Thybon Henning 20: Hi I have been getting my T... - Thyroid UK

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Thybon Henning 20

jand123 profile image
39 Replies

Hi

I have been getting my T3 on prescription from an Irish doctor, the Irish pharmacy will supply it.

I relocated to the UK and they would not provide it, so I got it from Germany for about £30 (including import duty) for 100 tablets. I approached Roseway Labs and they are charging £60 for 100 tablets! Why? Double!

Can anyone tell me where I can order it at a reasonable price? As a pensioner, I find it crazy and worry about future affordability!

Thanks

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jand123
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39 Replies
Jaydee1507 profile image
Jaydee1507Administrator

Thybon Henning is indeed cheaper in Germany, so if you have a way of buying it from there then thats your cheapest source.

Otherwise the Roseway price is about right for buying it in the UK and still only works out at 60p per tablet which isnt terrible.

Duties probably push the price up as it is a German import.

jand123 profile image
jand123 in reply toJaydee1507

I have included the duty in the £30, it’s actually more like £23. I also take 3 a day, so it’s £1.80 a day. Just as a pensioner now I am trying to work out a cheaper way for the future. I don’t think I can continue getting my Irish doctor to prescribe for Germany, well also I got it in Ireland.

lola1956 profile image
lola1956 in reply tojand123

I agree that it’s expensive if on a pension , I’m also on three a day , I hope you can sort it out I’m unfortunately struggling now

jand123 profile image
jand123 in reply tolola1956

I checked the price with Roseway and asked why double the EU price, they can’t give me an answer. Even with duty and a bit of profit shouldn’t be that much, 100 % markup

lola1956 profile image
lola1956 in reply tojand123

I know it’s not fair but to them IT’s business

jand123 profile image
jand123 in reply tolola1956

Exploitation! We need government to become better informed! Other countries are more advanced obviously!

lola1956 profile image
lola1956 in reply tojand123

This has been going on for many years and governments and big pharma are usually in each other’s pockets

jand123 profile image
jand123 in reply tolola1956

Yes of course they are!

jand123 profile image
jand123 in reply tojand123

I might check out the current health minister!

helvella profile image
helvellaAdministrator in reply toJaydee1507

There is no duty on (most) medicine imports.

There is VAT. There is a charge for customs clearance. There are other costs for anyone actually importing (postage, paperwork for businesses, etc.).

jand123 profile image
jand123 in reply tohelvella

I queried it the first time and they refunded it, the next time they refused the refund

SlowDragon profile image
SlowDragonAdministrator

Thybon Henning is the cheapest option and since Brexit it has to be via U.K. pharmacy

U.K. T3 is much more expensive

Current prices here

healthunlocked.com/thyroidu...

Schilddruse profile image
Schilddruse

I don't understand how you could have ordered it from Germany? Am I missing something or couldn't you just keep doing that?

McPammy profile image
McPammy in reply toSchilddruse

EU will accept and Irish Drs prescription but not UK since Brexit. I use to get my Thybon from Germany but now have to get it from UK too at double the price of Germany.

jand123 profile image
jand123 in reply toSchilddruse

I was living in Ireland till recently, eu, I got it at pharmacy in Ireland and my Irish doctor help me here to get from Germany, but I can’t stay with him indefinitely

Schilddruse profile image
Schilddruse

Oh right, thanks for clarifying. Unfortunately, I've no advice on how to get Thybon in the UK any cheaper than Smartway/Roseway are offering. Sorry.

elkewilliams profile image
elkewilliams

While we were still in the EU I used to send my prescription ( live in Scotland) Bennewitz Parmacy in Germany but they could no longer accept UK prescription after we left.

The price was around £23 and you can look it up on their website.

Search for Henning Thybon and it will come up. Website is

bennewitz.com

Good luck!

jand123 profile image
jand123 in reply toelkewilliams

Hi Elkewilliams, yes, it is still £23 plus a bit of customs when it arrives, I got my last 6 months from Parcelmed. I can't keep my Irish doctor now. The Irish pharmacy would stock it as well.

RedApple profile image
RedAppleAdministrator

jand123 ' I approached Roseway Labs and they are charging £60 for 100 tablets! Why? Double!'

You are buying through a 'middle man', which typically doubles the price for anything. Staff at Roseway have to be paid, import duties have to be paid, and the business has to make a profit in order to exist.

jand123 profile image
jand123 in reply toRedApple

Red Apple I did mention that just now. With import duty it’s about £30. So 100% markup on top of consulting fees.? I note even in house compounds are not cheap. Welcome back to the UK 😂

RedApple profile image
RedAppleAdministrator in reply tojand123

Roseway is a private company, not part of the NHS, so you are effectively paying the price of 'private treatment' which is always massively more. The alternative route is to go via an NHS GP, which would mean you get your thyroid medications completely free. (That would typically be a different brand of T3 though).

