Im still taking 75mcg Levothyroxine, I weigh 62.5 kg and my test was taken early morning with no levo for 24 hrs previously and no breakfast. I still haven’t been able to get a 25mg rise in prescription as advised on this wonderful site.
I am still achey and the practice nurse who did my med review said all was normal with my results which I showed to you last on here. I did feel a lot better after getting prescribed Ferritin. It took my ferritin up from 31 to 50…. I want to get it up closer to the 80 figure. I asked for T3 to be done and it was on the blood sample paperwork but it obviously wasn’t done. Thankyou…
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PamBow
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How much leeway have you within your current prescription to perhaps add a little extra? You probably don't need as much as 25mcg extra a day but if you could add a little more over the week you might find your sweet spot.... obviously this is assuming you are converting well but until you get a full thyroid panel done you won't know but every little helps
Sometimes it just needs an early repeat to give you some wiggle room... 😉
You're likely to struggle getting an FT3 run on the NHS, its rare for them to do it and probably a post code lottery. Better to buy your own test and then you get the results you need guaranteed.
See link for companies offering private blood tests & discount codes, some offer a blood draw service at an extra cost. thyroiduk.org/testing/priva...
There is also a new company offering walk in& mail order blood tests in London, Kent, Sussex & Surrey areas. Check to see if there is a blood test company near you. onedaytests.com/products/ul...
Only do private tests on a Monday or Tuesday to avoid postal delays.
Contact GP rather than nurse and ask for a trial increase.
Keep going back and asking for a trial increase, dont give up.
Have you tested B12, folate & D3 also?
Increasing iron rich foods in your diet can really improve ferritin - red meat, chicken leiver pate a few times a week.
Concur with Jaydee here: I had some NHS bloods done last month, checked that T3 had been added to the request notes, lab failed to read the T3. And I'm on a T3 trial so this was the one reason for actually having the test! Doc was frustrated, I was frustrated. Went for private bloods in the end rather than go back as suggested and have lab knock it back again.
This has happened three times so far on my thyroid journey. NHS labs seem to do what they like randomly.
Hi, Sorry to hear Silver Savvy…….. I can remember a few years ago…just before Covid lockdown I used Medichecks and they were great. There doctor checked my results and going by them stated I may have a converting problem…. My health center doctor wouldn’t even contemplate “ Private Blood Test Results”….. does anyone know why.?.
Because they were telling them something they don't want to hear. Like you're a poor converter and need T3....which they may not be able to prescribe in your post code.
My county has a blanket no prescribe policy without permission from NHS endo...for which one might be waiting two years, apparently. The counties either side of us have no such ban.....the randomness is infuriating.
Anyway, you could try seeing another doc in the practice (who has some willingness to fight for you) or take advice from more seasoned heads on here than mine
No other medication or supplements at same as Levothyroxine, leave at least 2 hour gap.
Some like iron, calcium, magnesium, HRT, omeprazole or vitamin D should be four hours away
(Time gap doesn't apply to Vitamin D mouth spray)
If you normally take levothyroxine at bedtime/in night ...adjust timings as follows prior to blood test
If testing Monday morning, delay Saturday evening dose levothyroxine until Sunday morning. Delay Sunday evening dose levothyroxine until after blood test on Monday morning. Take Monday evening dose levothyroxine as per normal
Take these guidelines with you to next GP appointment
Guidelines of dose Levo by weight
approx how much do you weigh in kilo
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or somewhere near full replacement dose (typically 1.6mcg levothyroxine per kilo of your weight per day)
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
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