Recommendations for Endocrinology Consultant : ... - Thyroid UK

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Recommendations for Endocrinology Consultant : South East (Private Message please)

Someday_maybe profile image
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I'd be utterly grateful to receive private messages with people's recommendations for Endocrinology Consultants (NHS or Private) in the South East please.

Following an shocking appointment last week, swiftly followed by a phone call which left me in tears, I have raised a formal complaint and requested a change in Consultant. In anticipation of this being a reason for delays, I am exploring options.

I am almost 8 months into Carbimazole and not achieving anything close to control so have been living thyrotoxic for at least 10 months, and probably more like a year. Swapping to PTU was briefly discussed last week, but when I asked (what I thought were legitimate) questions, I was accused of refusing to swap and the option removed. In true gaslighting behaviour, the letter to my GP says the decision to stay on Carbimazole was jointly made by myself and the consultant, who is 'more than happy for me to contact him at any point to revisit the conversation', would review in 8 weeks. No mention of him ordering the wrong blood tests last week or the fact that my next appointment is 6 months away. I can't anymore! My GP is saying her hands are tied so I need to find a solution whilst I wait for PALS to respond.

I have a tooth extraction I desperately need doing - but the risks of sedation or GA are too high at the moment and no-one will touch it until I get some kind of control over my thyroid so as well as hyperthyroid, I have tooth pain on a daily basis, sinus pain from TED and am generally miserable.

I'm hoping to hear positive experiences which I can use to request an NHS transfer to, or a private option if needs be. I'm willing to travel almost anywhere in the South East at this point.

Thanks in advance !

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Buddy195 profile image
Buddy195Administrator

If you can advise, please private message only Someday_maybe, as requested.

You can name a doctor when asking for feedback on the forum, but replies need to be via private message.

A list of thyroid -friendly endos (NHS and private) can be requested by contacting TUK:

thyroiduk.org/contact-us/ge...

With any recommendation that you get, it is advisable to complete further research yourself before making a decision.

It is a good idea to have thyroid blood tests (TSH, FT4 and FT3) alongside key vitamins (ferritin, folate, B12 and vit D) prior to your appointment. This allows you to discuss the results with the endo at the first meeting.

I would start a new post with your comments above, to allow members to respond/ advise

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