Not sure why admin bloked replies on last post...... deleted last bit ... so hopefully I can get some feedback on theses results
Had enough now .... its time to bite the bullet and see a private endocrinologist.
My latest bloods are -
Tsh - 3.45 ( 0.35-5.50)
T4 - 12.60 (7.86-14.41)
Doc says I'm in range , so don't change ... still taking 75mcg levothyroxine.
I was hoping this last test would show I was out of range .... I've been suffering with heat sensitivity/ head pressure/ light headiness and extreme fatigue!!
They never seem to take my side effects into consideration when the result is within range.
Other results...
Feb
Tsh - 2.44
T4 - 11.20
Jul 23
Tsh - 3.66
T4 - 12.80
Jun 23( had a trial with no levo for 4weeks)
Tsh - 8.09 - abnormal
T4 - 10.40
Feb23
Tsh - 4.16
T4 - 11.10
I keep telling them about the symptoms I'm getting , they keep saying I'm in range .... even when I had nhs endocrinologist he basically said try different brand or go on statins.
Post requesting recommendations for Endo's are always locked to prevent any information being posted in the open group.
As thyroid patients we do need to become our own health advocates with GP’s and Endocrinologists. They get little training in how to make us feel well, instead relying on lab numbers on paper. Take some time to read up on your condition, learn and get your confidence up. This will stand you in good stead when discussing your condition and challenging things that medic say. Take printed medical papers with you evidencing what you are asking for, and also take someone along with you if you feel it would help.
You could try asking for the increase as a trial which often goes down better.
What are you supplementing with?
What are your latest results for key vitamins ferritin, folate, B12 & d3?
HashiJ 'Not sure why admin bloked replies on last post'
Jaydee1507 has briefly mentioned the reason. But, please take some time to familiarise yourself with the posting guidelines for this forum, so that you have a better understanding of how things work around here 😊 healthunlocked.com/thyroidu...
Even if we frequently start on only 50mcg, most people need to increase levothyroxine dose slowly upwards in 25mcg steps (retesting 6-8 weeks after each increase) until eventually on, or near full replacement dose
In the majority of patients 50-100 μg thyroxine can be used as the starting dose. Alterations in dose are achieved by using 25-50 μg increments and adequacy of the new dose can be confirmed by repeat measurement of TSH after 2-3 months.
The majority of patients will be clinically euthyroid with a ‘normal’ TSH and having thyroxine replacement in the range 75-150 μg/day (1.6ug/Kg on average).
The recommended approach is to titrate thyroxine therapy against the TSH concentration whilst assessing clinical well-being. The target is a serum TSH within the reference range.
……The primary target of thyroxine replacement therapy is to make the patient feel well and to achieve a serum TSH that is within the reference range. The corresponding FT4 will be within or slightly above its reference range.
The minimum period to achieve stable concentrations after a change in dose of thyroxine is two months and thyroid function tests should not normally be requested before this period has elapsed.
Some people need a bit less than guidelines, some a bit more
Graph showing median TSH in healthy population is 1-1.5
If symptoms of hypothyroidism persist despite normalisation of TSH, the dose of levothyroxine can be titrated further to place the TSH in the lower part of the reference range or even slightly below (i.e., TSH: 0.1–2.0 mU/L), but avoiding TSH < 0.1 mU/L. Use of alternate day dosing of different levothyroxine strengths may be needed to achieve this (e.g., 100 mcg for 4 days; 125 mcg for 3 days weekly).
On levothyroxine we need high enough dose levothyroxine to keep Ft4 at least over 70% through range
Always test early morning and last dose levothyroxine 24 hours before test
what vitamin supplements are you taking
When were vitamin levels last tested
Are you gluten free and/or dairy free
Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists
Ideally choose an endocrinologist to see privately initially and who also does NHS consultations
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