NDT woop woop

[joydot]

Back on thyroid-s thanks to this blog. 180mcg at bedtime as knowledgable NZ medic prescribed 12 yrs ago & said to never change!!! Only problem thus far is peeing up to 3x at night - thought 2 months of M stuf had cleared my system of any excess but no, thrilled it’s liquid not alternate. Everything is calming down (have been experiencing 5+ allergen responses at same time - body has always hated chemicals/ synthetic anything). System less erratic during day than on multi-dose T3. Memory remains substandard 😭.

so furious. Yet happy. The thyroid dance. NDT is trash indeed.

Thank you everyone - long, traumatic 7 years easing off.

[TiggerMe Ambassador]

Great to hear things are on the up... I struggled with a woolly memory and found luckily (thanks to 🍄) that I needed the right sort of vit B6... pyridoxine blocked my uptake so switched to pyridoxal 5 phosphate and things massively improved... just thought I'd throw that out there as it's a known thing for some.

Also added magnesium threonate which is able to assist the brain... every little helps 🙃

[joydot in reply to TiggerMe]

it’s such a minefield - and big reason stable patients should never have things changed without good reason.

I was v scared 18 months ago, figured I had six months max. still paranoid about getting covid as if I do in this state am toast but NDT is a huge step to healing. As is a big payout. And a reprehensible endo doing jail time for attempted manslaughter (I can fantasise)

[janeroar in reply to TiggerMe]

@eeyore100 that’s so interesting!. Which brands are you taking?

[TiggerMe Ambassador in reply to janeroar]

Luckily I'd read an article 🍄 had posted so when my B6 result came back on it's knees, I ditched the Vitablossom B complex (pyridoxine) and switched to Igennus Super B (one a day) but also added extra 50mcg B6 P-5-P Now Foods for a month and there was a very noticeable improvement, I just take the extra once a week now as I feel it if I stop but don't want to overdo B6 as that isn't good either, seem to remember 50mcg was the smallest I could find at the time... I shall try and hunt down a lower dose next time

Magnesium complex I take is... amazon.co.uk/gp/product/B09...

[janeroar in reply to TiggerMe]

Thanks so much for this. Luckily ingennus is what I take on recommendation from the good folks on here. I had a horrible phase of dizziness and I think it’s made a big difference. But I’m finding my memory isn’t as sharp as it used to be. I’m going to get the two things you’ve mentioned here.

Which profile has the mushroom 🍄 pic btw?!

[TiggerMe Ambassador in reply to janeroar]

B6 has a DV of 10mg so 2 Igennus would provide that, I'd be inclined to suggest trying the magnesium threonate first... just revisiting why I choose the Now Foods B6 and it may well have been as that also contains magnesium...

🍄 = Helvella 😏

[helvella in reply to janeroar]

helvella - Vitamers of Vitamin B6

Some time ago, I mentioned that the form in which we take vitamin B6 is important. I think I linked to this paper:

helvella.blogspot.com/p/hel...

[TiggerMe Ambassador in reply to helvella]

Oh... you beat me too it! I'd just gone off to find that link 😆

[janeroar in reply to helvella]

Brilliant thanks both. Any thoughts on supplements coming from Lithuania. Heard they are often made in China…

[helvella in reply to janeroar]

We have little idea where the ingredients for most supplements (and medicines) come from.

Seems likely that the ingredients for many supplements and medicines come from China or a few other suppliers - wherever the product appears to be made.

On that basis, I don't think that Lithuania is like to be that much different to most other countries. And finding out whether Lithuania imports ingredients through to finished product might not be easy.

[joydot in reply to helvella]

Likely. have a friend whose family domintaed spice market for 400 yrs. now manufacture supplement base mixes too… in that quantity no way it’s quality first.

[joydot in reply to helvella]

so confusing when muddled 😭

[Hidden]

What did the prescriber say to never change; Thyroid-S or the dosage?

[joydot]

said never drop dosage - NDT (pharmacy compounded) diagnosed by specialist who did initial tests. I dont convert much & gland is long gone (trauma birth).

[Hidden in reply to joydot]

But do you take Thyroid-S or compounded NDT?

[joydot in reply to Hidden]

Now thyroid-s. Compounded only avail in NZ with prescription.

I did not understand how vital that was going to become when we moved. In hindsite I was remarkably blasé about hashis status - had no reason to feel confident in endocrinology field yet did.

[Hidden in reply to joydot]

And you have had no problems with Thyroid-S? There have been some problems reported with it (some batches working, some being ineffective).

[joydot in reply to Hidden]

No problems but then I was such a wreck am afraid to say anything. Compared to a month ago I feel like I might survive… have celiac going on. My kidneys were strange for a few days - think they were detoxing t3. Possible adrenals coming back online too.

[archipoeta]

So glad you've got this sorted. Which batch number is it?

[joydot]

23T01004

[helvella in reply to joydot]

You have replied to your own post - not the reply from archipoeta - this will tag archipoeta in.

Thyroid S Batches

A summary of known and suspected potency of Thyroid S batches.

Regularly updated so please check the blog directly.

helvella.blogspot.com/p/thy...

[joydot in reply to helvella]

😂😭🙏

[veryland]

I take half my dose first thing in the morning and the second half dose 12 hours later which is 4 hours before bedtime. Never had problems with having to go during the night.

Is the Thyroid S working for you?

How does Thyroid S compare to the Compounded Thyroid you were on?

[joydot in reply to veryland]

I’m fine with them all at once. Carrying 100lbs lymph fluid for 6 yrs is bound to do some damage, I’m impressed that the ndt almost immediately began reducing new spare tyre. I’ll be normal in a few months. S same as compounded far as I can remember.