NEW blood test results, i dont know what to do ... - Thyroid UK

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NEW blood test results, i dont know what to do next.

ali2341 profile image
12 Replies

hi everyone i been on t4 since 2021 and have hashis , i have posted results before on this forum over the last few years but today i have new results from medicheck, im currently on 125 mcg.

TSH- 0.688 (0.27 - 4.2. )

FREE T3 - 5.3 (3.1 - 6.8)

FREE THYROXINE - 20.9 (12 - 22)

THYROGLOBULIN ANTIBODIES 35.2 (0 - 115)

THYROID PEROXIDASE ANTIBODIES 459 (0 - 34)

as you can see everything looks good apart from tpo, will i always have to take meds forever ? i want to come off the meds as its affecting my mental health i feel more depressed when on t4. if i quit t4 now is it dangerous ? thank you.

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ali2341
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12 Replies
Buddy195 profile image
Buddy195Administrator

The vast majority of people with Hashimotos and an underactive thyroid do well on Levothyroxine ali2341, but it doesn’t agree with everyone. There are other options you may wish to explore at some point, but it is not advised to simply stop Levothyroxine.

We advise that folate, ferritin, B12 and vit D are optimised to support thyroid health. Have you had these key vitamin levels tested?

ali2341 profile image
ali2341 in reply toBuddy195

yes i dont those tests multiple times, it does not matter if they all in range which they are i alwasys feel the same,

Beads profile image
Beads in reply toali2341

In range and optimal are not the same. If you post the results someone very knowledgeable here will let you know if any need tweaking.

When I went through a friend’s results and she repeated the above to her doc, her doc actually agreed.

ali2341 profile image
ali2341 in reply toBuddy195

what are the other options apart from adding t3 , also my tsh when i first went on meds was 4.8 i had tpo over1200 tho, it has come down but i just want to quit everything

FallingInReverse profile image
FallingInReverse in reply toali2341

Your other options include what Buddy mentioned above:

- folate, ferritin, B12 and vit D

These need to be optimal, not just in range. Please share your results and ranges.

You have Hashis. You will need thyroid hormone replacement for life. Not recommended at all to go off it without looking first at the 4 virus/minerals listed above first, and then choosing a T4/T3 alternative to the Levo.

Buddy195 profile image
Buddy195Administrator

What brand of Levo are you taking? Some people don’t go well with certain brands. Do you always receive the same brand?

ali2341 profile image
ali2341 in reply toBuddy195

think its astro but i tried teva in past all the same

Judithdalston profile image
Judithdalston

Curious, are you fasting again? 10 months ago you were struggling and it was suggested lack of carbs might affect your T4/3 conversion. I have been doing intermittent fasting( 16 hrs x5 days, 13 hrs x2 days) for nearly a year without problems despite being both diabetic ( type 3c) and hypothyroid , but then I do take T3 as well as levo. as was always a very poor converter. Have you had your blood glucose /HbA1c tested, I found that change in one hormone levels had a knock on affect with others….

ali2341 profile image
ali2341 in reply toJudithdalston

i can fast better now than last year i eat balanced diet, but im just going to sop taking levo and see what happens i will monitor my condtion and see if hormones stay in range

Judithdalston profile image
Judithdalston

giving up the levo completely seems rather extreme…I know some people feel better for a few months then start to feel worse, back to square one. I know from experience that once one of my hormones goes out of kilter there is a knock on effect with others…. A year ago there were suggestions your adrenals might be out or/ and blood sugar … did you get your cortisol and blood glucose/HbA1c tested ?

ali2341 profile image
ali2341 in reply toJudithdalston

Yes everything is ok, apart from tpo i have stopped taking levo for a few days now will see how i feel and keep an eye on my tpo if top stays the same then i wont need to take levo

FallingInReverse profile image
FallingInReverse in reply toali2341

Just to reiterate, your positive antibody tests confirm autoimmune cause to your underactive thyroid. Therefore, if you stop taking Levo, you might feel “better” for a short time, but it won’t be long before your Ts drop to dangerous levels.

If you are going to try it out, which again, no one would support, but if you are please be vigilant with symptoms, re-testing, and watching your Free Ts.

edit: Above is all consistent with advice given 2 years ago, still good advice:

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