jand123 profile image
jand123 in reply toRedApple

In Dorset they won’t consider anything other than the T4 , we called in Ireland Eltroxin or Lith. Sadly

tattybogle profile image
tattybogle in reply tojand123

linking TaraJR so she will see this post. She is looking for people who have been refused T3 on NHS in the last year... don't know if this applies to you or not .

jand123 profile image
jand123 in reply totattybogle

Yes refused everything I take 😂. A scary thought getting to 90 and still paying to stay alive! My mother is 95 and wonders why all her children are sicker than her 🤣

lola1956 profile image
lola1956 in reply totattybogle

I’ve been refused many times from nhs endocrinologist, they want me to take predominantly levothyroxine plus 5 mg t3 I can’t tolerate levothyroxine it makes me really unwell and very cold fat and stay in bed sleeping all day , still I’ve got nothing! The nhs say it’s all your getting take it or leave it , I thought as years go by I would be helped by nhs as t3 became more known about and accepted but if anything it’s worse now ! I don’t know what i will do

jand123 profile image
jand123 in reply tolola1956

I know it’s dreadful!

TaraJR profile image
TaraJR in reply tojand123

I'm so sorry to read this. This is Dorset's formulary which says T3 is not to be given to new patients. What on earth is the difference between new patients and existing patients? I'm trying to avoid being rude. Their links are way out of date and RMOC guidance is obsolete. You could challenge them on the fact that they are NOT following national guidance. If you're on Facebook, join us in ITT Improve Thyroid Treatment. We have some useful documents in our files that may help you.

dorsetformulary.nhs.uk/chap...

jand123 profile image
jand123 in reply toTaraJR

I am sure old patients are dying, why wouldn't they help new patients, surely that is not within the law, to help some and not others?

RobinAnn profile image
RobinAnn

I live in Germany and I really feel for all of you struggling since Brexit for thybon.

Couple of quick thoughts:

Is there a Dutch or Belgium pharmacy that can also supply thybon (yes, I know thybon is German made). I know the added costs are because of tariffs the UK is adding but might there be different tariffs coming from another country. I'm trying to ship smt to Germany from UK but will first try shipping to the Netherlands because Germany customs- they are total hard asses.

Another thought: I also take thybon, 60 mcg in one dose. I find it sooo much easier to get one pack of thybon 20 + 1 pack thybon 100 and take half of each for a total of 60 mcg a day. This lasts me 200 days. If I instead only had thybon 20 @ 3 pills a day is also 60 mcg but that would last me maybe a little over a month. Hope that made sense.

So do you have an option to get thybon 20 and/ or thybon 100?

jand123 profile image
jand123 in reply toRobinAnn

Ok I see your point re the half of a 100 and half 20, good idea! I got it in a pharmacy in Ireland and not much more than Germany in cost. I got Thybon for 6 months at a time when I came back to the Uk from my Irish Doc, but then I have to pay him for that privilege! Nothing free in Ireland! Anyway 600 tablets cost me €156, about £135 pound plus duty of £40=£ 175 for 600, Roseways is £120 for 200. So duty is paid, we need to storm parliament in the UK. It’s enough. I looked at thyroid UK. Quite old postings about campaigning. Though in Germany you are sorted, that’s great 😀

RobinAnn profile image
RobinAnn in reply tojand123

Germany has a health care system that is crumbling pretty rapidly atm. And oddly, endos seem to be extremely anti t3 monotherapy. It's a constant fight. Hard to believe that Germany makes thybon.

So the grass is not greener - just a different shade of brown.

jand123 profile image
jand123 in reply toRobinAnn

I have been away from the UK for 40 years and always paid for everything, except hospitals, only because we paid medical insurance. I had thought coming home would help a little with the NHS, but it’s costing more 😂

helvella profile image
helvellaAdministrator in reply toRobinAnn

The costs are not tariff-based.

They are the fees for customs clearance, VAT, postage, etc.

RobinAnn profile image
RobinAnn

How frustrating. I can't imagine going home - I'm American.

jand123 profile image
jand123 in reply toRobinAnn

Isn't it easier in the USA? I used to buy WP Throid from there before it was withdrawn

RobinAnn profile image
RobinAnn in reply tojand123

No idea. I haven't lived in USA since 1994 - before I even knew what a thyroid was😂

Regenallotment profile image
RegenallotmentAmbassador

Wow I had no idea it was £30 from the EU, I pay the £60!

I have no answers, did the German pharmacy stop sending to the UK?

jand123 profile image
jand123 in reply toRegenallotment

They didn’t stop sending here but I was needing to pay my Irish doctor for consultations just to get meds. I have heard once the uk is happy you can just keep buying. I will see!

helvella profile image
helvellaAdministrator in reply toRegenallotment

The problem is that UK prescriptions are no longer recognised anywhere else! They used to be valid within the EU (plus a few) but no longer.

(Being valid didn't mean they were always accepted. A combination of the country and the pharmacy limited real world acceptance. And commercial issues mean some simply don't want to be involved.)

Therefore we need to go through a UK supplier and pay their price. Or somehow get an EU prescription. :-)

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