Feeling good

[JCMartin]

Feeling great on my new meds. Loads more energy, no constipation and my monthly cycle is back. I am pleased. Neck still swollen on the left though - booked for another scan shortly. Bit sick of Gluton free - can i re-introduce at some stage?

[HealthStarDust]

I am amazed at how fast you have been able to raise levothyroxine and now add T3! I see this was agreed by an endocrinologist. It can’t have been on the NHS?

Glad you are feeling good and thanks for sharing. Keep us updated.

[JCMartin in reply to HealthStarDust]

Not NHS. My docter said there was nothing wrong with my thyroid despite asking numerous times and wouldnt test me. The NHS Endo wouldnt see me as he said you could not rely on private tests. Ffs

[radd]

JCMartin

Previous post- ‘I am happy with my Endo. Maybe i shouldn't post on here as i seem to get told off, but i wanted to keep people updated who had helped me.’

Members including myself don’t mean to tell you off, but suggest caution and possible outcomes when similar protocols have been experienced themselves. But of course we all have different medication needs and it’s certainly great to hear you are feeling better. Do keep posting 😊

Re staying gluten free is as individual as thyroid meds 😁. I read some people manage to introduce it back once the Hashi induced heightened immune response has been calmed. However, many on this forum are still experiencing the effects of autoimmune disease and would suggest staying gluten free long term.

I practice being gluten free most of the time but will eat gluten at a friends house or restaurant if there is no other choice. It is said we can not do this as the effects can reignite those intolerances but I seem to manage fine. Only you will know how gluten makes you feel.

[posthinking01 in reply to radd]

I have just started the gluten free journey but find the food offered full of sugar and preservatives and rice/maize which makes me itch - I have now just stopped all gluten free products offered but just stay close to eating my own food gluten free vegetables meat etc. no bread/biscuits etc. - I am also lactose intolerant but thank goodness now for Lactose free milk, butter - cream which helps so much.

[radd in reply to posthinking01]

posthinking01

Yes, much cheaper too. Yellow pea pasta is clean as is flax seed bread when you have an uncontrollable yearning 😬. Other than that it's all fresh veg and a little meat for me.

[posthinking01 in reply to radd]

Agree - only gluten free I buy is gluten free pasta from Sainsburys its brilliant and my Italian husband loves it !

[TiggerMe]

Great news 👏👏🤗

It's an individual journey for all of us so the fact you can tolerate big changes when others can't is possibly down to the state of your adrenals and reasonable cortisol levels. I'm not particularly sensitive but this does mean I can tolerate more than I need which isn't good long term so I've worked my way up and back down to find my sweet spot and timings, don't be surprised if you need less after the initial flooding of the system

It's always tough giving advise that suits all so low and slow is the safest route but at the end of the day listening to your body and tweaking is needed but also a decent length of time to let things settle in and then possibly more adjustments 😏

How's your heart feeling?

[JCMartin in reply to TiggerMe]

Thanks, from just 37 bpm when i was really ill my resting heart beat is now 78. Maybe thats why i can tolerate the meds quickly, as my heart was so slow. When i had the blue dye scan i was the only patient that didnt need beater blockers first.

[TiggerMe in reply to JCMartin]

Sounds like me, my system gratefully soaked it up to start with

[JCMartin in reply to TiggerMe]

Just read your journey. I dont understand half of it but sounds tough. Glad you are feeling better. I still cant cardio and am struggling with my weight gain. Also keep getting a sore throat and the Endo has suggested steroids (i am resisting).

[TiggerMe in reply to JCMartin]

Steroids for what adrenal fatigue?

[posthinking01 in reply to JCMartin]

Hi there - regular sore throats are a clear indication of adrenal insufficiency - if you are being offered steroids by an endo this is not something he would do lightly - if you are deficient in cortisol via the adrenal glands you are only putting back what you need - you are not taking in something that will affect you negatively but positively - very dangerous to not take steroids in that case.

[JCMartin in reply to posthinking01]

He said it was Thyroiditus and would see if T3 stopped it. He hasnt percribed them yet.

[posthinking01 in reply to JCMartin]

Hi - well steroids do take down inflammation - and getting onto T3 could it for you - I know a lot of things went away when I went on T3 and T4 - let's hope it does work for you.

[Britpol]

Lovely to heard good stories but please be cautious about climbing mountains; you may need to increase your meds when physically active. This has been my experience and that of members of my family .

[posthinking01]

Brilliant news - I have also raised my levels of T4 and T3 with no problems at all but there again I am on steroids for adrenal support - so well done. It is amazing the difference it makes - I know - if you look at Dr. Toft's talk on Thyroid Trust he tells the story of how before synthetic thyroid hormones - patients were given the equivalent of 200 mcg of T4 which automatically went across to produce T3 so no problems with patients screaming they felt ill due to lack of T3.

I agree with you regarding gluten free food - the processed stuff sold in supermarkets is gross - apart from the gluten free pasta which is good and even my Italian husband agrees it is brilliant so that is an endorsement. It is fairly easy to go gluten free really without buying marketed products - if you look at the ingredients they are loaded with preservatives and sugar and rice - I actually developed a problem with rice and it made me itch - so had to re-think how I was going to keep gluten free but I did it with no bread - cakes or other niceties that we don't really need.

[JCMartin in reply to posthinking01]

I am a fussy eater anyway so trying to do gluton free and loose some weight seems impossible. I know i should just eat clean, will try harder. Definately dont get indegestion or bloating so must be working.