Tinnitus , vertigo . : Is there any evidence of a... - Thyroid UK

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Tinnitus , vertigo .

Redz profile image
Redz
36 Replies

Is there any evidence of a connection between having autoimmune thyroid and Tinnitus ? .

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Redz
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36 Replies

Not sure Redtz but I suffer with both. Been told nothing can be done and have to put up with it. The vertigo I was initially given tablets then told to stop by consultant and given a set of exercises to do. I have done them but haven't mane much difference. Look forward to other replies

Maggiet profile image
Maggiet

I've had vertigo and tinnitus too and balance problems for a while. Loads of tests proved negative and the consultant - I use the word loosely - said I'd just have to live with it. I have been prescribed Buccastem tabs on the past which work brilliantly. You can get them OTC too. My tinnitus is that bad that when I went to a meditation class recently all I could hear was the whooshing sound in my ears! Not very conducive to peace and mindfulness! As always, I am not a doctor and any meds should be taken after consulting your GP as there are some contraindications.

RedApple profile image
RedAppleAdministrator in reply to Maggiet

That's interesting Maggiet. I have raging tinnitus and balance problems too but have not tried Buccastem. Does it help with your Tinnitus or just the balance?

Maggiet profile image
Maggiet in reply to RedApple

Just the balance and associated nausea. But as I said before they are contraindicated with some drugs so take care xx

PinkNinja profile image
PinkNinja in reply to RedApple

I used to take it under the name Stemetil and it really helped a lot. For some reason now it is contraindicated for me and I was prescribed betahistine which did nothing for the vertigo and accompanying nausea :( B12 has helped immensely though, although I still have constant but very mild vertigo now. I can live with that :)

flatfeet1 profile image
flatfeet1 in reply to PinkNinja

ncbi.nlm.nih.gov/pubmed/443725

Tinnitus as a presenting symptom in pernicious anemia.

Cochran JH Jr, Kosmicki PW.

PinkNinja profile image
PinkNinja in reply to flatfeet1

Aha! Thank you! :)

RedApple profile image
RedAppleAdministrator in reply to PinkNinja

B12 does nothing for my awful tinnitus. My balance issues are muscle related rather than 'head' related, and I don't have nausea so I don't think buccastem would be helpful for me.

PinkNinja profile image
PinkNinja in reply to RedApple

No, it probably wouldn't :(

tavy profile image
tavy in reply to PinkNinja

so interesting I am hypo thyroidal, have menieres, tinnitus is horrendous. I could not take stemetil as it made me ill. Serc 16 I take one a day but break it up. I constantly have indigestion. Still very dizzy some days. i have never taken Buccastem, is this prescription

PinkNinja profile image
PinkNinja in reply to tavy

Buccastem is stemetil under a different name :)

tavy profile image
tavy in reply to PinkNinja

oh damn I thought it was going to be something I could take. Thanks though

RedApple profile image
RedAppleAdministrator

Plenty of anecdotal evidence, but I can't recall seeing anything 'official'.

beaton profile image
beaton

I have tinnitus,I always thought it was a know thyroid problem. So I have looked it up,on Arches a U.S. site. It's there as a well problem.x

RedApple profile image
RedAppleAdministrator in reply to beaton

It is certainly a known problem amongst patients, but like so many symptoms that we expereince, it's common for docs to say 'nothing to do with your thyroid' :(

beaton profile image
beaton

Oh and I have vertigo.x

PinkNinja profile image
PinkNinja in reply to beaton

Sorry if I have mentioned it before, but I also get vertigo. It is worse when I am not taking enough B12. I think I have permanent damage though as I have very mild vertigo all the time. I don't get the horrible, debilitating kind much now though :)

kimbo profile image
kimbo

Yes I have both and have had since being hypo, plus anxiety etc had tests done too but nothing to be done I hate it, it's 24/7 x

Middleagemadness profile image
Middleagemadness

I suspect there is but docs don't seem to know enough. I have had tinnitus and low thyroid for 20 years and STILL trying to get better! I think my tinnitus was caused by a middle ear infection though causing vertigo and vomiting. I had to take Buccastem for a while and it took weeks for the dizziness to subside. I could not go in to a supermarket (or drive) for ages - it felt as thought the sides of the aisles were leaning in!. I do think there is a link with low thyroid, as is the pins and needles in the hands and arms at night. Stress also make tinnitus worse, as does neck problems ( osteopathy helps a lot).Good luck.

tavy profile image
tavy in reply to Middleagemadness

I can empathise with all your symptoms. It took 3 months for me to be able to stand and walk without holding onto the walls. so sorry you suffer as well.

electriclady profile image
electriclady

I wish someone would do a test to see if there truly is a correlation between vertigo, tinnitus and thyroid issues because in my view you start getting what the Doctors diagnose as tinnitus or vertigo and then eventually you get diagnosed with thyroid issues. I had a car accident years back and Im pretty certain that the neck problems I suffered then, also have a part to play in this.

Over time I spent years passing out with 'low blood pressure' and then as things got worse the dizziness was attributed to 'labrinthitis' because it was decided it was balance issues and finally, 'vertigo' because I was dizzy constantly. That meant giving up drink and exercise (who can move when they feel sea sick???) and I became completely zombified because the dizziness is all encompassing. I was given stemetil (which improves the dizziness but makes you dopey and incoherent) which I was pretty much taking all the time and told to do the head and neck exercises to help control it. Only at the point at which I was being carted off to hospital every other week due to knocking myself unconscious and cracking open my head did someone think to investigate my thyroid. I was diagnosed as hypothyroid and as soon as the correct dosage was issued, the dizziness improved. I still get it slightly but I usually see that as a requirement to drink more and to start having a bit more sodium. If it gets worse I think its my body telling me to get my thyroid rechecked. Interesting that there is a link in all these stories?

tavy profile image
tavy in reply to electriclady

yes agree. i was misdiagnosed for over 2 years. falling over and stopped driving, lost my job, could barely function my poor toddler lost his mother. I dont remember much if anything of those years. Menieres took longer to diagnose but I too think it is all to do with the thyroid.

anbuma profile image
anbuma

I have tinnitus tho only mildly,it seems to be when I goto bed.i get ringing in my right ear and I "hear music"???

