is that b12 deficiency is quickly resolved in terms of serum levels by injection albeit symptom relief can take months or even years to be maximally achieved.
Good point. How a GP can take no action when her serum levels are so low is astonishing - it would be nice to think they didn't notice the level rather than ignored it. Hopefully they will spring into action once it is pointed out to them.
I'm not medically trained but many on the PA forum say that obtaining injections, ideally through a GP, is the route to explore as the oral route is reported by some members to not work effectively.
I am shocked to say the least that your GP and Endo have let your TSH go as high as it is without urgent intervention after thyroid cancer. It’s an absolute must after thyroid cancer to keep your TSH suppressed, it should always be too low. You need to go back and get your thyroglobulin checked and remind them strongly that it must be suppressed to keep cancer from returning. You also need an increase in levothyroxine immediately! My sister had thyroid cancer and I have Hashimotos so I do know what your levels should be. My sister and I see a very good private only Endocrinologist and get great treatment from him. If you’d like his details please private message me. He’s happy to do telephone, zoom or face to face consultations so no need to travel if you can’t. After all it’s mainly about blood results. Our GP’s and NHS Endo’s jump if we ever mention his name. First thing though is get back to your gp and demand a thyroglobulin test along side repeat thyroid tests. Speak to the practise manager and explain politely but firmly that you are not being cared for properly as the reason why. Always thyroid cancer TSH should be suppressed!
It was low for about 9 years, but it was at the high last year, but still in there range off the test. But this year has pushed it over the range and doesn’t understand why it did it. But I’m used to all the other 3 test being low when I’ve had my bloods taken.
Thank you everyone for your advice, and help as well.xx
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