DI02 Test advice please: Following a really... - Thyroid UK

Thyroid UK

141,246 members166,490 posts

DI02 Test advice please

Cezza123 profile image
8 Replies

Following a really useful twitter thread about the Deiodinase 2 gene and its effects on response to levothyroxine, I have ordered and received a saliva test for DIO2 but need to loop in a medical practitioner to receive the results.

I have an appointment with my GP this week to discuss blood test results for other factors she believes maybe be affecting my health (liver function, anaemia etc).

What is your best advice on getting her on board with the DIO2 test? My experience so far is that they are not to keen to delve further than their standard tests.

Written by
Cezza123 profile image
Cezza123
To view profiles and participate in discussions please or .
Read more about...
8 Replies
Forestgarden profile image
Forestgarden

As you've paid for the test yourself I can't see why your gp might not be happy to discuss it with you (mind you, you'll probably have to explain what it shows). At best, the results will show you are a poor converter. Maybe this is a chance to ease your gp into thinking that your symptoms might actually be thyroid related! At worst (for you maybe) your dio2 might be fine...

SlowDragon profile image
SlowDragonAdministrator

Your GP will know nothing about it

Regenerus have recommended specialists to talk it through with you (for a few)

Andie222 profile image
Andie222

Hi Cezza123. I didn't bother telling my GP I was doing the test but put their name down to receive the results. I contacted reception to intercept the results. They were happy to forward them to me as it was a private test. I was able to interpret the results myself with help from the internet. I'm not sure whether the GP ever looked at it but suspect that even if they did they probably didn't understand it! Fortunately the Endo understood it.

TiggerMe profile image
TiggerMeAmbassador

As Andie says just use them to pass the results to you, either a printed copy or online access and then present it to your Endo ( they possibly still won't understand but it seems to work as leverage... hopefully they at least go and do some homework and become more aware)

Cezza123 profile image
Cezza123

Unfortunately I have not yet been referred to an Endo, I’m still battling at the GP stage. Hoping if the test comes back positive it will prompt a referral….

Wickety profile image
Wickety

Hi, I rang my surgery, got permission to use the GPS email address and had the result sent to that email. I then asked for a copy and like others was able to assess the result. Then I tried to get the GP interested in the result plus an endocrinologist. Please do not be surprised if your GP has no idea what the result shows, also be prepared for GP/endo refusing to accept the result because it's not from an NHS lab. Hope it goes smoothly for you. Regards

Cezza123 profile image
Cezza123

So my results came back saying that there is a “decreased ability of the enzyme to generate the active T3 hormone”.

While I wait for the doctor to respond to this I would like to try to source a suitable T3 supplement. Any recommendations for what I could try and what dose? Please also private message me trustworthy suppliers and who to avoid if possible?

Any info gratefully received.

TiggerMe profile image
TiggerMeAmbassador in reply toCezza123

Worth having a consultation with Roseway Labs

Not what you're looking for?

You may also like...

DI02 test result

Hi allI would appreciate if any of you knowledge people could expand on my DiO2 test result from...

DI02 test / conversion

hey a quick question about this - since there are other factors that can affect conversion, for...
perardua profile image

T3 Trial Test results Advice Please

I'm a regular on here. But just to recap for you good people. Diagnosed hypo with Hasimoto 2 years...
rick2525 profile image

Advice please

Hi all, I would like some advice on taking T3 please. Background......been Hypo for 26 years (am...
Mandy2007 profile image

More Test results (sorry!) - DI02 Test

Christmas has come early! It seems all my test results are coming through at the same time! Yeay!...
Rhsana profile image

Moderation team

See all
PurpleNails profile image
PurpleNailsAdministrator
Jaydee1507 profile image
Jaydee1507Administrator
SlowDragon profile image
SlowDragonAdministrator

Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.

Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.