So history of Hashimoto and all the symptoms of being hypo and struggling to work!
Dr appt today to ask for endo referral. He suggested I didn’t have Hashimoto as my TSH was normal. Antibodies don’t mean you have it apparently. Tried to suggest I had fibromyalgia. Was told that the endo won’t see me as I don’t have Hashimotos as my TSH and all other bloods are normal! My anti thyroglobulin was 229.8. Been loads better since removing gluten.
Am I going mad 😡. I’m at my wits end and just want to admit defeat.
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Blister4
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I'm like you, had high antibodies and similar TSH/T4 readings. My GP was new to it all, so referred me on to an endo, because she didn't know what it meant. The endo knocked it back, because there was nothing they could do to treat me at that time, and I think even if your GP had refered you, you would have had the same response.
I feel so much better since working through Izabella Wentz's Hahimotos Protocol - antibodies back in normal ranges again, and I can function like a regular person It's not to say they won't flare, or that I won't eventually be hypo some day, but for now I feel good!
Unfortunately I was gluten free before I first had my antibodies tested, I'm sort of sad I don't know where my antibodies were before that! But gluten free seems to help 75% with Hashimotos.
Just so you're not confused by your GP, you do have Hashimotos - Hashimotos comes before the thyroid even starts to fail, it's just that GPs only test for it AFTER they've diagnosed hypo and your thyroid has gone.
I always explain it to doctors that I have antibodies, and will eventually end up hypo but my levels are "normal" for now, and they don't say another word...
They are a UK charity that can offer (usually) free appointments with doctors for a second opinion.
B12 1263 Range 160-1000
Do you supplement with B12 as I note your B12 is above range?
If you are having B12 injections or supplementing B12 due to a previous diagnosis of B12 deficiency then there is a lot of information about B12 deficiency on Pernicious Anaemia Society forum on HU.
I’ll take a look at the info thankyou and as I’m in the uk the charity link too. I’ve not heard of that charity and every opportunity is worth a try.
Thankyou x
That is a low t4. Is it t4 or ft4? I would not say this is 100% Central hypo, I have seen labs like this where someone's ft4 is low, but ft3 is high and that brings the tsh down, however, you still may not feel great! You definitely need ft3 tested.
Have you ever had a thyroid scan? I would go for one as that would most certainly confirm if you have Hashi or not, however antibodies elevated like this - it's not just slightly over ..it is true that antibodies can be mildly elevated without Hashis, but not at this level!
Of course - the surface of thyroid changes when you have Hashimotos, mine looks a bit like Swiss cheese, you can also see increased blood flows. Healthy gland is smooth and has a thyroid shape. Sometimes you can also see the gland being enlarged, with nodules or shrinking even & that's not good !
I am stunned how nobody checks it. In Poland you go to your Endo and he does it at each appointment to see how your gland is doing!
Symptoms, exhausted fatigue, no stamina, joint pain and boney nodules, dry mouth and eyes, anxiety, poor cognitive function, hoarse voice, poor sleep, pmt, weight gain. Those are what I can think off, I’m struggling to work and live a good normal life right now!
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