Intro and T3 query: I was diagnosed hypothyroid... - Thyroid UK

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Intro and T3 query

Debyyy123 profile image
12 Replies

I was diagnosed hypothyroid about 20 years ago with a TSH >100 . I've never felt well. Crushing tiredness and brain fog. A gp this week suggested antidepressants and this has made me quite angry. I was on them for years. She said anxiety causes tiredness. Hmm. It's the other way round.

Am getting Cortisol testing. Also waiting for results for thyroid and Fe, B12, D etc

I want to change my medication too, so asking could someone PM me with a supplier for T3, thanks.

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Debyyy123 profile image
Debyyy123
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12 Replies

They do love to chuck anti depressants at us!! Can I ask why you're trying to source T3? Are you not converting very well?.When you have your results, post them on here and one of the moderators will.look at them for you. It could be your not on a high enough dose of Levo (assuming you're taking this?) What dose are you on?

Debyyy123 profile image
Debyyy123 in reply to Dahliasanddaisies

Yes, I do need to wait for test results. When I looked into it in the past I wasn't converting well, and added T3. But didn't help. So I gave up. Am on 150mg levo. Thanks.

I was having this discussion on another forum about CFS/ ME. Doctors always assume that antidepressants are the answer to everything, or they just hope you'll shut up and go away. What they fail to appreciate and which I have pointed out is that when you have a chronic condition anxiety, depression, low mood are in response to having it.

They arent the cause. I defy anyone at all to be constantly cheerful and upbeat about feeling crap all the time, especially when you were previously in good health. In my view antidepressants are dished out far too often and the evidence that they actually help is quite limited. Plus they can have very detrimental side effects.

SlowDragon profile image
SlowDragonAdministrator

Essential to also test vitamin D, folate, ferritin and B12

What vitamin supplements are you taking

Is your hypothyroidism autoimmune

Lower vitamin levels more common as we get older

For good conversion of Ft4 (levothyroxine) to Ft3 (active hormone) we must maintain GOOD vitamin levels

What vitamin supplements are you taking

Also VERY important to test TSH, Ft4 and Ft3 together

What is reason for your hypothyroidism

Autoimmune?

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

If/when on T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Post all about what time of day to test

healthunlocked.com/thyroidu...

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Debyyy123 profile image
Debyyy123 in reply to SlowDragon

Thank you for your replies. Am waiting for results for D, folate, ferritin and B12.

I'm not taking any supplements. Except a few days ago started algae oil hoping it'll help with brain fog.

Yes, the gp only did TSH and FT4 so will see what that says, then get TSH, FT4, T3 and RT3.

Yes, autoimmume. Only realized as I got the tests done, many years ago.

Haven't yet ordered the cortisol test. In the past it was baselined, then improved a bit. But again, that was a long time ago.

Will post again with results.

SlowDragon profile image
SlowDragonAdministrator in reply to Debyyy123

So as cause is autoimmune (hashimoto’s)

Hashimoto's frequently affects the gut and leads to low stomach acid and then low vitamin levels

Low vitamin levels affect Thyroid hormone working

BEFORE considering adding small doses of T3 alongside we need to get all four vitamins to GOOD Levels

Vitamin D at least over 80nmol and many find it better to maintain vitamin D between 100-125nmol

Active B12 at least over 70

Serum B12 at least over 500

Folate towards top of range

Ferritin at least over 70

If ferritin under 50, get full iron panel test

Poor gut function with Hashimoto’s can lead leaky gut (literally holes in gut wall) this can cause food intolerances.

Most common by far is gluten.

Dairy is second most common.

A trial of strictly gluten free diet is always worth doing

Only 5% of Hashimoto’s patients test positive for coeliac but a further 81% of Hashimoto’s patients who try gluten free diet find noticeable or significant improvement or find it’s essential

A strictly gluten free diet helps or is essential due to gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)

Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and may slowly lower TPO antibodies

If not had coeliac test

While still eating high gluten diet ask GP for coeliac blood test first as per NICE Guidelines

nice.org.uk/guidance/ng20/c...

Or buy a test online, about £20

Assuming test is negative you can immediately go on strictly gluten free diet 

(If test is positive you will need to remain on high gluten diet until endoscopy, maximum 6 weeks wait officially) 

Trying gluten free diet for 3-6 months. If no noticeable improvement then reintroduce gluten and see if symptoms get worse

chriskresser.com/the-gluten...

amymyersmd.com/2018/04/3-re...

thyroidpharmacist.com/artic...

drknews.com/changing-your-d...

Non Coeliac Gluten sensitivity (NCGS) and autoimmune disease

pubmed.ncbi.nlm.nih.gov/296...

The predominance of Hashimoto thyroiditis represents an interesting finding, since it has been indirectly confirmed by an Italian study, showing that autoimmune thyroid disease is a risk factor for the evolution towards NCGS in a group of patients with minimal duodenal inflammation. On these bases, an autoimmune stigma in NCGS is strongly supported

nuclmed.gr/wp/wp-content/up...

In summary, whereas it is not yet clear whether a gluten free diet can prevent autoimmune diseases, it is worth mentioning that HT patients with or without CD benefit from a diet low in gluten as far as the progression and the potential disease complications are concerned

restartmed.com/hashimotos-g...

Despite the fact that 5-10% of patients have Celiac disease, in my experience and in the experience of many other physicians, at least 80% + of patients with Hashimoto's who go gluten-free notice a reduction in their symptoms almost immediately.

Similarly few months later consider trying dairy free too. Approx 50-60% find dairy free beneficial

With loads of vegan dairy alternatives these days it’s not as difficult as in the past

Post discussing gluten

healthunlocked.com/thyroidu...

Ideally try gluten free/dairy free first ….before looking at adding T3

Fine tuning levothyroxine dose, always getting best brand of levothyroxine that suits you, optimum vitamin levels and GF/DF will all often significantly improve conversion rate of Ft4 (levothyroxine) to Ft3 (active hormone)

Debyyy123 profile image
Debyyy123 in reply to SlowDragon

Thank you. I'll print this off to refer to.

Debyyy123 profile image
Debyyy123 in reply to SlowDragon

Still waiting for nhs thyroid test but got these results.Vit D 67.1

B12 400

Folate 9.9 (range 3.9-20)

Ferritin 47

They don't seem terrible, but from your post are a bit low. Seems I should get some supplements?

arTistapple profile image
arTistapple

Algae oil? That’s a funny one to start with. Check if it’s got an iodine content. If so, I would avoid until you get other more important Vits and minerals in place. Iodine far from suits many hypothyroids.

Debyyy123 profile image
Debyyy123 in reply to arTistapple

Thanks. Checked. No iodine. Its omega 3 vegan version.

Suzi-B profile image
Suzi-B

hi, i looked on line and got my T3 from turkey i can’t remember supplier as a yr ago i was reali ill and stopped al my meds apart from my pain meds for 3 months, yes stupid of me reali, but in the long run best thing i did, because when i restarted my levothyroxine starting dose 25mg or mcg which ever one it is, i increased gradually to 175 dose and ive been great ever since, no need to take T3 any more as stopping and restarting seemed to of kicked my body into absorbing the T4 and turning it into T3

tattybogle profile image
tattybogle in reply to Suzi-B

just adding a link to this post as your reply mentions looking online for T3 sources, anyone considering this should read this post carefully :

healthunlocked.com/thyroidu... purchasing-thyroid-medication-without-prescription-please-be-wary-repost

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