DI02 Test advice please

[Cezza123]

Following a really useful twitter thread about the Deiodinase 2 gene and its effects on response to levothyroxine, I have ordered and received a saliva test for DIO2 but need to loop in a medical practitioner to receive the results.

I have an appointment with my GP this week to discuss blood test results for other factors she believes maybe be affecting my health (liver function, anaemia etc).

What is your best advice on getting her on board with the DIO2 test? My experience so far is that they are not to keen to delve further than their standard tests.

[Forestgarden]

As you've paid for the test yourself I can't see why your gp might not be happy to discuss it with you (mind you, you'll probably have to explain what it shows). At best, the results will show you are a poor converter. Maybe this is a chance to ease your gp into thinking that your symptoms might actually be thyroid related! At worst (for you maybe) your dio2 might be fine...

[SlowDragon Administrator]

Your GP will know nothing about it

Regenerus have recommended specialists to talk it through with you (for a few)

[Andie222]

Hi Cezza123. I didn't bother telling my GP I was doing the test but put their name down to receive the results. I contacted reception to intercept the results. They were happy to forward them to me as it was a private test. I was able to interpret the results myself with help from the internet. I'm not sure whether the GP ever looked at it but suspect that even if they did they probably didn't understand it! Fortunately the Endo understood it.

[TiggerMe]

As Andie says just use them to pass the results to you, either a printed copy or online access and then present it to your Endo ( they possibly still won't understand but it seems to work as leverage... hopefully they at least go and do some homework and become more aware)

[Cezza123]

Unfortunately I have not yet been referred to an Endo, I’m still battling at the GP stage. Hoping if the test comes back positive it will prompt a referral….

[Wickety]

Hi, I rang my surgery, got permission to use the GPS email address and had the result sent to that email. I then asked for a copy and like others was able to assess the result. Then I tried to get the GP interested in the result plus an endocrinologist. Please do not be surprised if your GP has no idea what the result shows, also be prepared for GP/endo refusing to accept the result because it's not from an NHS lab. Hope it goes smoothly for you. Regards

[Cezza123]

So my results came back saying that there is a “decreased ability of the enzyme to generate the active T3 hormone”.

While I wait for the doctor to respond to this I would like to try to source a suitable T3 supplement. Any recommendations for what I could try and what dose? Please also private message me trustworthy suppliers and who to avoid if possible?

Any info gratefully received.

[TiggerMe in reply to Cezza123]

Worth having a consultation with Roseway Labs