So cross: I have just received a text from the... - Thyroid UK

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So cross

JCMartin profile image
10 Replies

I have just received a text from the docter saying my Endocroniologist has cacelled my appt as my levels were in range 29th Dec on an A and E blood test. I am so mad, i told them not to test me for TSH at the time as i had eaten and it was mid day. They are now ignosing my private blood test as this was done later. Its gas lighting - any excuse not to see me as a patient. Its so unfair. Even this test was 2.95. Getting so fed up with it all.

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JCMartin profile image
JCMartin
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greygoose profile image
greygoose

I feel your frustration. But, the endo probably wouldn't have been of any help, anyway. Doubtful he would have known that the TSH would have been higher before 9 am. None of them do. Nor would he have known that 2.95 was too high, because it would have been in-range. He would just have said you were 'normal'. So, that would have been a waste of your time. Just because he has a fancy title - Endocrinologist - doesn't mean he has a clue. :)

JCMartin profile image
JCMartin in reply togreygoose

I thought they were Thyroid consultants?

greygoose profile image
greygoose in reply toJCMartin

There are no thyroid consultants. Well, they're very, very rare. There are just diabetes 'specialists' that think they know something about thyroid but actually know less than us.

TiggerMe profile image
TiggerMeAmbassador

Probably the best way to diss that result is to say you had been taking B complex containing biotin before the test as they will be ignorant to the time of day etc... request a repeat blood test to re-instate the Endo appointment 🤗

Brightness14 profile image
Brightness14 in reply toTiggerMe

great advice as usual

TiggerMe profile image
TiggerMeAmbassador in reply toBrightness14

It’s just so irritating that we need 2 out of range results to get treatment but 1 vaguely in range and we are cured and struck off 🤬

SlowDragon profile image
SlowDragonAmbassador

was this NHS or private consultation

Here’s link for how to request Thyroid U.K.list of private Doctors emailed to you, but within the email a link to download list of recommended thyroid specialist endocrinologists

Ideally choose an endocrinologist to see privately initially and who also does NHS consultations

thyroiduk.org/contact-us/ge...

JCMartin profile image
JCMartin in reply toSlowDragon

Thanks, i done that now. Scan Thursday of my neck - if no joy i will have to pay for a specialist, not that i can afford one or am completely cirtain of whats wrong with me. But if the scans clear i will have to try something. My neck and face are bigger by the day.

Insomania profile image
Insomania

I went to a private endocrinologist who works in NHS and he said the same as the GP, anti depressants . Read my bio.

JCMartin profile image
JCMartin in reply toInsomania

I have an ultrasound tomorrow. If nothing shows up there im going to a private Endocrinologist. As now told to wait one year on the NHS since the incorrect TSH test.

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