hyper/hypo now normal?

[Keri41]

Hi all,

I have posted previously about being diagnosed hyperthyroid and started on Carbimazole, this was stopped due to persistent neutropenia, then i swung to hypothyroid and now 7 weeks later I’ve had another blood test and everything’s normal! I feel like I’ve been on a rollercoaster ride and thrown off with little answers! I thought given my raised TPO and family history I was looking at Hashi’s but was it all just a wierd phase??? I’m still very tired so I wasn’t expecting to be told everything is now normal (don’t get me wrong I’m glad!)

Latest Bloods-

TSH 2.9 (0.38-5.33)

FT4 8.9 (7.9-14.4)

FT3 5.6 (3.8-6)

Also FBC all now normal .

Thoughts?

[greygoose]

Well, that is just typical Hashi's. Levels fluctuate all the time.

And I'm sorry to disappoint you but all is not normal now. Your TSH may be in-range, but it isn't normal. It's hypo. A 'normal' TSH (euthyroid) would be around 1.

FT4: 8.9 pmol/l (Range 7.9 - 14.4) 15.38%

FT3: 5.6 pmol/l (Range 3.8 - 6) 81.82%

And your FT4 is much too low at 15.38% through the range. Your FT3 is much higher - which is abnormal in itself - but that's what a struggling thyroid does: it makes more T3 than T4 to keep you alive. But it cannot continue to do that forever, so you should be on thyroid hormone replacement, now. Sorry.

[Hashiboy]

Hi    Keri41 hope you are feeling better. Might not be relevant to you and certainly won’t be relevant if you had long standing hyperthyroidism . But if you had a brief sudden onset hyperthyroidism you might want to explore information on a condition called sub acute thyroiditis or De Quervains thyroiditis. It causes sudden onset hyperthyroidism that lasts a short time (weeks or months) followed by a brief recovery then a crash into hypothyroidism. In many patients the hypothyroid stage is temporary and the thyroid recovers and everything goes back to normal after a few months. In a minority it leads to permanent hypothyroidism. I had this and had the same pattern you describe but for me the brief period of recovery was followed by permanent hypothyroidism. Subacute thyroiditis usually follows a viral infection or some other provocation to your immune system. If your pattern looks more like sub acute thyroiditis I’d recommend regular retesting to see if you have a stable recovery or develop permanent hypothyroidism. local NHS guidelines usually tell a GP to refer to an endocrinologist in cases of suspected sub acute thyroiditis. If your hyperthyroidism was long standing then the advice from greygoose is more helpful than mine.

[Keri41 in reply to Hashiboy]

Thank you that is helpful. This has all started since Jan and I did have Covid beginning of Dec so mayb related?

[pennyannie]

Hey there again :

These results aren't normal but then maybe you are still adjusting back from having been on the AT drug :

I thought it was confirmed that you are now dealing with Hashimoto's -

this is an thyroid auto immune disease - and you may well experience transient hyper type symptoms as this AI disease systematically attacks and destroys your thyroid - but when the ' swing swings back ' your thyroid will be further disabled and with you likely requiring thyroid hormone replacement as you become hypothyroid.

I think we have already spoken about maintaining optimal vitamins and minerals and think I remember an iron infusion and B12 injections having been instigated and SDragon have written extensively on this.

You might like to read around on the research and suggestions of Dr Izabella Wentz :

wwwthyroidpharmacist.com

[Keri41 in reply to pennyannie]

The endocrinologist I saw seemed to think could be sub acute Thyroiditis and the raised TPO was not indicative of hashi’s as can also be raised in both instances. As I don’t remember the name of the endo and they have yet to write to my GP my GP said just to put it down to a blip and I don’t need to see them again.

[pennyannie in reply to Keri41]

Well - from memory you had over range TPO antibodies which means a diagnosis of Hashimoto's thyroid Auto Immune Disease - and you may breeze along for months or years without any medication - but suggest you start reading up and maintaining those core strength vitamins and minerals for if and when another ' blip ' happens -

Food sensitivities are common issues along with poor gut function and absorption - and it might be an idea to get tested for celiac disease and gluten, dairy and wheat - while still eating your preferred foods - just so you know if these have any bearing on your overall health and well being.