Suppressed TSH - help please: Hi everyone. I’m... - Thyroid UK

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Suppressed TSH - help please

MissGrace profile image
8 Replies

Hi everyone. I’m looking for a private endo who will allow a lower than normal TSH. MY TSH is 0.33 (range 0.5-4.0) T3 4.6 (3.5-6.5) T4 13 (10-20). I need to keep increasing T4 to get well, but my endo is against this. I live in England - willing to travel! Is there anyone who can help?

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MissGrace
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diogenes profile image
diogenesRemembering

Your endocrinologist is entirely wrong and is not up to date with latest work. Guide him/her to this paper as an example:

Thyroid. 2017 Apr 1; 27(4): 484–490.

Published online 2017 Apr 1. doi: 10.1089/thy.2016.0426

PMCID: PMC5385443

PMID: 28056660

Biochemical Markers Reflecting Thyroid Function in Athyreotic Patients on Levothyroxine Monotherapy

Mitsuru Ito, Akira Miyauchi, Mako Hisakado, Waka Yoshioka, Akane Ide, Takumi Kudo, Eijun Nishihara, Minoru Kihara, Yasuhiro Ito, Kaoru Kobayashi, Akihiro Miya, Shuji Fukata, Mitsushige Nishikawa, Hirotoshi Nakamura, and Nobuyuki Amino

This shows clearly that with patients on T4 therapy, TSH values in the range 0.03-0.5 indicate correct treatment. Simply put, the TSH range for healthy patients does not apply to those who have lost their thyroids and are on T4.

MissGrace profile image
MissGrace in reply todiogenes

Thank you. I will definitely look at this. I don’t think my current endo will go for it though. I feel caught between two ‘camps’ of medical opinion. Those who will let you go lower and those who won’t. I think mine is a won’t unfortunately. It’s so frustrating. I’ve been hyper before due to over-medication and I know I’m no where near that.

diogenes profile image
diogenesRemembering in reply toMissGrace

I'm afraid I would say to him that if his unsupported opinion overrides demonstrable fact, he should look to his ethics (and one's fitness to practice)..

MissGrace profile image
MissGrace in reply todiogenes

I could try it, but he’s written books on the subject - lol. Thanks so much for your replies. I will do my best to challenge him and see how it goes. I see him a week today. I’ll try not to lose my temper!

diogenes profile image
diogenesRemembering in reply toMissGrace

Poor chap! To think his books are now so much waste paper!

Marz profile image
Marz in reply toMissGrace

healthunlocked.com/user/dio...

if you click onto the above link you can read more about diogenes - an Independant Analyst - involved in thyroid research. They have produced an e-book - which contains the most up-to-date research they have completed. Again in the link above. Hope you find the info useful :-)

MissGrace profile image
MissGrace in reply toMarz

Thank you. There is no doubt that so many people on here know more than the medics.

SlowDragon profile image
SlowDragonAdministrator

Do you have Hashimoto's also called autoimmune thyroid disease?

Are you on strictly gluten free diet

How are your vitamin levels ?

Add Vitamin D, folate, ferritin and B12 results and ranges if you have them

Getting vitamins optimal can help reduce symptoms and sometimes raise TSH too so that it's easier to get dose increase

But if on T3, TSH is almost always suppressed

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