ADVANZ PHARMA LIOTHYRONINE

[Cezza]

Morning since I was told in September 2023 Thybon henning is no longer available via my NHS prescription what’s happened is I have had severe symptoms since 1st trying viatris tablets was on it until January 2024 then 2nd trying Roma capsule’s until may 30th 2024 I’ve also had the same problem with Morningside 2019 & Teva 2022 don’t understand why but I have been referred to my consultant since jan 2024 currently on waiting list

My TSH 0.37 (0.27-4.2) September 2023 (thybon henning )

MY TSH 48.90 (0.27-4.2) January 2024 (viatris)

My TSH 73.10 (0.27-4.2) may 29th 2024 (Roma)

After a A & E visit I was given a prescription for mercury pharma 20mg x 2 Daily on Thursday 30th may & took it straight to pharmacy was told very clearly mercury pharma discontinued now so I contacted GP after discovering on here that it could be advanz pharma followed all the advice given & now have a new prescription for liothyronine 20mg x2 daily ADVANZ PHARMA BRAND ONLY but I’m having extreme difficulty as Pharmacies are now refusing to order for me saying not sure what comes in & not being reimbursed in full so I’ve now had no medication since Friday 31st may due to the unbearable & scary symptoms & having to stop taking it & I have no way of getting any medication am I missing something that’s happening in the pharmacy world ? I have now contacted my local MP but any advice on what to do now I would really appreciate it

Sorry if my words are muddled up as u can imagine this is causing to stress out

[FancyPants54]

Not sure of your financial situation obviously, but if you can afford it, you can buy Thybon Henning from Roseway Labs in London with a private prescription. You need to book a phone consultation with their prescribing doctor to get the prescription. She will want to review your history but you won't have any issues with that! The appointment is less than £40 I think, it was around £32 when I last had one.

It's shocking that the NHS are leaving you with ever worsening TSH and not taking your care as an emergency. There are other types of T3 available on the NHS, Morningside is one I am aware of. But Thybon Henning is a different sort of T3 chemical I think. It suited you.

[Cezza in reply to FancyPants54]

Thank u so much I will edit post as 2 other brands teva & morning side same issue looks like it hasn’t got to my thyroid at all !!! I will go straight on roseway labs now & see what I can do thanks again for taking the time & patience with my post xx

[FancyPants54 in reply to Cezza]

You are more than welcome. I've been buying my T3 supplies from Roseway for years now. Great service. No drama. It's just a shame we have to pay. And the prescribing doctor is lovely.

[Cezza in reply to FancyPants54]

Hello I’ve been in contact with Roseway labs who now are offering me to book an appointment with prescribing doctor before I book this can u confirm they can give me a prescription for thybon henning as my doctors are refusing to write script as it’s now banned here in uk thank u xx

[FancyPants54 in reply to Cezza]

It's not banned here! But now we are no longer in the EU, the NHS isn't importing it due to cost and import difficulties and the German pharmacies won't fulfil our NHS prescriptions for us because they can no longer get paid if they do so now we are not in the EU!

Roseway Labs prescribing doctor will write you a private prescription for TH and you buy it from Roseway. It's really easy. Just a shame we have to buy it. But that's the way it is if we want it. Roseway are brilliant. Great customer service and speedy delivery of the products.

[Cezza in reply to FancyPants54]

Bless ya thank u so so much I will book an appointment there now then xx

[FancyPants54 in reply to Cezza]

The doctor will write a prescription for several months at a time and the lab holds it (for me) if you don't want to buy it all upfront. I just ring up each time I need a new bottle off my prescription, pay for it and they send it. I have a Post-it on the wall to keep track of what's left on my prescription. When the prescription runs out I just call the prescribing doctor and she does the next one. Now and then she advises a new phone call booking and asks you to send in recent blood test results. It works very well.

[Cezza in reply to FancyPants54]

Thank u because of your help last few days I have an appointment online next week for thybon henning 🤗 xx

[FancyPants54 in reply to Cezza]

Excellent! I'm so glad I saw your post.

[Cezza in reply to FancyPants54]

Not half as much as me !!! 😜

[helvella]

The NHS database that lists ALL medicines says that Advanz Pharma liothyronine has NOT been discontinued.

If a product is discontinued or deleted that it is shown here within something like three days.

It is also listed in the British National Formulary. Try showing the details below to a pharmacist - the PIP code is used for them to order products.

Advanz Pharma (Mercury) - Liothyronine tablets

Marketing Authorisation Holder Advanz Manufacturer Custom Pharmaceuticals.

Dosage 20 microgram

PL 10972-0033

PIP code 113-6530

Having said that, I think that obtaining Thybon Henning via Roseway might be the best solution - and I hope you can afford that as it also seems to solve the issue into the future.

Screenshot of database entry for Advanz Pharma liothyronine

[sparkly]

If you want to cash your script in and try advanz pharma then you could ring or email Springfield pharmacy. They specialise in Thyroid medication and I use them to get my Morningside T3. As like you I was not able to get from any of my local pharmacies in the quantity I need. Yes, I believe it has something to do with pharmacy not being reimbursed full cost. They also say they are unable to specify to wholesalerwhat brand they need for customer.

We also shouldn't have to except that if we're prescribed 6 boxes of specified brand but they only have 2 in stock that you have to except whatever come in from wholesaler on next delivery even if it is a brand that makes you ill. Something is totally wrong with this system.

I've just had my script put on the spine and Springfield pharmacy have picked it up and will post medication to me. They do charge a delivery but worth it for peace of mind knowing I can get the brand I need.

Roseway labs for thybon henning seems best option.

[Cezza in reply to sparkly]

thank u taking time to read & reply I’ve joined roseway labs as we speak I will update my post when I have resolved fingers crossed

[beh1]

I’ve just picked up my regular Mercury (Advanz) prescription of liothyronine free on nhs from Boots this morning. Worth persevering.

[Cezza in reply to beh1]

Can I ask where about’s please ? X

[beh1]

Any Boots branch should be able to get it in, ‘cos they order from some central hub. Ask them to order it in for you.

[Cezza in reply to beh1]

Ok I will do but they couldn’t even order Roma liothyronine when I had to try that in January 2024 x

[helvella in reply to Cezza]

Make sure you give them the PIP code. Even if it does nothing else, it helps to demonstrate that you are in possession of some good information and they should not dismiss you.

[Cezza in reply to helvella]

Thank u i will do that moving forwards xx