Thybon Henning

[Lizzigill]

I am moving from Warwickshire where I can source T3 Thybon Henning Liothyronine to the Sussex Hampshire border. Does anyone know of a chemist that supplies or could source it for me please?😊

[SlowDragon Administrator]

Is this as private prescription or NHS “special”

[Lizzigill in reply to SlowDragon]

NHS prescription

[helvella Administrator Thyroid UK]

If you are happy with your current pharmacy, can they not continue to obtain and dispense it for you?

This is just a suggestion as it is so easy to end up assuming you would have to switch pharmacy.

[SlowDragon Administrator in reply to helvella]

Pharmacies are not allowed to send medication through post

[helvella Administrator Thyroid UK in reply to SlowDragon]

Echo say:

Flexible

We can deliver to any UK address via Royal Mail.

echo.co.uk/delivery

[SlowDragon Administrator in reply to helvella]

I think it requires a special license

A typical small pharmacy can not

[BrynGlas in reply to SlowDragon]

My chemist here in sunny Wales has agreed to post me my medication if I have to return to Stoke because of my mother's health again this winter. I didn't think there was any problem with posting it.

I am thinking of going sooner rather than later as well if the Covid problem continues to escalate.

[crimple in reply to SlowDragon]

I have my NHS prescription for T3 sent 1St Class every time. It is a small independent pharmacy as far as I know

[SlowDragon Administrator in reply to crimple]

Interesting

[Lizzigill in reply to helvella]

They won't post it out to me 😟

[Hurtlocker]

Thybon Hennjng liothyronine is v.expensive to buy in U K . Averaging between £400 to £ 600 oer month... get it direct from Thybon on Germany...on website...but you need a very precise private prescription from your doctor...good luck..

[bellk]

I buy mine from Germany, much cheaper, with private prescription from my GP.

[SlowDragon Administrator in reply to bellk]

Are you aware this option may cease Jan 1st with Brexit .......make sure to pre order as much as possible

Hurtlocker

[helvella Administrator Thyroid UK in reply to SlowDragon]

What is worse, it might cease before then. I suggest end of October could be the first deadline - if not then, a variety of other dates between now and end of year.

[wellness1 in reply to helvella]

I realise there's a great deal of uncertainty over this, but is there any basis for your suggestion that end of October could be the first deadline? I'm intrigued also by your comment below that implementation could vary pharmacy to pharmacy.

[helvella Administrator Thyroid UK in reply to wellness1]

I have read that at least one pharmacy has decided no longer to supply B12 ampoules to those in the UK. Technically, that is different because it is a non-prescription medicine in Germany.

I do not believe it is mandatory for a German pharmacy to recognise a UK prescription for the purposes of mail order/online supply.

With the various dates being discussed (end of September, 15th October, 31st October and many others up to 31st December), if I were a German pharmacy, I would stop supplying UK patients well ahead of that final deadline.

I have not yet managed to find a single place which states the mutual prescription recognition is even being discussed - let alone agreed.

Without a deal, it appears to be automatic that this recognition will terminate. If no-deal is decided at the end of October, I suspect that will see German pharmacies withdrawing.

However, I know next to nothing about German law. Is it possible they could decide to supply regardless?

Of course, I could be wrong. Totally.

[wellness1 in reply to helvella]

Agreed, no chance the arrangement continues post-Brexit. Thanks for sharing your thoughts on possible scenarios.

[bellk]

I know, I have been debating with myself when to get a new script and order more. Early december at latest. I have 5 months left, the packets I got last January(in case of problems at end Feb) have a useby date of July21 (so 18 months after I bought them). If the next batch I buy have as long a shelf life I would be ok buying in October but I think I need to email the pharmacy and ask. Have either of you heard anything concrete on the subject of whether EU pharmacies will be able to accept British scripts in the future? I know someone has mentioned before it may be impossible. I suppose, as with everything else, nothing is clear.

[helvella Administrator Thyroid UK in reply to bellk]

Have only just seen your response. (You replied at the end of the thread, not directly to my reply - so I did not get alerted. )

I wouldn't get too worried about expiry dates. It is obviously preferable to have as long as possible, but liothyronine doesn't suddenly deteriorate, just very slowly reduces in potency.

My view is I can't see the slightest possibility of continuing to be able to purchase from Germany. The only question being exactly when the decision to stop will be made. And that might vary from one pharmacy to another.

I have previously suggested that in order for mutual recognition to continue, first there has to be agreement that it should continue. Second, the pharmacies need access to whatever data they use to verify prescriptions. This might be a sticking point even if recognition were agreed.

[bellk in reply to helvella]

Thank you. I will request another script. My GP has been cooperative so far, as she should, given how much money I save her a year. And time to write to my MP again, explaining how unreasonable it would be for me to have to visit a EU doctor to get a script(if they were even willing to give me one as I am on a high dose).