please help explain the suppressed tsh on t3 - so I can send to docs

[Chouchou1234]

I have osteoporosis-3.1 before starting t3 but my t3 was 2.1 ! (4.1 to 6.8)

Can someone please write and explain t3 suppresses Tsh but doesn’t affect bones. It’s the t3 levels that are important right ?

My t3 now is 5.4 (4.1 to 6.8) tsh -0.01 and t4 17 (12 to 22)

I’m getting bombarded with clueless new GP and need to explain the tsh thing.

Can you help please as I can’t put it into words effectively .

( I have osteoporosis due to severe lack of t3 and no oestrogen )

[Regenallotment Ambassador]

Hey Chouchou,

Nice to hear from you, good to see your FT3 has risen.

This link is to a tattybogle post about supressed TSH healthunlocked.com/thyroidu....

Lots of articles there, one mentions osteoporosis (I did a CTRL - F search on osteo) but there may be more in the replies to her post.

[Chouchou1234 in reply to Regenallotment]

thank you ! Appreciate this. Thank you ! Hope you are well xx

[Regenallotment Ambassador in reply to Chouchou1234]

Yes thank you 🤗 all good here

[tattybogle in reply to Regenallotment]

regen... just so u know .. that one is only useful for TSH at lower end of ref range, these two are the ones for TSH below range , (they are on my profile page , not pinned) :

healthunlocked.com/thyroidu.... tsh-is-just-the-opinion-of-your-pituitary-about-your-dose-but-your-pituitarys-opinion-is-a-bit-warped-once-you-take-thyroid-hormone.

healthunlocked.com/thyroidu... useful-evidence-that-tsh-between-0.04-0.4-has-no-increased-risk-to-patients-on-levothyroxine-updated-new-study-does-show-small-risk

[Chouchou1234 in reply to tattybogle]

Thank you.🙏

[Regenallotment Ambassador in reply to tattybogle]

ahhhh I knew they were somewhere! Thanks so much for adding those

[SlowDragon Administrator]

Is your T3 prescribed via endocrinologist?

Assuming yes, GP shouldn’t be meddling

Few links here

paulrobinsonthyroid.com/one...

Most important results are ALWAYS Ft3 and Ft4 plus good vitamin D, folate, B12 and ferritin

[Chouchou1234 in reply to SlowDragon]

Thank you !

Thank you

[Chouchou1234 in reply to SlowDragon]

yes via endocrinologist- just this busy body doctor and people telling me it’s bad for bones but I don’t think it matters ? As long as t3 normal

Just my DEXA was bad but that was before t3.

[SlowDragon Administrator in reply to Chouchou1234]

LOW Ft3 can cause osteoporosis……not just high Ft3

Osteoporosis

thyroidpatients.ca/2018/07/...

Osteoporosis and iron deficiency

healthunlocked.com/thyroidu...

Low vitamin levels especially vitamin D and/or magnesium

Being inadequately treated for thyroid resulting in immobility and inactivity bad for bones too

[Chouchou1234 in reply to SlowDragon]

Thank you 🙏

legends as always !

[humanbean]

You might find this thread useful.

healthunlocked.com/thyroidu...

I've just checked the latest figures on deaths blamed on Levo and T3 (Liothyronine) and they are unchanged from the last time I gave the figures.

[TaraJR]

If it's any help... I asked some well-known endos on webinars if it's a suppressed TSH itself that can cause problems or a very high/over range T4 and/or T3. They all said the same thing and it wasn't the TSH! I'll add a photo of their responses. Message me if you want them in Word .

text

[FancyPants54 in reply to TaraJR]

Well that is a very good list of helpful quotes. Where can we pin that for future use?

[TaraJR in reply to FancyPants54]

helvella I'd be happy for this, but only if you think it's appropriate.

[helvella Administrator in reply to TaraJR]

I put it on my blog - including a link to the PDF!

TaraJR - Endos' quotes on suppressed TSH v high T4/T3

Problems caused by suppressed TSH or high T4/T3?

Leading endocrinologists, well-known in UK and abroad, were asked by a co-lead of ITT Improve Thyroid treatment patient group:

“Is it a suppressed TSH itself or high/over range T4/T3 themselves that can lead to problems eg osteoporosis or atrial fibrillation?” They all said it is the T4/T3 levels…

My quality of life before taking T3 was awful, and I wasn't bothered if I was here or not. Since taking T3 I am vastly better, although my TSH is now suppressed. There are papers showing that the extra risk from a suppressed TSH is small, and I’m willing to take that very small risk. The decision should be a joint one between doctor and patient.

A very low TSH may carry an additional slight risk but, to me, well worth the trade-off against having a decent quality of life. An elevated TSH is as hazardous as a low TSH, or perhaps more so.

Tara Riddle, September 2024

Link to the full document as a PDF:

dropbox.com/scl/fi/trzzzgo4...

Link to this blog entry:

helvella.blogspot.com/p/tar...

[Chouchou1234 in reply to helvella]

This is 👍 Fantastic thank you 🤩

[RedApple Administrator in reply to TaraJR]

TaraJR I have added your original post about this to the pinned posts list healthunlocked.com/thyroidu...

[TaraJR in reply to RedApple]

Thank you. I hope it helps some people... No idea if these endocrinologists will hear of this, but they did say all say it publicly, so it should be fine!

[Chouchou1234 in reply to TaraJR]

Thank you 🤩