I just wanted to give heartfelt thanks to everyone who has given support and advice since I've been on this forum. I would not have been able to feel this well without you all and I appreciate everyone here! Thank you.
Here is an update of my first appointment following a T3 trial:
All good - so much better in many ways. Small things like eyelashes after 6 years of no eyelashes (not that this really affects quality of life!). Big things like I can trust my brain again because the fog is lifting (this feels remarkable and is life-changing). Much reduced anxiety and much improved sleep.
Slightly symptomatic still though - constipation is worse and pain in legs and feet has not completely gone (although is better). Very stiff hips I think? Which could be causing the thigh pain. This has gone intermittently every time a dose increase so am convinced is thyroid.
So, anyway, my lovely Endo who keeps calling me a 'young thing' (I'm 56, so that in itself completely endears me to him!!) has agreed to continue me on T3. He's happy with my results and the fact that my TSH has risen to 'in range' as well.
He said he's going to write to my GP to request an NHS T3 prescription. He noted where I live and said not to get too enthusiastic because the GPs in my area tend to be very 'anal' (his words). So we shall see.
He has given me freedom to continue to 'tweak' as I see fit up to a dose of 15mcg T3. Currently on 10mcg. So I shall start tweaking in a few weeks time if I feel I want to try.
Just wanted to share because T3 has really made a big difference to me. I know it doesn't work for everyone though, and it was a bit of a bumpy ride to get to this dose (which was my fault for being too impatient) and I only managed it with your help xx
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Josephineinamachine
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Hi I was reduced from 100 mcg to 75 mcg and was offered 15 mcg T3. I’ve not managed to get to 15 T3 and may not need that much. Might try an extra 2.5 mcg at night (makes me very sleepy).
It is a revelation when we finally get an endocrinologist who listens to their patient and then prescribe what can restore their health.
When someone has been very, very unwell, family members cannot fathom out why - when we're taking medications - we're still complaining. Some of us may develop still more symptoms than before being diagnosed.
I know! I know I’m not quite there yet - I notice trailing symptoms more now I’m back at work running around up and down stairs and standing teaching all day. But I’m coping and although ‘coping’ isn’t ‘feeling great’ right now I’ll take it. A few months back I wouldn’t have coped.
shaws - I’ve followed your regime of taking all T3 in one go in the morning which works for me. Did you ever try taking some at night before bed as well? Or instead? Thank you.
Constipation - sweet potato works for me - I don't know if it works for anyone else. Might be worth a try. I 'bake' mine in the microwave - pricked all over and wrapped in kitchen paper.
Hi Josephineinamachine - I've come across your journey whilst searching for posts made about feeling crap on adding t3 to t4.
Firstly, congratulations on feeling better! It sounds like you've had quite a time of it - how wonderful to experience some stability and relief. I hope things to continue to improve as time goes by in a healthier state.
About a month ago you wrote, 'Does anyone else ‘feel’ their medicine? It’s like it’s thrumming in my system…almost like a smell…not quite…a sensation of being drugged? Something grungy in me'.
Im only reading this tonight and thinking, yes, me, I do! And I'm also absolutely wiped; much much more than I was before adding t3 (even tho I'd been adjusting to 50mcg of t4 in preparation, and was indeed undermedicated). Quite frankly, I feel (very) awful, and I've only just started today (I'm adding 5mcg t3 on waking in the morning to 50mcg t4 (previously 75mcg)).
I'm wondering if you might be able to share what happened between then and now. Did the grungy feeling dissipate - and if so, after how long? Any insights or tips would be so helpful at this stage. Are you still taking t4 and t3 at 4am? I'm feeling rather alone with my experience of it.
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Should I see my gp or an endo or who? 
Will or won't I get a T3 prescription approved by my GP?
Thank you to everyone's advice and help, a great forum!!
GP has been stopped from prescribing my T3 and Clonazepam
Thank you for good advice and much support 
