Feeling so weak now

[Purpleprincess1963]

Hi I posted here about 4 weeks ago I was feeling breathless and waiting for my appointment on jan 13 as not had any change in my medication since going on thyroxine in summer currently on 25mcg , anyway got to my appointment on Monday at hospital only to be told they couldn’t find my blood test results I was absolutely gutted my husband was with me he was disgusted the doctor just said sorry I will send you for blood test again , we walked out of the hospital and my husband got straight on the phone to private hospital , I feel so weak now I am worried sick about how I feel I also had a water infection two weeks ago would this make me weak as well? I can’t wait till Friday for my private appointment I just need some positive answers, has anyone felt like this I am crying as I am texting I just want to be the person i used to be , sorry for long post it’s hard for my family to understand x

[Wetsuiter]

You poor thing! i think i would have cried whilst in the hospital!

[Purpleprincess1963 in reply to Wetsuiter]

I did in corridor 😞

[london81]

try and speak to the patient liaison team there ( think they are called PALS, about what happened and why). also i’m no expert but starting you on that small dose and leaving you there seems cruel. have you had previous results? if so please post them in this post again so more experienced members can assist. a complaint might be in order here this is outrageous

[Purpleprincess1963 in reply to london81]

Hi London81 I did have blood test In the summer when first diagnosed and Christmas as didn’t feel better don’t have any paperwork to look at , I live in essex and hospitals here just so busy, hopefully Friday the doctor will help me I most probably will have another blood test when I see him and I just hope he knows what medication to put me on thanks for all your replies lady’s xx

[london81 in reply to Purpleprincess1963]

ask for your entire medical file including blood results including reference ranges - you are entitled to this under data protection legislation. it may be useful to have long term

[shaws Administrator in reply to Purpleprincess1963]

I'm very sorry you are in a predicament at present and hopefully you'll it resolved soon.

Rememer when you are having a blood test for thyroid hormones, it has to be at the earliest, fasting (you can drink water) and take your hormones after test -not before.

You are on an extremely low dose, i.e. 25mcg (so I am assuming you don't have a heart disease?). A starting dose, unless you're very frail with a heart disease, is 50mcg of levo. With a blood test every six weeks and another increase of 25mcg and so on until your symptom-free with a TSH of 1 or lower and a Free T4 and Free T3 in the upper part of the ranges.

GP should also check B12, Vit D, iron, ferritin and folate. Everything has to be optimal.

[Purpleprincess1963 in reply to shaws]

Hi shaws I will fast Friday not got heart disease and not frail , I am seeing private doctor hopefully he can do full test for everything and then I will put my results on here as the people on this site have more knowledge about thyroid than anybody else thanks for reply x

[london81]

i’ve never used them but working in advocacy /law myself one of my pet hates is advocates who get nothing done just regurgitate information

[Purpleprincess1963]

I will get my results and make a complaint.

[Purpleprincess1963]

Thanks scrambler I didn’t know that I will look now .

[Purpleprincess1963 in reply to Purpleprincess1963]

Sorry about name mistake.

[Purpleprincess1963]

😁

[Marz]

Could you use the testing companies through Thyroid UK ? Click onto - About Testing - in the link below. Used by 1000's on this Forum ...

thyroiduk.org