I am seeing an endo (in sussex) privately and following my last thryoid results he suggested I would benefit from having 100mgs Levo and 20mgs T3 tablet a day (taking 100m levo with 10mgs together in morning) and then the other 10mgs later in afternoon. As I have never taken T3 before, and its hard to know who to trust these days... he recommended I use Thybon Henning sourced from a pharmacy in London.
Has anyone used this specific Thybon Henning brand of T3 and what was your experience? and initial side effects? He also said that my TSH would appear totally surpressed but this is common as a reading and not to worry.
any thoughts would be appreciated before I go ahead and start buying as I was told they cost £30 per month to go on this T3. FYI I am based in Brighton...
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ChristinaMay
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thanks for your reply. As mentioned in actually wants to start me on 20mgs a day of T3...and trial this for 2 months. My recent TSH was 0.04, T4 22.3 Free T3 6.2 but Reverse T3 .42.. and it has all always fluctuated for years regardless of how much levo I take. so go figure!
I take 800mcg Aristo per week and 10mcg Roma capsules daily (recently reduced from 15mcg)
So this is a trial of Thybon Henning rather than your first trail of T3? That makes more sense of the dosage.... but your current results look top of the range already, what do you currently take?
Would be good if you added ranges, are they result taken 24 hours after last levo and 8-12 after last T3?
thanks for message. Yes first time ever trying any form of T3. I am going on it because my Reverse T3 was way over (and I still have all symptoms.) I got it wrong in my message. He actually wants me to start taking 2 x 5mgs of Thybon. Hpopefully it will help my symptoms.. take care
I'm intrigued why he would give you T3 when you are already top of the range? High RT3 suggest you could be taking a little to much T4 as that too is top of the range?
I have had a full round of bloods and a few things low ie B12, Vit D and Ferritin so am taking supplements to get those up as well. and gluten yes but not dairy. might start eliminating that one as well
I switched to Thybon Henning T3 from Roma capsules a month ago. No adverse effects so far.
Also, just like to say, how refreshing that your endo understands how T3 actually works and isn't going to panic when your TSH becomes suppressed. So many of them don't!
Yes Christinemay it’s the brand I’ve used since starting T3 about 28 months ago. Works fine for me and has a cut line so a 20mcg can be cut into two doses. It’s hard to come by on the high street so I get from a pharmacy listed on Thyroid UK. Name has gone out of my head, I have used Teva and Roma T3 both were fine as well. Good luck with your T3 trial I can see you are getting lots of great advice already so hope it brings you some really big improvement.
thank you so much...and good to know. Its so hard to understand why GP's dont also look at Reverse T3 and treat patiends with T3 especially as levothyroxine alone is never a one size fits all (but I am guessing its do to pharma governance and cost)... By the way. was Teva also T3? I also never heard of Roma T3...
I don't think there is any difficulty whatsoever explaining why GPs don't look at rT3.
There is pretty much no rT3 testing capability within the UK. Neither they nor endocrinologists can look at rT3 except by somehow overcoming a significant cost hurdle to get testing capacity established and available at an acceptable price.
(One exception was a pure research project at Southampton University. Even then, I'm not certain they ran their own assays.)
All UK medicines are in my documents:
helvella - Thyroid Hormone Medicines
helvella has created, and tries to maintain, documents containing details of all thyroid hormone medicines in the UK and, in less detail, many others around the world.
This link takes you to a page which has direct links to the documents from Dropbox and Google Drive, and QR codes to make it easy to access from phones.
The UK document contains up-to-date versions of the Summary Matrix for tablets, oral solutions and liothyronine available in the UK.
I've used Thybon Henning T3. I'm currently on NDT, but I used it for some time before I switched. It's fine. Quite potent I think. I assume he's going to give you a private prescription for it? If so, I got mine from Roseway Labs in London. You just give them a call, send them the prescription and decide how much of the prescription you want to take up front and how much you will leave with them to call off later and then pay the invoice and it arrives a couple of days later. I use Roseway Labs for my NDT too. Never had a problem with them at all.
The last time I purchased TH T3 it was 60p per 20mcg tablet.
I couldn't get the balance right with Levo and T3. I found the T3 very fast for me. So I wanted to try NDT. I've been on it for 11 months now. Not an easy transition at all and the jury is out as to whether I will stay on it, or drop the dose down and add some T3 at some point. I just can't seem to get right. But the T3 in NDT is much softer. I don't get the rushes I was liable too in Liothyronine.
As has been said, build up really slowly. I left two weeks between each increase just to be sure! I split a 25mcg tab into four and started with one quarter. I was taking it self medicated at that point.
Please can you PM me details of your endo? Does he also do NHS work? I’m not too far from Brighton so could request to see him. The one I was recently prescribed T3 but then didn’t request the T3 for my blood test. So I had two blood tests with only TSH and T3 done. Unbelievable!!! I’d like to see someone who knows what they’re doing. But I can’t really afford on going private. I could see him as a one off but not the medication.
I haven’t been on that particular brand. I’m going to look it up as I don’t know anything about it.
Hi, I have Thybon Henning. I started on 5mcg for a couple of weeks, then upped to 10mcg.
I get reactions from many tablets (including some supplements), but I was totally fine with Thybon.
I can’t even take my Levo if I have a migraine as it makes it worse, but I am ok with the Thybon. So I’d give it a big thumbs up.
My endo sorts the prescription via Roseway labs. They are very efficient.
If you start on them, definitely take the advice to start on a lower dose and up it gradually. You might not need 20mcg, be prepared to settle on a lower amount if that’s what your body wants. I ended up adding another 2.5mcg per day after being on it for 4 years. I find Thybon very easy to break into pieces. Good luck 😊
I have been on Thybon a couple of years through a private endo. £60 for 100 tablets. I take 12.5 mcg a day. I took another T3 before that, that I sourced from abroad. As grumpyold says, how refreshing it is that your endo understands that your TSH will become suppressed. Mine just keeps asking me if I will accept the risks to my heart and bones, and we have to go over that again and again at each consultation.
I have used Thybon Henning for the last 3 years with no problems. I seems to be one of cleanest. I tried Cytomel but it did agree with me. I am now on 75mg liquid thyroxine and 15mg Thybon Henning t3.
Yes, DH is on a trial via his private endo. 10mg three times a day. Can’t see any negatives so far and he’s two months in. However I can’t see any positives either but he’s in his customary ‘flare-up’ window he usually has at this time of year. As he has suspected but as yet unknown other condition factoring into this, it may be that influence. Endo wanted a 6 month trial before determining if it helped. I thought it had for the first three weeks but then the flare started 🤷♀️
thanks. For what its worth, i have also noticed my Thyroid bloods (and other vit levels) have always improved when I have been away in mediterranean for month.... must be the sunshine
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