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Lrv44221 profile image
18 Replies

I apologize if I’m using this site wrong but I sure appreciate any help. My pcp told me i make too many thyroid hormones with only TSH test of 0.35

Went to another PCP and here are the lab results: glucose:134, TRAB:<1.00, thyroglobulin antibodies: <1,

T4f:1.0, T3F: 3.5 Same tsh

Thank goodness for your support because I don’t know what to do

I’m fatigued don’t sleep well and have gained weight

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Lrv44221 profile image
Lrv44221
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18 Replies
greygoose profile image
greygoose

Hi Lrv44221, welcome to the forum. :)

My pcp told me i make too many thyroid hormones with only TSH test of 0.35

Well, he's obviously an expert! 🤣

Sorry, I couldn't resist. In fact, he obviously doesn't know much about thyroid. He may think the TSH tells him 'everything he needs to know', but in reality, it tells him nothing. I doubt it's even below range, is it? Please, always put ranges because they vary from lab to lab.

So, what time of day was the blood draw for this test? Because TSH varies throughout the day and is highest before 9 am and lowest around lunchtime - bet he didn't know that!

Went to another PCP and here are the lab results: glucose:134, TRAB:<1.00, thyroglobulin antibodies: <1

T4f:1.0, T3F: 3.5 Same tsh

Testing TRAB with a TSH of 0.35 is a bit of a waste of time because that's the test for Graves', and if you had Graves', your TSH would be unreadable. What he should have tested were TPOab and TgAB, for Hashi's. But, can't comment on the Frees without the ranges. So, if you could add those, we might be able to help. :)

Lrv44221 profile image
Lrv44221 in reply to greygoose

Thank you I will try but not sure how to do that

Free t4 is 1.0 range.——-0.8 -2.8 ng:dl

Free t3 3.5 the range is 2.3-4.2 pg/ml

Thanks for trying to help me

The fatigue weight gain and usually cold and I live in Florida is a bit puzzling to me

Lrv44221 profile image
Lrv44221 in reply to greygoose

yes i agree they know nothing about my thyroid but of course they are the experts

Glad you agree with me

I’m hoping it’s not thyroid disease but perhaps you can help me

The fatigue and insomnia are two things that are causing me stress lol

SlowDragon profile image
SlowDragonAdministrator

Are you on replacement thyroid hormones?

If yes ….what exactly

Bloods should be retested 6-8 weeks after each dose change or brand change in levothyroxine or liothyronine or NDT

Your results look like you are perhaps taking NDT?

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

NDT or T3 ….day before test split T3 as 2 or 3 smaller doses spread through the day, with last dose approximately 8-12 hours before test

Post all about what time of day to test

healthunlocked.com/thyroidu...

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Lrv44221 profile image
Lrv44221 in reply to SlowDragon

good wed morning

Ty for trying to teach me about my thyroid

I sent my test results to grey goose and i think you also were able to see them? I am not talking anything because i don’t actually know what, if anything, is going on with my thyroid? If you don’t mind explaining to me I would appreciate it

I’m not anemic and all other blood work is in target

So what do you think 🤔?

Ty for your help in advance

Lrv

SlowDragon profile image
SlowDragonAdministrator in reply to Lrv44221

So retest early morning, ideally before 9am, and only drinking water between waking and test

Test TSH, Ft4 and Ft3 plus BOTH TPO and TG antibodies

include testing vitamin D, folate, B12 and ferritin levels

If both antibodies are low look at getting ultrasound scan of thyroid

SlowDragon profile image
SlowDragonAdministrator in reply to Lrv44221

I’m not anemic and all other blood work is in target

Can you add results

Lrv44221 profile image
Lrv44221 in reply to SlowDragon

Yes here are those results:total iron:105 range 45-160

Iron binding 359 tangy 250 -450

Ferritin 74 range 16-268

B—12 780 range 200-1100

It d 90 mg/ dc

Thanks for offering to give me some suggestions

Lrv44221 profile image
Lrv44221 in reply to Lrv44221

Oops forgot to give you the Tsh range

Mine is 0.35 the range: 0.40-4.50

Thanks so very much for helping me

I’m thinking 🤔 I don’t have a thyroid issue and am fatigued because I don’t sleep well and have lots of intrinsic stress

My husband of 40 years has cancer that has spread to bones lungs and lymph nodes

I’m trying not to feel so much stress and now this thyroid issue

The nurse practitioner who I saw for a physical is the one that told me i make too many hormones and tried to put me on a drug which I refused she told me not to come back and of course i won’t the next pcp told me she thinks I have a are form of blood cancer

So I don’t believe that and thought maybe my thyroid is too low so I appreciate any advice from anyone in here

Or perhaps it’s my stress that is causing my fatigue?

Thanks again to all of you trying to give me some guidance

:) Lrv

Lrv44221 profile image
Lrv44221 in reply to SlowDragon

Oops hers my tsh mine 0.35 range 0.40-4.50

Lrv44221 profile image
Lrv44221 in reply to SlowDragon

I’m not taking anything except my nutrients for general health I’m a nutrition specialist and have a degree in nutrition but i have no clue how to help my thyroid

I’m thinking it’s the stress in my life causing my insomnia and fatigue

So I used to walk 5k daily and I’m going to try to get out earlier and at least walk 30 minutes it’s so hot here in Florida (usually in the 90’s) now but for me at least walking 🚶‍♀️ helps me bc with my stress and may help with sleeping 😴

Thanks for answering my silly thoughts

Levels

SlowDragon profile image
SlowDragonAdministrator in reply to Lrv44221

Exactly what vitamin supplements are you taking

If you’re taking any supplements that contain iodine or kelp ……recommend you stop

Wait minimum 6-8 weeks and retest early morning

Lrv44221 profile image
Lrv44221 in reply to SlowDragon

Ok ty so much i don’t take anything with iodine since im a degreed certified nutritionist what I take is not for anything ordinary daily nutrition but what i need

I try to teach my clients why vitamin D is important

And look at me i have no idea what I need for general thyroid health besides selenium which i believe is good

Im so sorry if im a bother and i appreciate your advice and time

ForViolet profile image
ForViolet in reply to Lrv44221

The combination of heat and humidity in Florida now makes it hard to walk. I go out early to get a little cooler air, but today there was none. So, no walk for me. Easy to get heat stroke so we have to be careful. Maybe you're used to it though if you're a native Floridian.

So sorry about your husband. This is very rough. And I'm sure you want to be steady for him which is a challenge too. I can see why you value your walks especially now.

Lrv44221 profile image
Lrv44221 in reply to ForViolet

Hi violet thanks for sharing I’m from Michigan and have lived here 18 yrs, i can’t walk in this heat but i do miss walking where do you live?

ForViolet profile image
ForViolet in reply to Lrv44221

This is the first year I haven't walked every day. I'm only out for short times watering the garden. Easy to get carried away w garden work. Only here for 4+ years.

Lrv44221 profile image
Lrv44221

sounds nice to have a garden

Where do you live

yorkshiregirl4 profile image
yorkshiregirl4

Hello Lrv44221, I happened to have seen a very good Endocrinologist in Sarasota, Florida a few years ago. He was very helpful and I saw him over several months. Let me know if that location works for you and I will forward his name to you.

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