Low TSH: I have had hypothyroidism for around 3... - Thyroid UK

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Low TSH

JuliaGemstar profile image
4 Replies

I have had hypothyroidism for around 30 years, currently take 75mcg thyroxine daily, weigh 88kg and am 76 years old. I also have heart issues, having had a pacemaker fitted 4 months ago. My latest thyroid tests show low TSH at 0.1 and T4 at 15.8.For my heart issues I take blood thinners, statins, beta blockers (currently at 2.5 twice a day, to rise in increments to 10 twice a day.) I take a low dose of PPI for stomach acid daily.

I am very confused about my thyroid condition. I have put on about a stone in the last year and don't seem to be able to shift it at all, despite being careful with my diet and being active within my capabilities heart-wise. Any suggestions?

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JuliaGemstar
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SlowDragon profile image
SlowDragonAdministrator

My latest thyroid tests show low TSH at 0.1 and T4 at 15.8

Please add ranges on Ft4

Was test early morning

Exactly what beta blockers

Just testing TSH and Ft4 completely inadequate

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

NHS only tests TG antibodies if TPO are high

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Essential to test vitamin D, folate, ferritin and B12

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

VERY important to test TSH, Ft4 and Ft3 together

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Only do private testing early Monday or Tuesday morning.

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test

If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal

Monitor My Health (NHS private test service) offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

thyroiduk.org/testing/priva...

JuliaGemstar profile image
JuliaGemstar in reply toSlowDragon

Yes, early bloods no thyroxine / food / drink before testing.Meds:

Bisoprolol 2.5 mg morning and night

Edoxoban 60 mg evening

Atorvastin 40 mg evening

Esomesprazole 20mg morning

Levothyroxine reduced today from 75mcg to 50 mcg

Supplements:

Vit C 1000 mcg

Sel 200 mcg

Vit D3 50cg

Vit K 100 mcg

I hope this helps. My BP has dropped with increased Bisoprolol to 2.5 twice per day so I am now awaiting advice on heart meds.

SlowDragon profile image
SlowDragonAdministrator in reply toJuliaGemstar

Personally I would want to get FULL thyroid and vitamin testing BEFORE reducing dose

What’s the range on Ft4 - 15 looks possibly low in range……but depends on range obviously

50mcg is tiny…..only standard STARTER dose

How much do you weigh in kilo,

Levothyroxine should always be taken on its own on empty stomach and then nothing apart from water for at least an hour after

No other vitamin supplements or medications within 2 hours

Some like vitamin D tablets or gels or PPI (Esomesprazole) and magnesium at least 4 hours away

If you regularly get up for loo in night ……consider taking it then

healthunlocked.com/thyroidu...

Contra21 profile image
Contra21

Did you get the heart problems from or after diagnosed with hypohyroidism ? My tsh is low and my ectopics are the worst they have been in a while. I'm scared

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