Advise please

[X2018]

Hi ladies and gentlemen,

I am hypothyroidism since 2000 year, been on Euthyrox 50 ug for 17 years. 5 Oct 2016 my FT4 15.3 pmol(10.9--19.0) TSH 0.05 mIU(0.50--6.5) FT3 is 4.1 I was hand shaking, sweating, fast hear beat , short tamper . My GP said that my T4 T3 was normal and done nothing. I couldn't karry on so reduced Euthyrox to 25 ug. Until 6 November 2017 FT4 22.1 TSH 0.05 FT3 4.7 it was still above rang, so stopped taking it. Then the symptoms were getting better and better.

16 Dec 2017 FT4 15.7 TSH 2.98 FT3 4.2.

5 Jane 2018 FT4 16.5 TSH 2.90 FT3 3.8

24 May 2018 FT4 15.7 (10.0---19) TSH 1.28 (0.5---4.0) FT3 3.9 (3.5----6.5) My GP said it's normal.

1 Aug 2018 I had colonoscopy and gastroscopy then my blood pressure was very low. The reading was 83/51 mmhg. I tried ate more salt, drank 1.8 L of water daily , but it seemed still hard to bring it up. The reading was 94/56 mmhg. So what's wrong with me? I felt dazzy and blurred vision.

Please share your experience or any idear. I am appreciated.

Wishing all of you that have a great weekend.

[greygoose]

I think your low blood pressure is probably due to your very low FT3. You are still hypo, and need an increase in dose. Your doctor is wrong about your results being 'normal', it is not 'normal' to have an FT3 that low. But, what he probably means is 'in-range'.

[X2018 in reply to greygoose]

Hi greygoose , thank you very much.

Is it " in range " not good enough ? So what is the optimal number of FT3 ?

Anyway I will incrise the dose of Euthrox in the morning now. I hate the low blood pressure feelings, it makes me feel awful.

[greygoose in reply to X2018]

The ranges are very wide. It can't possible be both 'good enough' at the top of the range, and 'good enough' at the bottom. That's one of the stupid ideas of doctors that don't have the disease.

Optimal is not a number, it's the way you feel. And, you obviously don't feel 'optimal' at the moment, and lots of people need their FT3 higher than that to feel well. You don't appear to convert very well.

[X2018 in reply to greygoose]

Yes you are right, I don't feel well at the bottom of the range. should listen to my body feel --its a great idear.

Is Euthrox convert FT4 to FT3 or iodine from food, I have no conception of it.

I greatful what you educted me 🌷🌻🌹

[greygoose in reply to X2018]

Euthyrox is T4, the thyroid storage hormone. And, it has to be converted to T3, the active hormone. Iodine has nothing to do with it once you are hypo. Iodine is just one of the ingredients of thyroid hormone.

[X2018 in reply to greygoose]

Oh, I got it. Euthyrox is just T4, has to convert to T3. Is there any T3 medicine can take if my convert functions not good enough?

Thank you and thank you🌷🌷🌷🐙🐙🐙🤗🤗🤗

My dietition had done my urine iodine test which showed urine Iodine / Crt 58 ug/g Crt range (70---860) is this would impact on my T4/T3 ? Am allergic to seafood, so I use iodised salt. Is it enough for supplement of iodine? What is your opinion ?

I have started Euthyrox yesterday morning and I felt better yesterday and blood pressure went up little. But not today for the blood pressure. It might take a few days.

Have a nice day ☕🌷

[greygoose in reply to X2018]

Yes, there are quite a few T3 medications. There's Tiromel, Cytomel, Cynomel, and several others.

Iodine is a complicated subject. There's iodine in a lot of things we eat, you don't have to eat seafood. I rarely eat seafood, but my iodine is high. But, one thing you do not want to do is supplement iodine when you are hypo.

Have you had your antibodies tested? That is something very important to know.

You can't expect to feel any improvement after one day. It will take at least six weeks to feel the full benefit of Euthyrox. And, then, you will doubtless need an increase in dose.

[X2018 in reply to greygoose]

😅 I know I am inpatient. Why do not do supplement when I am hypo, is it not a good way? Is take T3 better than T4 ? I think T3 will be working on body immediately.

Is Gp can prescript T3 or have to the Endo ?

My thyroid antibodies were:

5 Jane 18 :

Anti-thyriod peroxidase 430 KIU/L ( lower than 60)

Anti-thyrogolobulin 284 KIU/L

21 April 18:

Anti-thyriod peroxidase 359 IU/L

Anti-thyrogolobulin 259 KIU/L

What do you eat to maintain the Iodine level?

