Buying from abroad

[Susii]

I am post thyroidectomy and post para-thyroidectomy, having had the op around nine years ago, following the discovery of a large tumour in my neck. I had a short time on Levothyroxine but my body doesn’t recognise it evidently, so I was immediately put on Liothyronine and have felt wonderful on this ever since. However, my GP has now said I can’t have it anymore. I am now wondering if anyone on here knows of a supplier where I can buy Liothyronine, as I live in fear that they will just stop them one day when I ask for a repeat prescription.

[Buddy195 Administrator]

Just to confirm, do you have a current prescription for Liothyronine Susii?

If you are seeking a supplier without a prescription, any advice will need to be via private message.

[SlowDragon Administrator]

as you are prescribed T3 on NHS you should see an endocrinologist annually

GP can NOT arbitrarily change prescription

You MUST be referred back to endocrinology

england.nhs.uk/long-read/li...

Reviewing liothyronine

Patients who have not had a review and are already established on liothyronine as monotherapy or in combination with levothyroxine should have a review by an NHS consultant endocrinologist.

The NHS consultant endocrinologist should:

review the patient and consider switching to levothyroxine monotherapy where clinically appropriate

not routinely withdraw liothyronine for patients who feel well on liothyronine with a serum thyroid stimulating hormone (TSH) within the reference range (see BTA and SoC joint consensus statement)

consider, for people stable on combination therapy, trialling levothyroxine monotherapy to see whether the liothyronine is still benefiting them

advise primary care prescribers on reviewing or adjusting a patient’s treatment where this is the responsibility of the primary care prescriber.

Liothyronine prescriptions should continue until the NHS consultant endocrinologist review has taken place.

Before any consultation strongly recommended to get FULL thyroid and vitamin testing

Recommended that all thyroid blood tests early morning, ideally just before 9am, only drink water between waking and test and last dose levothyroxine 24 hours before test

This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip)

On T3 - day before test split T3 as 2 or 3 smaller doses spread through the day with last dose 8-12 hours before test

Private tests are available as NHS currently rarely tests Ft3 or all relevant vitamins

Testing options and includes money off codes for private testing

thyroiduk.org/testing/

Monitor My Health also now offer thyroid and vitamin testing, plus cholesterol and HBA1C for £65

(Doesn’t include thyroid antibodies)

monitormyhealth.org.uk/full...

10% off code here

thyroiduk.org/testing/priva...

Medichecks Thyroid plus antibodies and vitamins

medichecks.com/products/adv...

Blue Horizon Thyroid Premium Gold includes antibodies, cortisol and vitamins

bluehorizonbloodtests.co.uk...

Only do private testing early Monday or Tuesday morning.

Link about thyroid blood tests

thyroiduk.org/testing/thyro...

Tips on how to do DIY finger prick test

See detailed reply by SeasideSusie

healthunlocked.com/thyroidu...

Medichecks and BH also offer private blood draw at clinic near you, or private nurse to your own home…..for an extra fee

Timings of testing

healthunlocked.com/thyroidu...

[Jazzw]

Just read back through your older posts and see this has happened before, about 6 years ago. Did you manage to get your T3 reinstated that time?

You have my sympathy. GPs unfortunately tend to know so very little about thyroid hormone replacement. If you’ve been on T3 all this time it’s likely you’ll really struggle to manage with T4 alone.