Considering Private?? : Hello, just considering a... - Thyroid UK

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Considering Private??

DaisyChain22 profile image
5 Replies

Hello, just considering a plan B really...

Poured my heart out (via the online form) with my local GP Surgery today and received a text response saying need to re-do bloods, so I booked this soonest I could get (2 and half week for just appointment with phlebotomist) so no doubt pending results would be looking at a further 2-3 weeks to then get an appointment to discuss these.

I just get a gut feeling I probably wont get anywhere with them regardless of the results I feel even if they are out of range again it will be shrugged off as oh well its only a bit out lets watch and see test again etc etc

I did included all the research and info I found about TSH /TPO and the increase in miscarriage and presented this to them. but no comment just need to re-do bloods...

My question is, how does the private system work? I downloaded the list but couldn't find any in my area, are there any good online consultation services people would recommend?

My Dad has kindly offered to pay for a private consultation with a Nuffield GP, is this worth considering (obviously they are not an Endocrinologist) or would I be better off persevering with NHS GP

Thank you

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DaisyChain22
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5 Replies
Forestgarden profile image
Forestgarden

I would suggest going for a private endo consultant. Do your research looking for a good one. I booked a private endo via spire healthcare, they also happen to work in the nhs as well as privately, which I thought would help my case in the future if I decide I want to pursue it with the nhs. The private endo is only dealing with my thyroid, everything else is still nhs GP. The private endo gave me my liothyronine prescription, while I still get my levothyroxine through my nhs gp. The private endo asked if I wanted them to contact my gp to explain things, but I said no (I might change my mind going forward). All in all I think my gp is simply relieved I'm no longer conplaining to him about my thyroid. My initial appointment cost £225, then going forward its an annual appointment of about £150 I think. Hope this helps

DaisyChain22 profile image
DaisyChain22 in reply to Forestgarden

Thanks for this very helpful, I’m just having a look at Spire website, just a quick question did you need a referral to see the Spire Endo? Or can anyone just book an apt ?

Forestgarden profile image
Forestgarden in reply to DaisyChain22

No referral needed. Just booked the appointment direct. It was an endo on the thyroiduk list, and I heard from a couple of people that they were open to t3 prescribing. It was a breath of fresh air to actually be listened to. I took along all my test results to speed things along.

SlowDragon profile image
SlowDragonAdministrator

BEFORE booking any consultation you need FULL thyroid and vitamin testing done otherwise first consultation is waste of time and money

For full Thyroid evaluation you need TSH, FT4 and FT3 tested

Also both TPO and TG thyroid antibodies tested at least once to see if your hypothyroidism is autoimmune

Very important to test vitamin D, folate, ferritin and B12 at least once year minimum

About 90% of primary hypothyroidism is autoimmune thyroid disease, usually diagnosed by high TPO and/or high TG thyroid antibodies

Autoimmune thyroid disease with goitre is Hashimoto’s

Autoimmune thyroid disease without goitre is Ord’s thyroiditis.

Both are autoimmune and generally called Hashimoto’s.

Significant minority of Hashimoto’s patients only have high TG antibodies (thyroglobulin)

Low vitamin levels are extremely common when hypothyroid, especially with autoimmune thyroid disease

20% of autoimmune thyroid patients never have high thyroid antibodies and ultrasound scan of thyroid can get diagnosis

In U.K. medics hardly ever refer to autoimmune thyroid disease as Hashimoto’s (or Ord’s thyroiditis)

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Medichecks Thyroid plus BOTH TPO and TG antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes BOTH TPO and TG antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Link about Hashimoto’s

thyroiduk.org/hypothyroid-b...

Symptoms of hypothyroidism

thyroiduk.org/signs-and-sym...

Tips on how to do DIY finger prick test

support.medichecks.com/hc/e...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

What, if any vitamin supplements are you taking

Come back with new post once you get results

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists who will prescribe T3

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

McPammy profile image
McPammy

I decided on a private only endocrinologist. He does zoom, telephone and face to face. So no need to travel at all. All you need is a gp referral letter and your latest bloods. Get your bloods TSH t4 and t3 through monitor my health cheaply on line. The NHS is pretty bad when it comes to the thyroid and treating you optimally. You could also get your vitamins b12, ferritin, folate and D checked too. Oh and get your cholesterol checked also.

If you’d like details of my private Endo just private message me.

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