Was test done as recommended …..all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test
This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)
Ft3 is high for such a tiny dose Levo
Have you had ultrasound scan of thyroid
Or BOTH TPO and TG antibodies
When were vitamin D, folate, B12 and ferritin levels last tested
What vitamin supplements are you taking
I was taking 50 mg until 2 years ago when it was reduced due to symptoms of palpitations, facial sweating, fatigue and low mood.
Nodules that produce excess thyroid hormone — called hot nodules — show up on the scan because they take up more of the isotope than normal thyroid tissue does. Hot nodules are almost always noncancerous.
IN a few groups I'm in most people say it's good for the thyroid....Stephanie Buist cured her thyroid cancer with Iodine and says it's brilliant if you're Hypothyroid - it worked well for me whilst I was on the iodine protocol......In another group for Followers of Dr Myhill's it's also suggested to take a few drops I take 3 drops so 18.75mg whereas before I used to take 150 mg) of Lugol's Iodine I put it in my warm tea everyday an hour before taking Vit C....I think it's good for those who are Hypothyroid....
Many people who are hypothyroid have little to no functioning thyroid tissue.
How would iodine help them?
Suggesting significant iodine supplementation is potentially dangerous. The issues are complex. It is absolutely not safe to pick up "most people" recommendations and pass them on.
150 milligrams of iodine is a truly massive intake.
The Japanese are often held up as among those with the highest iodine intake. Something like 3 milligrams a day - on average. And they have among the highest rates of autoimmune thyroid disease (Hashimoto's).
That looks like you are not converting T4 to T3 adequately in your pituitary - leaving it to "think" you need more TSH to make more T4 and/or T3. I need to check the details but T4 to T3 conversion in the pituitary is different to elsewhere.
I'd have a good look round all the "other" things:
Iron
B12
Folate
Selenium (consider a modest dose such as 100 or 200 micrograms)
But it could simply be your genetic make-up.
If you were truly iodine deficient, I would have expected you to fail to maintain your FT4.
However, overall I think you are just you and don't fit the doctors' preconceptions.
Have a look here - but don't get yourself bogged down or concerned if you don't fully grasp it on first, second, twentieth time of trying. It is genuinely hard to juggle all the concepts in a useful way. I always have to go back to articles like this to re-read and see if I understand this time round!
Dr Myhill recommends only 2 or 3 drops per day....in Stephanie Buist group people were curing breast cancer with big doses of iodine....she worked with Dr Bernstein or Brownstein I forgot the precise name
yes that doesn't seem logical - but maybe it's in the hope you'll manage to convert it to free T3 - which you seem to be able to....Hope you find a solution. I've done the entire Iodine protocol with co Factors : B2/B3, Selenium 200mcg - 400 mcg, Magnesium 300 - 400mg ( I actually took 600mg - 800mg) Vitamin C 3000 - 4000mg ; Celtic salt ....plus Boron 30 - 60 mg .....now I don't need the co-factors as I'm only taking 3 drops 18.75 mg in a little warm tea every day....I've done this for last 4 or more years. I'm Hypothiroid / not hashimoto... Good Luck x
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
I don't have any more recent ones but have been supplementing with a multivitamin and mineral since my last tests.I didn't take it for 10 days before my test though.
Thanks Slow Dragon.I get this, but I'm vegetarian and don't eat eggs, so it seems the easiest way to cover any possible deficiency. They don't contain iodine - I check!
Looking at previous posts you have in past had extremely low B12, low folate, low ferritin
No vitamin D result
Low vitamin levels typical when on inadequate dose levothyroxine
NHS only tests TG antibodies if TPO are high
Levothyroxine doesn’t “top up” failing thyroid. It replaces it
Guidelines of dose Levo by weight
approx how much do you weigh in kilo
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or somewhere near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
Adults usually start with a dose between 50 micrograms and 100 micrograms taken once a day. This may be increased gradually over a few weeks to between 100 micrograms and 200 micrograms taken once a day.
Some people need a bit less than guidelines, some a bit more
TSH should be under 2 as an absolute maximum when on levothyroxine
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
I weigh approx 8 stone.Small dose given also due to my age (70). It was increased to 50mg but reduced again when symptoms of palpitations etc got worse.
Both types of antibodies were tested when I was first diagnosed.
Symptoms improved on HRT but I can no longer take it.
GP thinks low mood unrelated to thyroid hence antidepressants.
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Thank you Slow Dragon.I've always been puzzled as to why I'm on Levo when my FT4 has always been the high end of normal and is now slightly too high and out of range.
I am also on 50 mcg Levo and Sertraline and I have to say that, although I have bad days, my mood is rather good so would say that the combination of the 2 work rather well. For me at least! I hope the Sertraline will start to work for you soon too. x
Looking at your results they seem OK except free T4 a little high....I'm at bottom range for both T3 & T4 and decreasing my NDT at present : Erfa to come off it again....Good Luck
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