Previously within an NHS appointment he wrote me a Private prescription for T3, and I noticed a reference to it once on my medical notes.
Can I ask my GP to write a Private script for T3 based on this? I have been dismissed from last years replacement Endocrinologist back to GP care, as I am the one who was "a waste of time, a waste of her time ,and a waste of an NHS appointment"................word for word.
Any thoughts would be greatly appreciated.
Every best wish , G
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Gillybean1
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I think normally it would have to have been an NHS prescription that a GP takes over, not private. If GP isn't comfortable prescribing T3 then there's no way you could force the issue, it would be a favour. I have seen it happen but would be super rare.
No, you can use the Roseway Prescribing service. It's way, way cheaper than a private endo. About £40. You have a phone consult with her and she prescribes for you to buy from Roseway Labs. It's a great service. I've been using it for NDT for coming up to 2 years now.
As Jaydee said below. And you do complete some paperwork first and she talks to you for a decent length of time. I find her very empathetic and helpful. Her name is not Elizabeth though. I can' t recall it, but it's a more foreign sounding name. I have been impressed with the service and Roseway in general.
I was running out of hope this week and you have reassured me. I knew Roseway from a few years back, so they should have some data on me.
It was a lady called Elisabeth back then whom was very empathetic, I got the feeling she'd been there, heard it all before, and was passionate to help.
According to my GP no. I have previously asked about treatments other than levothyroxine and she said they can only prescribe if an endo gives them permission.
In general, NHS doctors are expected not to write private prescriptions if the medicine is at least theoretically available on the NHS.
For example, if you want to take some malaria prophylaxis on a holiday, or get a yellow fever vaccination, which would not be provided by the NHS, they can write private prescriptions. But they cannot do so in order for you to acquire Thybon Henning rather than a UK liothyronine - especially not if it is for reasons of price!
And if you got a private prescription for liothyronine, and had to use it at a UK pharmacy for a standard UK make, you might find the prices deeply unattractive. They can choose their own prices which will always be more than "NHS prices".
Its pricey every which way now, To get a Private Endo consultation, to get a Private script to get Thybon from Roseway...........its endless as we all know.
My GP has written a private prescription for me for T3 after it being prescribed by my private endo. It was for Thybon Henning which I then sent to Roseway. You never know until you ask. Good luck.
"a waste of time, a waste of her time ,and a waste of an NHS appointment"................word for word.
If I was you, I would actually complain to the GMC about this endocrinologist. You can have a different opinion than the patient and you can agree to disagree, however this is unacceptable language towards a patient who is in distress and is seeking an appointment with a specialist to find a solution to feel better. If that patient had been treated appropriately in the first instance, that patient would not have to seek the opinion of a specialist, so the fault is actually originating from a crappy GP who did not listen.
Thank you for taking the time to reply. Initally I was in shock and stunned at her cruelty, I believe someone had rattled her cage before me as she was clearly agitated from the "Hello" , but no way for any human being to talk to another, whatever their qualification.
It set me back months, my knee jerk was to write an official complaint, but then I thought Id best sleep on it. I realised when one takes this stuff further, you have to have energy to stand up for yourself and what might follow. And currently with so many symptoms and fatigue I just couldnt. I feel guilty though that I didnt, if only for the sake of others.
I did ask her not to send me back to the GP because then referrals have to start all over again and asked if she wasnt able to help me , could I see another member of the team, but she said they all think the same as her........ Her reply was that with a supressed TSH I am over medicated, she didnt go along with NDT, and she didnt give a fig what her predecessor Professor had prescribed or advise.
I think I made it worse by saying "yet my T4 and T3 are mid range, I know Ive not got it right yet, please can you help me"...........she was furious before our conversation, she was now livid.
I will in time write personally to this Consultant and let her know that I have re run the telephone consultation many times, and just how detrimental her Consultation has been to me. This will be copied to my records too.
None of my GP's have experienced with Hashimotos /DIO2+.
Thank you for your support, its very reassuring. Every best wish , G
Most endocrinologists are diabetes specialists anyway, so finding someone who has experience or even knowledge of thyroid conditions is like finding a needle in the haystack! 🙄
It just angers me how physicians think they have the right to treat patients like this, which is not only unnecessary, but very unprofessional as well. Everyone in your situation would have been shellshocked by that treatment and I am not surprised to hear that it was a big set back for you. I hope that you feel better now and can put it down to the ramblings of an ill-informed and nasty piece of work, who would be better off reading more pertinent papers or taking a lengthly course on how to interact with patients.
She and her team sounds a lot like the endocrinologist and team I have visited twice, sticklers for TSH in range and any T4 or T3 is good enough. If I headed her advice, I would probably be on 25mcg levothyroxine and not able to function at all. And she even sits on the thyroid treatment guidelines - God help us all!
I do hope that you will find a solution and that you can get the prescription you need. Take care and all the best! 🤗
She's cruel. Having told me "none of my team can help you" she said she didnt know anyone anywhere............yet in the follow up letter she wrote to my GP and copied to me, she recommended a Consultant about 10miles away. I ran it by an NHS friend of mine whom kindly looked into his track record, and he specialises in T3 dependancy and advised me to avoid.
Not only was that cruel and nasty, it also highly insulting. If i was detrimentally dependant on T3 Id just stop it. If anything I need more not less. Nasty, mean ,spiteful woman........but no doubt it looked good on my notes that she had offered alternative help.
Its truly exhausting trying to wade through this stuff, and hold your head up, lest we are ground into the dirt.
I looked her up a couple of months ago and found a nauseating advertising video for her Private work stating "its important to me to listen and treat my patients holistically"...................wow, ....well it spurred me to rewrite my letter.
I will get there one day, thank you so much for your kindness. Take care too, G
Hi Gill bean, just FYI Roseway will no longer prescribe T3 unless you already have a prescription from someone else (Dr or Endocrinologist etc). I had a call with them last week.
Thank you for taking the time to reply. Oh dear bit of a heart sink then , to more expense for a Private script to get meds to exist.
And so we go on......... Its quite mad really, I consider the multiple noxious meds prescribed and muck in the food chain that some are subjected to and yet T3 does seem to rattle medics, even though we are the least likely group to misuse it and therefore unlikely to cause harm.....quite mad.
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