Feeling good with no thyroid

Feeling good with no thyroid

Hi everyone.

Ive not posted for a while but thought i would update you all. Im now 6 months post op after having a total thyroidectomy and i have to say im feeling pretty good. After my thyroid went overactive for the second time the carbimazole wasnt working properly so i opted for thyroidectomy as i felt so ill. as you can see i now have minimal scarring and am enjoying life once more climbing the mountains in North Wales. So for anyone thinking of having the op i for one recommend it. I did think long and hard about it though and didnt take the decision lightly. sorry for some reason the image is sideways and i cant turn it on here. But i hope you can see how good the scar is.

Last edited by

23 Replies

oldestnewest
  • This is great news, we tend to forget about the success stories. Having a glance through your posts you used to have fibromyalgia, do you still have this? Fingers crossed you will continue in good health.

  • Hi no i was wrongly diagnosed with that. It turned out i had a tumour in my shoulder giving me pain. That has since been sorted.

    :)

  • How long did you have to live with that wrong diagnosis, just out of curiosity?

  • I knew i didnt have it so i kept badgering the docter for more tests. So only a few weeks.

  • Thanks for posting, Kashka, it's good to read success stories.

  • I thought i'd add a bit of positivity as its so easy to get disheartened :)

  • Good news, Kashka! As you are doing so well, it might help others in your situation if you'd be kind enough to detail your medication/vits and mins. Many thanks. Stevie.

  • The only medication i am taking now is 100mcg thyroxine. And im feeling very well on it. :)

  • On this forum that counts as positively miraculous, Kashka! So pleased for you :-)

  • Thanks. Im very pleased too and hope others will put their success stories on here too , to inspire others.

  • ... I'm always baffled when I hear this kind of stories... I am a 47 yo man and been hyperthyroid for 3 years. I had total thyroidectomy one year ago.

    Unfortunately "T4 only" didn't work for me. After the surgery (June 2016) I spent 6 months of nightmare (nightmare). I was at T4 100mcgr/day for 5 months (I couldn't increase the dose because of palpitations and pounding hearth). Fortunately I

    found a doctor that prescribed me T3 and the situation improved.

    Removing the Thyroid was my decision, and it was the worst decision of my life.

    But there are a couple of things I learnt:

    1) Removing the Thyroid is bad (unless you are dying of course).

    2) T3 can help in some case.

    I know that a lot people without thyroid feel "good", but simply this is not my case and the quality of my life has worsened.

    It's a mystery to me how people feel good after surgery. I tested on my skin, you cannot replace a vital organ with a pill and live "normally". At least we should define what is "normal" for you.

  • So sorry to hear your story. Im hoping i can inspire others. I hope you get Better and are able to live a normal life . I was told it can take up to 18 months to get medication right. I had my hyperthyroidism come back time and again and it nearly killed me as it got worse each time. I could not function at all. so i feel i did the right thing for me as i dont think i would be hear now to tell my storie.

  • I have not had a thyroidectomy nor am I ever likely to as I "only" have Hashimoto's, but it was really nice reading a success story:-)

    Best of luck to you!

  • Thankyou Anna. good luck with your thyroid journey <3

  • I find it so good to read a positive report like yours. I had a total thyroidectomy 10 days ago and am feeling quite well. I am on 75 mg levo at the moment. My only problem is my hoarseness but I am sure that will get better with time. Good luck to you for the future

    Eileen

  • Hi Eileen. i too am on 75mcg. Theyve dropped my levels as i was a bit too high on the 100s.Early days with the hoarsness. I was like that. but it does get better. i can even sing again now ! Hope you continue to feel well :)

  • Thats great to hear....I didnt expect to be soooo hoarse. I never could sing, perhaps I might suddenly be able to 😉

  • Hahahaha well you never know!!! :D

  • Im 16 days after TT and neck dissection and struggling a bit so its great to hear a success story! I have RAI to go through yet but hopefully I will be writing my own successful post soon x

  • Good luck with the RAI Lindsay.Its early days for you but am hoping you too will have good health after. My dose of thyroxine is up and down but they say this could take up to 18 months to right itself. I am still feeling well after 10 months post op. Would love to read your sucess story in the near future. All the best .

    Kashka.

  • Great news Kashka. Like you I wouldn’t take this decision easily, but sometimes it is the right way to go. So glad you’ve got your quality of life back, it must be a huge relief.

  • Ps I wouldn’t have noticed the scar if you hadn’t mentioned it :)

  • Thankyou so much Valarian. :)

You may also like...