Thybon Henning 20

[jand123]

Hi

I have been getting my T3 on prescription from an Irish doctor, the Irish pharmacy will supply it.

I relocated to the UK and they would not provide it, so I got it from Germany for about £30 (including import duty) for 100 tablets. I approached Roseway Labs and they are charging £60 for 100 tablets! Why? Double!

Can anyone tell me where I can order it at a reasonable price? As a pensioner, I find it crazy and worry about future affordability!

Thanks

[Jaydee1507 Administrator]

Thybon Henning is indeed cheaper in Germany, so if you have a way of buying it from there then thats your cheapest source.

Otherwise the Roseway price is about right for buying it in the UK and still only works out at 60p per tablet which isnt terrible.

Duties probably push the price up as it is a German import.

[jand123 in reply to Jaydee1507]

I have included the duty in the £30, it’s actually more like £23. I also take 3 a day, so it’s £1.80 a day. Just as a pensioner now I am trying to work out a cheaper way for the future. I don’t think I can continue getting my Irish doctor to prescribe for Germany, well also I got it in Ireland.

[lola1956 in reply to jand123]

I agree that it’s expensive if on a pension , I’m also on three a day , I hope you can sort it out I’m unfortunately struggling now

[jand123 in reply to lola1956]

I checked the price with Roseway and asked why double the EU price, they can’t give me an answer. Even with duty and a bit of profit shouldn’t be that much, 100 % markup

[lola1956 in reply to jand123]

I know it’s not fair but to them IT’s business

[jand123 in reply to lola1956]

Exploitation! We need government to become better informed! Other countries are more advanced obviously!

[lola1956 in reply to jand123]

This has been going on for many years and governments and big pharma are usually in each other’s pockets

[jand123 in reply to lola1956]

Yes of course they are!

[jand123 in reply to jand123]

I might check out the current health minister!

[helvella Administrator Thyroid UK in reply to Jaydee1507]

There is no duty on (most) medicine imports.

There is VAT. There is a charge for customs clearance. There are other costs for anyone actually importing (postage, paperwork for businesses, etc.).

[jand123 in reply to helvella]

I queried it the first time and they refunded it, the next time they refused the refund

[SlowDragon Administrator]

Thybon Henning is the cheapest option and since Brexit it has to be via U.K. pharmacy

U.K. T3 is much more expensive

Current prices here

healthunlocked.com/thyroidu...

[Schilddruse]

I don't understand how you could have ordered it from Germany? Am I missing something or couldn't you just keep doing that?

[McPammy in reply to Schilddruse]

EU will accept and Irish Drs prescription but not UK since Brexit. I use to get my Thybon from Germany but now have to get it from UK too at double the price of Germany.

[jand123 in reply to Schilddruse]

I was living in Ireland till recently, eu, I got it at pharmacy in Ireland and my Irish doctor help me here to get from Germany, but I can’t stay with him indefinitely

[Schilddruse]

Oh right, thanks for clarifying. Unfortunately, I've no advice on how to get Thybon in the UK any cheaper than Smartway/Roseway are offering. Sorry.

[elkewilliams]

While we were still in the EU I used to send my prescription ( live in Scotland) Bennewitz Parmacy in Germany but they could no longer accept UK prescription after we left.

The price was around £23 and you can look it up on their website.

Search for Henning Thybon and it will come up. Website is

bennewitz.com

Good luck!

[jand123 in reply to elkewilliams]

Hi Elkewilliams, yes, it is still £23 plus a bit of customs when it arrives, I got my last 6 months from Parcelmed. I can't keep my Irish doctor now. The Irish pharmacy would stock it as well.

[RedApple Administrator]

jand123 ' I approached Roseway Labs and they are charging £60 for 100 tablets! Why? Double!'

You are buying through a 'middle man', which typically doubles the price for anything. Staff at Roseway have to be paid, import duties have to be paid, and the business has to make a profit in order to exist.

[jand123 in reply to RedApple]

Red Apple I did mention that just now. With import duty it’s about £30. So 100% markup on top of consulting fees.? I note even in house compounds are not cheap. Welcome back to the UK 😂

[RedApple Administrator in reply to jand123]

Roseway is a private company, not part of the NHS, so you are effectively paying the price of 'private treatment' which is always massively more. The alternative route is to go via an NHS GP, which would mean you get your thyroid medications completely free. (That would typically be a different brand of T3 though).

[jand123 in reply to RedApple]

In Dorset they won’t consider anything other than the T4 , we called in Ireland Eltroxin or Lith. Sadly

[tattybogle in reply to jand123]

linking TaraJR so she will see this post. She is looking for people who have been refused T3 on NHS in the last year... don't know if this applies to you or not .

[jand123 in reply to tattybogle]

Yes refused everything I take 😂. A scary thought getting to 90 and still paying to stay alive! My mother is 95 and wonders why all her children are sicker than her 🤣

[TaraJR in reply to jand123]

I'm so sorry to read this. This is Dorset's formulary which says T3 is not to be given to new patients. What on earth is the difference between new patients and existing patients? I'm trying to avoid being rude. Their links are way out of date and RMOC guidance is obsolete. You could challenge them on the fact that they are NOT following national guidance. If you're on Facebook, join us in ITT Improve Thyroid Treatment. We have some useful documents in our files that may help you.

dorsetformulary.nhs.uk/chap...

[RobinAnn]

I live in Germany and I really feel for all of you struggling since Brexit for thybon.

Couple of quick thoughts:

Is there a Dutch or Belgium pharmacy that can also supply thybon (yes, I know thybon is German made). I know the added costs are because of tariffs the UK is adding but might there be different tariffs coming from another country. I'm trying to ship smt to Germany from UK but will first try shipping to the Netherlands because Germany customs- they are total hard asses.

Another thought: I also take thybon, 60 mcg in one dose. I find it sooo much easier to get one pack of thybon 20 + 1 pack thybon 100 and take half of each for a total of 60 mcg a day. This lasts me 200 days. If I instead only had thybon 20 @ 3 pills a day is also 60 mcg but that would last me maybe a little over a month. Hope that made sense.

So do you have an option to get thybon 20 and/ or thybon 100?

[jand123 in reply to RobinAnn]

Ok I see your point re the half of a 100 and half 20, good idea! I got it in a pharmacy in Ireland and not much more than Germany in cost. I got Thybon for 6 months at a time when I came back to the Uk from my Irish Doc, but then I have to pay him for that privilege! Nothing free in Ireland! Anyway 600 tablets cost me €156, about £135 pound plus duty of £40=£ 175 for 600, Roseways is £120 for 200. So duty is paid, we need to storm parliament in the UK. It’s enough. I looked at thyroid UK. Quite old postings about campaigning. Though in Germany you are sorted, that’s great 😀

[RobinAnn in reply to jand123]

Germany has a health care system that is crumbling pretty rapidly atm. And oddly, endos seem to be extremely anti t3 monotherapy. It's a constant fight. Hard to believe that Germany makes thybon.

So the grass is not greener - just a different shade of brown.

[jand123 in reply to RobinAnn]

I have been away from the UK for 40 years and always paid for everything, except hospitals, only because we paid medical insurance. I had thought coming home would help a little with the NHS, but it’s costing more 😂

[helvella Administrator Thyroid UK in reply to RobinAnn]

The costs are not tariff-based.

They are the fees for customs clearance, VAT, postage, etc.

[RobinAnn]

How frustrating. I can't imagine going home - I'm American.