T3 sourcing

[Thyroidcrap]

I have been taking levothyroxine for a number of years but my symptoms are not improving. The depression and anxiety is becoming unbearable, my skin and hair loss is dreadful and the tiredness and brain fog is affecting my work. I've tried going to the GP so many times but they are not listening and say I should be fine as taking levothyroxine. I feel trapped being this person I'm not. I want to get back to being me.

I would be grateful for any recommendations for sourcing T3.

I believe you may need to PM with recommendations but any gratefully received.

[TiggerMe]

Yeah that's how it went for me 😩

Have you requested an Endo referral? How are your latest results looking?

Guessing you have checked your vits and mins levels too?

[Thyroidcrap in reply to TiggerMe]

Having more bloods done tomorrow. Also checking vitamins and minerals too. I already take vitamin D as the was low last time I had my bloods taken.I have requested a referral and I've been told there is no need as they are treating me with T4!!!

[TiggerMe in reply to Thyroidcrap]

Once you are armed with T3/T4 results you can insist... I'm not sure they can refuse you it's up to the Endo? With my surgery I notice you can actually fill in an online referral which would be good as you can fill out all of your symptoms and it will go on your record

[SlowDragon Administrator in reply to Thyroidcrap]

Hope test is early morning, ideally just before 9am and last dose levothyroxine 24 hours before test

come back with new post once you get results

[Jaydee1507 Administrator]

Welcome to the group. It helps people to know where you're at if you fill in your profile.

What were your last blood results with ranges?

Have you had key vitamins tested lately - ferritin, folate, B12 & D3? If these are not OPTIMAL we cannot use our thyroid hormone properly.

Do you have Hashimoto's?

[Thyroidcrap in reply to Jaydee1507]

I'm having more bloods done tomorrow. Vitamins etc are also being tested. I don't know if I have Hashimoto's!

[Jaydee1507 Administrator in reply to Thyroidcrap]

Ask GP to test thyroid antibodies.

[SlowDragon Administrator]

welcome to the forum

Please add most recent thyroid and vitamin results

How much levothyroxine are you currently taking

Do you always get same brand at each prescription

Important to know what Ft4 and Ft3 results are before considering adding T3

What vitamin supplements are you taking

Important to fine tune levothyroxine and get all four vitamins tested and at GOOD levels before considering adding T3

Do you know if your hypothyroidism is caused by autoimmune thyroid disease, also called Hashimoto’s, usually diagnosed by high thyroid antibodies

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine

 

For full Thyroid evaluation you need TSH, FT4 and FT3 tested 

Also both TPO and TG thyroid antibodies tested at least once 

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis. 

Both are autoimmune and generally called Hashimoto’s.

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis 

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended on here that all thyroid blood tests early morning, ideally just before 9am and last dose levothyroxine 24 hours before test 

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

List of private testing options and money off codes

thyroiduk.org/getting-a-dia...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

If you can get GP to test vitamins and have already had thyroid antibodies tested then cheapest option for just TSH, FT4 and FT3

£29 (via NHS private service ) and 10% off down to £26.10 if go on thyroid uk for code

thyroiduk.org/getting-a-dia...

monitormyhealth.org.uk/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65 

(But Doesn’t include thyroid antibodies) 

monitormyhealth.org.uk/full...

10% off code here 

thyroiduk.org/getting-a-dia...

Only do private testing early Monday or Tuesday morning. 

Watch out for postal strikes, probably want to pay for guaranteed 24 hours delivery 

Link about thyroid blood tests

thyroiduk.org/getting-a-dia...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism 

thyroiduk.org/wp-content/up...

[Jefner]

please don't bank on the T3 solving those issues because they haven't for me and I have been on T3 for around 5yrs now and my anxiety and depression is much worse lately even though my T3 levels looked much better on my last bloods. Root cause of mine is obviously somewhere else which I haven't discovered yet

[Thyroidcrap in reply to Jefner]

I think it's worth a try so at least I know if it's another issue.

[editheve]

i have been doing lots of research i have sinuis issues for the last 2 years for at least 6 months of the year been on levothyozine 100 for 8 years and 125 for the last 2 years made no difference felt cold depressed etc still keep getting sinuis nose and face pain headaches and stuffy nose had this one since nov 22 had 3 rounds of ant b s still not right reaserched levo can cause sinuis issues if low well mine were ok they said. or i have grown sensitive to the levo fillers it takes a long time to get there but hopefully it is this ivd asked for tirosint which is levo without fillers waiting for my perscription may be you are not absorbing the levo properly if you get reflux or a dodgy tummy as well as constipation you may also be sensitive to the fillers hope this helps you