well well well I’ve been prescribed T3!

[Starseed56]

hi forum friends. I had my nhs telephone endo appointment this week. I explained how I’d taken myself from T4 monotherapy to NDT but it’s costing me about £70 per month. The endo suggested a trial of T4 and lio (75mg and 10mg) at present I’m taking 2 grains. I hope this is a reasonable alternative dose as I struggled a lot converting to NDT for many months til we got the dose right. So I’m starting yet another thyroid journey. Interestingly I gave him my bloods pre NDT and last test but I only gave the T4 and T3, he didn’t ask for the TSH 😆 was I lucky and got someone a bit switched on?

Anyone else here switched to Levo and Lio from NDT? I’d be interested in your advice/experiences please. Thank you.

[DippyDame]

T4/ T3 combo makes it easier to achieve the correct doses of both.....as you will know, on NDT the T4/T3 dose is fixed at 1grain/60mcg NDT = 38mcg T4 and 9mcg T3.

So, your dose, 2 grains = 76mcg T4 and 18mcg T3

Your endo has prescribed 75mcg T4 and 10mcg T3

( Note....it is mcg NOT mg)

It is best to add T3 slowly so suggest you start with 2.5mcg for 2 days, if ok add another 2.5mcg repeat until you reach the10mcg, give it a couple of weeks to settle then see how you feel

Wait 6 weeks then test again

You may. or may not need a dose increase after that test

Your endo sounds more open minded than many.

Good luck!

[Starseed56 in reply to DippyDame]

Oops I got the amount and dose wrong. It’s 20mcg! 10 twice a day! 💜

[DippyDame in reply to Starseed56]

Sorry....not helpful!

20mcg of what?

[Starseed56 in reply to DippyDame]

Lio (T3) 💜

[DippyDame in reply to Starseed56]

Thought it must be....hope it works well for you

[Alanna012]

Oh, winner! Brilliant, your endo sounds unusually fabulous, I'd be sending him a Christmas card!😄

[Sallybones]

my endo surprised me at my recent appointment as he is considering adding T3 to my Levo. Could have knocked my down with a feather! Good luck x

[Starseed56 in reply to Sallybones]

Thanks and great to hear for you too! Ideally I’d have liked NDT but this is better than nothing!! 💜

[Doctordoolittle]

you are so lucky ! When I saw mine at the nhs he says the only way I could was to see a private doctor to get a prescription!

[Starseed56 in reply to Doctordoolittle]

Apparently it has to be done under shared care for funding, according to the pharmacy at my GP…💜