Thank you to everyone here who has given support and advice. My Endo is writing to my GP for a T3 prescription

[Josephineinamachine]

Hi all

I just wanted to give heartfelt thanks to everyone who has given support and advice since I've been on this forum. I would not have been able to feel this well without you all and I appreciate everyone here! Thank you.

Here is an update of my first appointment following a T3 trial:

All good - so much better in many ways. Small things like eyelashes after 6 years of no eyelashes (not that this really affects quality of life!). Big things like I can trust my brain again because the fog is lifting (this feels remarkable and is life-changing). Much reduced anxiety and much improved sleep.

Slightly symptomatic still though - constipation is worse and pain in legs and feet has not completely gone (although is better). Very stiff hips I think? Which could be causing the thigh pain. This has gone intermittently every time a dose increase so am convinced is thyroid.

So, anyway, my lovely Endo who keeps calling me a 'young thing' (I'm 56, so that in itself completely endears me to him!!) has agreed to continue me on T3. He's happy with my results and the fact that my TSH has risen to 'in range' as well.

He said he's going to write to my GP to request an NHS T3 prescription. He noted where I live and said not to get too enthusiastic because the GPs in my area tend to be very 'anal' (his words). So we shall see.

He has given me freedom to continue to 'tweak' as I see fit up to a dose of 15mcg T3. Currently on 10mcg. So I shall start tweaking in a few weeks time if I feel I want to try.

Just wanted to share because T3 has really made a big difference to me. I know it doesn't work for everyone though, and it was a bit of a bumpy ride to get to this dose (which was my fault for being too impatient) and I only managed it with your help xx

[Purplesash]

That’s fantastic news, what’s area are you in?

I am in the process of trying to get a referral to Endo as have conversion issues. I am optimistic that if I can get T3 I will get my life back.

May you continue to improve.

[Josephineinamachine in reply to Purplesash]

Hi Gymbuni can I state the county that I live in on this site SlowDragon ?

[Purplesash in reply to Josephineinamachine]

Yes, I believe so, I have.

[Josephineinamachine in reply to Purplesash]

Well that’s okay then! I live in Buckinghamshire. More specifically the Chilterns area. Hope this helps!

[SlowDragon Administrator in reply to Josephineinamachine]

Yes you can

[Yeswithasmile]

So pleased you’re happy Josephineinamchine 👏🏻👏🏻👏🏻👏🏻👏🏻 I really hope your gp does as asked 🤞🏻🤞🏻🤞🏻🤞🏻

[nellie237]

Bloody marvellous. What a fab Endo. 😊😊😊

[beaubeau1121]

Thx & congratulations!How much T4 are you taking as a result of increased T3?!!

[Josephineinamachine in reply to beaubeau1121]

Hi I was reduced from 100 mcg to 75 mcg and was offered 15 mcg T3. I’ve not managed to get to 15 T3 and may not need that much. Might try an extra 2.5 mcg at night (makes me very sleepy).

[beaubeau1121 in reply to Josephineinamachine]

hi!hope it works well for you!

love T3!

[Josephineinamachine in reply to beaubeau1121]

Same! Do you split your dose?

[beaubeau1121 in reply to Josephineinamachine]

i did! now… I am trying t3 only!

[beaubeau1121 in reply to Josephineinamachine]

the sleepiness might go away after you adjust… regardless… hope you feel better

[PixieElv]

That’s brilliant! So pleased for you. For eyelashes, try Revitalash. It’s expensive but works miracles. It was develop for people on chemo.

[Josephineinamachine in reply to PixieElv]

Ah. I’ve not heard of that. Thank you! Will give it a try 😊

[shaws Administrator]

It is a revelation when we finally get an endocrinologist who listens to their patient and then prescribe what can restore their health.

When someone has been very, very unwell, family members cannot fathom out why - when we're taking medications - we're still complaining. Some of us may develop still more symptoms than before being diagnosed.

[Josephineinamachine in reply to shaws]

I know! I know I’m not quite there yet - I notice trailing symptoms more now I’m back at work running around up and down stairs and standing teaching all day. But I’m coping and although ‘coping’ isn’t ‘feeling great’ right now I’ll take it. A few months back I wouldn’t have coped.

shaws - I’ve followed your regime of taking all T3 in one go in the morning which works for me. Did you ever try taking some at night before bed as well? Or instead? Thank you.

[Anthea55]

Well done, you. Glad you are on the mend.

Constipation - sweet potato works for me - I don't know if it works for anyone else. Might be worth a try. I 'bake' mine in the microwave - pricked all over and wrapped in kitchen paper.

[Josephineinamachine in reply to Anthea55]

Thank you! I’ll give it a go. It’s like I could eat a lit stick of dynamite and nothing would happen! 😳

[HornM]

Hi Josephineinamachine - I've come across your journey whilst searching for posts made about feeling crap on adding t3 to t4.

Firstly, congratulations on feeling better! It sounds like you've had quite a time of it - how wonderful to experience some stability and relief. I hope things to continue to improve as time goes by in a healthier state.

About a month ago you wrote, 'Does anyone else ‘feel’ their medicine? It’s like it’s thrumming in my system…almost like a smell…not quite…a sensation of being drugged? Something grungy in me'.

Im only reading this tonight and thinking, yes, me, I do! And I'm also absolutely wiped; much much more than I was before adding t3 (even tho I'd been adjusting to 50mcg of t4 in preparation, and was indeed undermedicated). Quite frankly, I feel (very) awful, and I've only just started today (I'm adding 5mcg t3 on waking in the morning to 50mcg t4 (previously 75mcg)).

I'm wondering if you might be able to share what happened between then and now. Did the grungy feeling dissipate - and if so, after how long? Any insights or tips would be so helpful at this stage. Are you still taking t4 and t3 at 4am? I'm feeling rather alone with my experience of it.

So good that you came out the other side!

With thanks 😊