Many thanks Greygoose

[greygoose in reply to X2018]

Forget the iodine, you have Hashi's. Taking extra iodine when you have Hashi's would probably make you ten times worse. It's not low iodine making you hypo, it's the Hashi's. Besides, you will be getting iodine from your T4.

T3 is more difficult to dose than T4. It's far too complicated for a doctor to understand! They only understand T4. So, start on T4, see how it goes, learn about the thyroid for yourself, then you can decide later if you need T3 or not. It could be that you convert T4 perfectly. Time will tell.

Do you live in the UK? In the UK, only an endo can allow you to take T3, and they don't often do that. I don't know about other countries.

[X2018 in reply to greygoose]

😊😘Hi dear, you can be my doctor, very perfessional. I feel much comfortable in my mind and understanding.

You are right , my GP only know the number of test range , dosen't understand my symptoms.

Yes I will stick on T4 , as time as go it will tell me.

I am very gratful to you for your guide and great advices.

I am living in Melbourne. Proberly the medical systerm similar to UK🙂

Good afternoon to you and good night for me🎑

[greygoose in reply to X2018]

I know nothing about the medical system in Australia, I'm afraid. So, I know nothing about their policy on T3. But, there are other Australian members. If you want to know anything about how it works in your country, ask another question, mentioning Australia in the title.

[X2018 in reply to greygoose]

Thank you greygoose, I would like to have a go for the T4, it maybe work well for me.

In Australia it's hard to get GP's referral or prescription what the patient knew any medication. Iet see how it goes.😉

[greygoose in reply to X2018]

You're welcome.

[rosserk]

Hi, before diagnoses of hypothyroid doctors were struggling to find a reason for my low heart rate and low blood pressure. I was eventually diagnosed with Postural Orthostatic Tachycardia. My resting heart rate (RHR) dropped to 44 and my blood pressure was 70/40.

Since starting Levo both have consistently improved. RHR is now 67 and my blood pressure is typically 120/70. It took months for both to return to normal readings but the improvement was immediately noticeable, with both steadily increasing with each dose increase of Levothyroxine. My T3 was initially 3.8 but is now 6.3 I’m 100% confident that the higher T3 fixed the problems with my blood pressure and heart rate.

[X2018 in reply to rosserk]

Woow, that's a great news for me🤗 Thank you so much for share your experience.

My heart rate was 55 when I was resting. I was wonder and thought I've got heart problems, now I understand.

I will take Euthyrox, keep post and let you know that how it goes with me.

[rosserk in reply to X2018]

Exactly I had no idea I had hypothyroid, I thought I had a heart issue but the specialists kept saying there was nothing wrong with my heart! I kept telling them my heart rates too low but they said it was functioning normally. I can’t wait to see my cardiologist at my 6 month test to show him the difference. I can’t believe they never thought to look at my thyroid! I noticed my heart rate increasing within days of upping my Levo!

[X2018 in reply to rosserk]

Oh, It's seemed effectively within days, that will be good for me.

I fund out that what ever the GP or sepecialist they just have very limited idear about the disease , no idear any other conditions involved even they can be related which is hard for the patients to getting better.

[Emyloulou]

Have you had your morning cortisol checked? I had the same symptoms plus nausea, vomiting, no appetite and considerable weight loss when I developed adrenal insufficiency.

I did try T3 first as I had a conversation problem but this only made my symptoms worse so it’s definitely worth asking your GP to run the cortisol test just incase x

[X2018 in reply to Emyloulou]

Thank you for remind me that. I used pridsone for a year, so I conserned it as well. I had done test but haven't got result yet.

Xiao

[X2018 in reply to Emyloulou]

Hi , I have got my morning cortisol result today, it was 288nmol/L (145--619) . For your experiences how was it ?

[Emyloulou in reply to X2018]

It’s not great, ideally it should be around 500 if taken between 8-9 am. What time was it taken?

If it’s early you gp should really do an endo referral.

[X2018 in reply to Emyloulou]

It was 9:45 am when taken my blood.

How can increase it? Should I ask GP for a Endo referral?

Thank you for your advise and share your experience.

[Emyloulou in reply to X2018]

You really need an earlier one taking, definitely before 9. I can’t help with how to raise it sorry as I have to take steroids.

[X2018]

Thank you, I will try other laboratory. Last one's work hour started 9 am,and thus i couldn't do it earler, also I didn't know it required earlier. I have learned, thank you again.