Hi all, I had a few knocks to my head & suffered from vertigo (diagnosed as Benign paroxysmal positional vertigo) on and off for two years - doing the Brandt - Daroff exercises did help once - when I got the head angle correct! And then got diagnosed with hyperthyroidism, and doubted the previous diagnosis - although I had hyperthyroidism 8 years ago & never had vertigo with it then. When my medication is correct I don't have vertigo.

My doctor also found out I had low Ferritin levels (iron). It apparently takes several months to top your stores of vitamin B12 (so you absorb iron) & back up. So I've been taking Floradix iron supplement. That did help with tinnitus too & the vertigo I think. You also need vit C to absorb iron & cut down on wine & tea which can inhibit iron absorption.... I agree more research in this area is helpful. This might sound mad but the other thing to try is prayer - I've had breakthroughs, or just better gp/doc appointments after Christian friends have prayed for me. And tinnitus is a tricky thing.... But do pester your doctor too - get them to send you to a ENT consultant, don't just live with it. My biggest regret in the last two years was not doing that - if I had may be I'd have been diagnosed earlier.

Margo profile image
Margo

I have thyroid problems and tinnitus/vertigo

Desperate1 profile image
Desperate1

I also have very bad vertigo, constantly take Buccastem and sometimes tinnitus. I'm also hypo and have been for many years. Waiting to see Endo has having a huge flare up :-(

tavy profile image
tavy

I am so sorry people that you suffer like this but it is 'nice' to know that I am not alone. I am not mad,

kala3 profile image
kala3

I also can empathise with everyones symptoms. i have thyroid problems and tinnitus and vertigo (dizziness)

Sent for tests, was told similar had to live with problems, gets you down sometimes the constant being told to 'live with it' by your doctor.

Fibrofoggiest profile image
Fibrofoggiest

I too suffer with tinnitus and its driving me mad at the moment, a very high pitched noise in both ears. Dr told me it could be linked to Fibro as Fibro is auto immune. Buccastem is usually used as an anti emetic and helps with the nausea of labyrinthitis, a problem of the inner ear, Serc however is prescribed for Ménière's disease, though I have know drs use it for the treatment of labyrinthitis .

I wish someone could come with a magical cure for the tinnitus tho, how people cope with it long term is beyond me !

Foggy x

pittuco profile image
pittuco

Hi there, absolutely it was a raging factor when I was initially diagnosed and started taking thyroxine. Now it happens intermittently when I am low

I get a range of fibromyalgia , eye twitching. An tinnitus. And it seems that one or the other happens intermittently. I wish that there was a lot more reArch in the subject.

In relation to the tinnitus it can be more subtle as havning difficulty hearing when lots of different noises happening at one and it feels as if your brain can not process to much conflicting sounds. Also just blowing and popping my ears helps .

I wish I could be of some help and give advice in how to counteract it but I can only sy that if I do not take vit B and other multivitamins D included that all my symptoms get worse.

Best of luck, with your Gp please keep us. Updated if Anyone helps you.

Yana profile image
Yana

I have really bad tinnitus and it came on 6 months after I started Levo. I take b 12 and my iron levels are good. I've just had an increase in my meds from 75 mcgs to 100 mcgs and it hasn't made any difference. It's so annoying when i didn't have the ringing before I was diagnosed and it's come on since the meds.

Xtine50 profile image
Xtine50

I have heard so. Also I have vertigo/labyrinthitis & tinnitus and have recently developed thyroid problems. Although this may be coincidence.

Redz profile image
Redz

Thankyou all for your comments , It's interesting that so many people have Tinnitus / vertigo and are also diagnosed with thyroid problems . I have had Tinnitus and bouts of imbalance for years , debilitating at times . Having been diagnosed with autoimmune thyroid more recently I wondered if there was a connection as being left by doctors as 'sub clinical ' and untreated for so long may have had a direct impact or excaserbated the tinnitus or my ability to deal with it . Anecdotal or not there seems to be some evidence to suggest the correlation between the two conditions ... Or am I , in desperation looking for a cause and therefore hoping that in treating the thyroid imbalance it will cure the tinnitus , or at least reduce it .. Most days it's like a siren or smoke alarm in my head .!

chrimycat profile image
chrimycat

Just read all the bits on here and am gob-smacked,I never realised these symptoms could be related; I have had tinnitus for about 18+ years now, the vertigo started about 10 years ago - diagnosed with hyperthyroid problems 7 years ago [this is due to a nodule] am not on any thyroid meds. as the nodule is not active [so 'they' say - but often have flare ups of symptoms].

The frequency of the attacks of vertigo is unpredictable but getting more, I am not able to go on escalators or up/down stairs that don't have filled in sides.

My doctor gave me tablets for Menieres but I have never been tested !! and the side affects I read about put me off taking them, anyway he said to take 3 a day all the time, but I only get the bad vertigo episodes occasionally - the tablets are - Prochlorperazine 5 mg. Has anyone any experience of these?.

Hi there. This is a good read for all.

tinnitusformula.com/library...

Ali_r profile image
Ali_r

I know this is very late, but I stopped getting vertigo when I gave up gluten. Not had it since

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